Sorry to hear this mcnulcc,
I know what you mean - we have lost the days of just getting up and getting on with things as we used to. Our new 'normal' is still very odd, where we question every twinge or ache or upset - like you, I have had the odd tummy upset, and I couldn't work out if it's letrozole, or delayed radiotherapy side effects.
Men are nearly always 'practical' about OUR health, but oh boy, when it's their turn, nobody ever suffered like they do - my old man almost seems to turn it into a competition? If I say this or that is troubling me, I then get treated to a resume of all his aches and pains - and to be honest, it's MY TURN NOW !!!
Let it out, do something nice for yourself ( in my case usually stuffing my chops with something bad for me ), and tomorrow will be another day, and hopefully a brighter one. . . .we have a lovely autumn day down here in London. Wish you the best.
I remember when I first posted on here back in November 2016, the ladies used to ring their doorbells or rattle their door knocker for those who finished treatment. I did it for those after me and on several occasions scared teh living daylights out of the postman who caught me doing it
It is strange for a while after you have finished active treatment because you have got so used to the toing and froing of appointments and you do feel a bit lost from time to time but it does get better
I hope you don’t mind me popping in on this thread. I finished my rads nearly 12 weeks ago now. Didn’t get to ring a bell as I’ve had all my treatment in France where I live...however came home and rang the doorbell several times instead!!!😉
Lucaboo you’ve said some lovely things and I think everyone takes comfort from what you've posted. I still feel a little ‘lost’ at times but try not to ‘indulge’ myself too much!! It’s just so lovely to be able to speak with people who have been there too as nobody else quite understands in the same way.
Gill, I too listened to the inspirational ladies on radio 2 yesterday and have listened to some of their podcasts in my early days of diagnosis but now need to catch up with a few more.
Lilacmoon, I’m sending you some hugs all the way from France - hope all is well now.
Take care all you lovelies and thank you for listening to me.
love Rosie xx
Hi sue c.... can you tell me if the medihoney was cream or medihoney dressings, ive looked but there seems to be a few different ones, i certainly could do with something. Big hugs xxx
I know - totally daft thing to do, but with the excuse of finding a nice ‘oil smell removing’ fabric conditioner to treat my jeans and polo to, I went round Tesco’s trying out the brands by smell-test, good excuse for hand and arm exercise with twisting tops off...!, - also Mrs Google says bicarb works wonders, so clothes have been duly bicarbed and have to report it worked well...one small mercy for my favourite jeans !
I hope your BCN gets back to you, I feel a right pest bothering mine as I had a couple of issues with a very pink breast, uncomfortable stitches and possible Lymphoedema after my TM op, and felt I was being a nuisance. I actually got more help, info and reassurance from the Rads nurse who reviewed my treatment, she said pinkness after TMs can go on for at least six months, got some stitches out for me, and I got help with the Lympho, which was confirmed as being there, (mild, thank goodness) when the BCN said it wasn’t...
Got my Rads treatment completion letter today, (the one that goes to the GP) and it says there, in confirmation of what others have said here, that ‘side effects will continue and reach their peak after 10-14 days..’, bit different to what the oncologist told me initially, that it would be at its worst 2-4 days after ! 😳
Had to look up ‘erythema’ as mentioned on the letter, (knew about fibrosis, the hardening, but erythema just means redness) ..I’d say mine was the one described as ‘bright’ ! There is also a mention in my Rads booklet, that I’d not noticed previously, says rads can make the arm weak, - it’s down to nerve damage again, however that is not a common SE and is described as a late effect.
Cheers, Helen xx
Sorry bout the oil spillage!!. What you like? We will get there all of us I am sure and good to have this little thread going as it is helping me and like you say confirms we are not alone in our aches and pains. I think we really have to just give it time. I have also asked my BCN about councelling or mindfulness course etc. Dont want things to get worse of which they may not but then again they might so not going to wait for it to get worse if you know what I mean. They haven't rang yet so must be pretty busy but she usually reads all her mails at the end of the day.
Thank you so much for the replies, Chris and Gill, really encouraging to know I’m not alone..I am ringing a contact number today to see if I can sort out some counselling or CBT, whatever, to help. It really hits me hard sometimes and makes me feel life, good life, is over, you know ? Awful. I’ve had depression in the past and it’s not nice.
Been doing the arm and shoulder exercises, but sometimes only once a day, I admit..and having a physio for a sister is very handy, Chris, even if she sounds a taskmaster ! 😄 - I will try the jar-opening exercises, that’s a great tip.
Drinking water and putting on the cream.. yes...
I had an awful fright yesterday too, I stupidly upended half a bottle of hydraulic oil all over myself, on my bad side too...! - while helping to do a mechanical job on the boat. (Concentration is not good at the mo and I can’t use chemo brain as an excuse, but that’s what it felt like!) I forgot completely that there was no bottom on this plastic bottle, (it was upended to drain the oil into the steering, can’t explain better, sorry) and when finished, I just turned it right way up...stupidly...Oil everywhere...boat is in a right mess, and I was worse!
Had to rush down to the shower block- thank goodness there’s a shower ! - and wash off the oil that was all over arm, clothes, bra and boob... I was convinced it was stinging the skin on my hand, and was imagining the arm visibly swelling with Lympho ..Other people must’ve thought I was nuts racing down marina with a towel and shower gel while clad (braless) in husband’s spare trackies and sweatshirt !
Good grief. Well it made me momentarily forget the aches and pains I’ve been getting !
How to get rid of oil smell on good jeans 🤔😄 ? (I’ll stick to housework and trying to get the garden less like a jungle, safer than messing about in boats at the mo...)
Regards, and thanks again, ladies !
Helen (Thistle) xxx
I finished rads on Friday last, been fairly ok, - but today I felt dreadfully weak in the arm and shoulder, with a really sore area of skin on upper chest (with lots of little bumps, you know how it’s like when you’ve had a bit too much sun? - sometimes they turn to small blisters) and emotionally low..You mentioned you got similarly hit by sore skin, weakness and low mood 13 days after treatment end? 😬 - I was told the worst should peak round about now, 3 or 4 days after, and then gradually improve, so here’s hoping it will..
Anyone else had their arm and hand feeling weak, - I can’t use left hand to turn taps on or anything lately ! Just not sure if it isn’t down to Lympho, which I have unfortunately developed, although it’s mild at present..
Hi I am new to the forum
I rang the bell at the end of July i wished i joined alot earlier looking back now i see what i was feeling was what everyone one else was going through.
Love the Lego story Chris, brilliant.
Everyone seems to be being busy, and I'm starting to feel a bit inadequate!! I do my walking in the park virtually every day, feeding the wildlife, getting recognised by crows and moorhens, lol. We have a jackdaw who comes to our window sill in kitchen for 3 years now, since he was a scrawny youngster, with legs he had to grow into. Quite amazing that he still turns up for some mealworms and a few croissant crumbs!!
Around here, it seems to have become a popular things for youngsters to decorate/paint/find pebbles, and leave them part-hidden in the parks and other places for others to find, photo, and then maybe leave somewhere else - so I've found myself a lovely smooth large pebble, and I'm giving a lot of thought to this first effort - my sister is the artist of the family and leaves some fab ones around, but mine are going to be a bit more basic lol. It's piddling down in London . . .
Its a pleasure glad I can be of help x
Wow bridesmaids dresses that is something special. Yep it is pouring down here, I am sitting doing a cross stitch baby sampler for my friend who is due in November, thought I ought to get my act together and a good excuse as there is nothing I can do outside. Thank goodness I actually managed to get my lawns cut yesterday xxx
Think you might well be running before you can walk. It does take some time to recover from rads, I was told although it does get better as times goes on it can take up to a year before things settle down. Occasionally, especially if I have overdone it in the garden, I will get some aches and pains.
I am sure that your bcn will not think that you are wasting their time, she will reassure you that everything is ok and that what you are feeling is normal. I know mine did when I asked her the same thing a few months after rads when I was having some stabbing pains.
Have a lovely Sunday despite the flipping rain xxx
Hi ladies - I finished rads on 7th August - had the bonus package, have 15 and get 5 boosters free!!
I feel very lucky to have had minimal problems - definitely got a 'vanilla boob' and a 'strawberry boob' now, but only real issues have been dry skin areas that look like tide marks where I haven't washed!! My nip was quite dry, but with the continued moisturising, it seemed to sort itself out . . . . I find if I don't put my glasses on, I can hardly see much difference, lol !! My shoulder/back seem to be fine - but as I am pretty much on the exactly 2 weeks since finishing, I am hoping there isn't a hiccup waiting to get me. Oh yes, the 'stab in the boob' feeling from time to time - can't exactly rub it better in public though. Passes quickly.
I did find it all in all an okay experience, as I was under UCLH, and everywhere is very bright and modern and welcoming, the staff excellent, and the R/T rooms even had different musics and low lighting and sometimes the light-changing coloured lights kicked in. Depends who was working on the day.
I hope everyone continues onwards and upwards to better brighter days now - and for all new ladies coming along, I wish you a calm and easy time of it. And thanks again Gill for your advice at the time.