08-09-2018 07:39 AM
07-09-2018 06:41 PM
Wow thankyou Gill3105 and all you other lovely ladies for the hard work, and i love the name cant wait. Sorry been off radar in everyway as they say. Hopefully bit better tmrw.
Hope all you ladies are well, im looking forward to fb group xxxx
07-09-2018 02:38 PM
It’s amazing that when I miss a day on the forum how much has gone on!!!! Had a busy couple of days but I’ve at least conquered the ironing. Just the spiders, cobwebs and moths to go - cats are helping but not quickly enough.
Thank you Gill for having me and thank you for setting this up for us all. Much appreciate the work you’re doing. Love the name - well done, Paulus, nice one.😉 I will PM you my FB user name over the weekend.
Welcome jclarke and how brave of you to text 5Live and be interviewed. Must have been quite emotional too.
I listened to the first set of podcasts and will go onto the new ones but I’m afraid, at the moment, I’ll end up sobbing my way through them and not actually listening to a thing.
Hope everyone is ok today and feeling positive. The sun is shining here and it’s quite warm too. My garden is calling me.
Love and hugs to everyone.
06-09-2018 09:30 PM
06-09-2018 09:19 PM
06-09-2018 08:13 PM
06-09-2018 07:56 PM - edited 06-09-2018 07:59 PM
No I didn't fess up. . . . after I'd mentioned the weight query, and she said what she thought, and that made some sense, I thought that maybe I better go back on them !! She was saying that the Letrozole really was the best for my diagnosis etc . . .and I just couldn't own up !! That was probably really childish, but I couldn't face a lecture, and I thought she'll have to tell the oncologist ( my unfavourite professional ), and then I'll get another lecture . . . .so sorry, I bottled out of owning up to 4 days Letrozole-free.
I'm sorry I can't guide you on this one . . . . xx
(A big part of me really wants to stop taking them - but as you say, the 'what if's' are psychological blackmail aren't they - and like I said in past, I didn't have good margins, I refused chemo, it was present in one lymph and I'm ER8 ? )
06-09-2018 07:47 PM
06-09-2018 05:33 PM
06-09-2018 04:35 PM
Been for my post-radiotherapy check - 5 weeks since last zapps - and the therapeutic radiologist, to give her her full title, is really lovely and easy to talk to and with. I think it's mainly the tiredness that I'm left with, and she said that we have to be kind to ourselves, give ourselves a break, because these bodies have had good and bad cells zapped, and the good ones are busy repairing themselves . . . . and she looked surprised when I said that I felt that the Letrozole might be nudging my weight up. And she explained why. That being more tired, I possibly am not moving and doing things at my usual pace, even though it might feel like I am? I have to agree, she may well have a point, as I know Letrozole hasn't got weight gain as a usual s/e. ( That doesn't mean that it doesn't make me TOUCHY and MOODY !!) So I may give the L's the benefit of the doubt, in view of my ER8, and after 4 days off, go back to taking the drugs. We shall see.
06-09-2018 07:40 AM
Welcome jclark, glad you found your way here. . . .that was me who replied to your post when you wrote in the 'ask the nurses' section - that MUST have been a Letrozole moment, my excuse was that I was scrolling through 'latest posts' and didn't pay any attention to the 'heading box. And it was the weekend, I didn't want you thinking thre was no one around. . . .only Nurse Paulus !!!
FB group sounds good - although I'm on there as myself ( I am actually not called Paulus can you believe ) - so I think I'll have to think up yet another alias . . . . . xx