Highlighted
Member
Posts: 142
Registered: ‎11-05-2018

Re: First Few Weeks After Ringing That Bell

Hello all

 

Ive not posted here recently, but recovery from rads has been gradual and progressing OK, my only gripe really is shoulder and arm pain, which seems to have hit after the daily ‘up arm’ positioning during treatment, and which isn’t really going away, and wakes me in the night sometimes...

 

I had a Radiology Consultant appointment today, the discharge review...she gave me some useful information regarding the state of boob! Rads finished on 24th August but I’m still a fetching pinky/sludgy brown,  (I was actually very pink from the first early days after op, and never really faded, got darker during rads though ! ) She said it was because I was fair skinned, I’m quite freckly...also she told me I had a fair bit of subcutaneous swelling in the operated breast,..

I didn’t know that at all, I’d had a Therapeutic Mammoplasty on 29th May and thought that was going to be the shape forever ! But no, currently it is actually swollen, and that accounts for it’s feeling heavy, too..and here was me thinking that was just down to rads...😳

So in a twelve month or so, it should have gone down and tissues will soften, and I will likely then need a chicken fillet...!

So, subcutaneous swelling as opposed to a seroma... it is a sort of oedema, apparently. (Great, it can be a partner for my Lymph - oedema !! 😄)

 

And as for the shoulder and arm pain, yes, it’s probably down to the rads positioning, but she also admitted that Letrozole wouldn’t be helping, but that exercise would definitely help. So I shall grit my teeth and lift that arm...also continue with the fluid intake as it’s really important, everyone...

 

Hope everyone is progressing nicely, and with minimal SEs...that bell sound seems rather distant now .. and welcome to all those who’ve yet to hear it ..

 

xx 

 

Member
Posts: 293
Registered: ‎30-03-2018

Re: First Few Weeks After Ringing That Bell

Well ladies it’s been 9 days since our last post 🤔. So here’s me 17 weeks post rads. Few blips en-route but getting there in this never ending flippin journey. Docs app and check up all ok and give it 12 months!! What??? Really?? How’s all you getting on my simply breast friends 😁. Will have jempd in here in 15 days times and what a journey she has had but that light is now there. Just thought it would be nice to catch up so we can help others who may read our thread from the beginning and to see hopefully how far we have come. And you know what we have all come a long long way since our first post in here. Energy levels are increasing, moods getting better, gremlins not so busy thank goodness, hot flushes same, sleep same lack of. Hope your all doing good and speak soon . Jempd hope your first rads when all ok and not as bad as anticipated. X
Member
Posts: 293
Registered: ‎30-03-2018

Re: First Few Weeks After Ringing That Bell

Aww lucaboo. Bless you. Missed you. Give unit a call if you are concerned. It does get easier promise you xx take care my lovely and speak soon.
Member
Posts: 123
Registered: ‎17-06-2018

Re: First Few Weeks After Ringing That Bell

Hi Gill3105...how are you and all you lovely ladies. Ive been a bit quiet this week, i seem to have hit a mental brick wall and not up to my usual humourous banter lol. So ive just had chocolate albiet only once and lay like a lump of concrete on sofa. Boob been giving me a few issues too. But hopefully i will drag myself back into reality this week, i hope so.

 

Stay well all you beautiful ones xxxxx

Member
Posts: 293
Registered: ‎30-03-2018

Re: First Few Weeks After Ringing That Bell

Grrrrr don’t you just love these restless nights. Spent 70:00 yesterday having hair coloured cut and blow dried for it to look like I have been pulled through a hedge backwards this morning from the one hot flush I have during the night that’s last for about 2 hours as wakes me and keeps me awake! Woke up last night with a song in my head and didn’t realise I knew the words to one of Rita ora,s songs. Bizarre what these tab do to you. Even hayley said “ having a bad hair day mum”. But on a brighter note I am getting there and feeling better all round. Still having the odd blip but def getting there. Hope you ladies are doing good lucaboo how’s it going with you and you to Jane. Your at that everything has peaked point if I remember. How you doing ok and don’t forget where we are. Have a good Saturday all and speak soon.
Member
Posts: 293
Registered: ‎30-03-2018

Re: First Few Weeks After Ringing That Bell

Lol mncnnu know what you mean with wasp nest head in a morning. Mine is terrible and my specs steam up also. Thankfully I dont have to many but boy when I do there good can feel the heat coming out top of my head. 1:00 in the morning is time for mine gr at then wide awake for next 2 hours. Oh wonderful but we are all getting there. X
Member
Posts: 73
Registered: ‎22-06-2018

Re: First Few Weeks After Ringing That Bell

Hello lovely ladies

All good here today! Been busy working on hubbys paperwork!!! Keeps me out of mischief and he pays me a little pocket money for doing it.😉

I’m actually 14 weeks now exactly from last rads. Flushes not too bad and not too many either. Achy around my underarm scar again but not that bad, more irritated than pain. No other aches and pains so that’s good. We have  some lovely sunny weather today and it’s almost 30 degrees again. Too hot for gardening or housework...especially ironing. So I’m chilling out with my book.Anyone else reading anything good?

Have a good afternoon everyone. Take care.

Rosie xxx

Member
Posts: 167
Registered: ‎12-05-2018

Re: First Few Weeks After Ringing That Bell

Gill3105. Hot flushes are that bad sometimes my glasses steam up. Ha ha. Get up every morning with a head like a wasps nest. Never mind everything else is doing okay. Hope everyone is well have a good day x
Member
Posts: 293
Registered: ‎30-03-2018

Re: First Few Weeks After Ringing That Bell

Good morning ladies. Early morning for me canny sleep been awake for hours. How are we all doing? Think I am getting there 13 weeks today since last rads and thinking things are getting better. Emotions are more controllable and less frequent. Pain just about gone other than first thing in the morning but thing I may be squashing a tad as I lie on my left side. Hot flushes doable but always send my hair frizzy. It’s lije all the heat trying to get out the top of my head. Thankfully dont have to many. Still drinking lots still using the cream and still excersising. I hope we are all feeling a little better as each day/week goes by. What a journey hey!! Have a lovely day all and I am sure I will be speaking later 🤗🤔💓
Member
Posts: 142
Registered: ‎11-05-2018

Re: First Few Weeks After Ringing That Bell

Great that you are beginning to feel better, Gill, and yes, refurbished boobs are a benefit for sure ! I had a therapeutic mammoplasty to one side, surgeon offered to ‘even up’ at a later date, but as it happens the ‘good’ side was always smaller so it doesn’t really look lopsided, obviously more ‘hang dog’ tho !! 😁 You will look and feel great at the wedding for sure, your confidence will be great on the day, a nice outfit will give you a real boost ! I think I’ve managed to get on FB, and have PMd you with the name ? Xx hope this reaches the forum as I’m posting this from a boat... took a chance on some niceish 🙏 weather for a little jaunt ..xx
Member
Posts: 293
Registered: ‎30-03-2018

Re: First Few Weeks After Ringing That Bell

Hi thistledown yes it’s awful thoughts and as others have said here we have all come through the worst but it does change the perspective on this. Like me in a dress!!! Never happened because of the size of my boobs now just love them and I am one lucky lucky lady all still in tact albeit it a bit wonky and now where a dress with pride so some confidence has come from this Dam thing as we call it. Dare I say it ?? I do feel I have turn a corner over the last few days. Nowhere near as much discomfort, less stabbing pains, still blue nipple though. This is after 12 nearly 13 weeks since last rads. Bit where has that time gone hey. Anyway thistledown you in Facebook yet??? We are waiting for you.
Member
Posts: 142
Registered: ‎11-05-2018

Re: First Few Weeks After Ringing That Bell

Totally understand your emotions at your daughters wedding dress try on, Gill, I’ve realised that it’s these important times for us that make us look inward at this damn thing, like me yesterday, ordering a (Paw Patrol!!) choccy birthday cake for my grandsons birthday next week (he is three as well) and in the shop I was thinking how many more times will I do this for him.. will I see him as a young man? 😕 - so I know what you mean very well xx but as the support team on here have said, it’ll be great and you will so enjoy the day, new outfit and hat to look forward to choosing !!
Paw Patrol and unicorns, heh, kids these days ... xxx
Member
Posts: 73
Registered: ‎22-06-2018

Re: First Few Weeks After Ringing That Bell

Bless you Gill.

I think you are allowed to be emotional over your daughters wedding anyway, regardless of bc. I would have been exactly the same, probably with the identical thoughts you had as well. You just go with it! Yes you must keep us all up to date with your outfit etc. How lovely to have something for next year when you’re stronger and looking like a princess as Lucaboo said.

 

Lilac, his heart was in the right place! But I know it’s the little things that hit us...!

 

Have  a good Sunday lovely ladies. Hugs to you all.

Love Rosie xx

 

Member
Posts: 293
Registered: ‎30-03-2018

Re: First Few Weeks After Ringing That Bell

Aww thank you ladies for your lovely kind words. I am ok this morning thankfully. Yes exciting times. Not got outfit yet lilac probably start looking just after Xmas. I have seen a hat I have fell in love with but ..... never buy the hat before the outfit did that once before and never did find the outfit to go with the hat!! Will keep you all informed. Right must dash as got to go help eldest daughter today for granddaughter 3 rd party. I will be a 🦄 he he. Have a lovely day and speak later. Hope you all have a good one.
Member
Posts: 143
Registered: ‎09-05-2018

Re: First Few Weeks After Ringing That Bell

Awwwww mahoosive hugs Gill x Its emotional already, seeing your youngest child ready to start a new life so I can see why all the other stuff comes to the surface as well.
But what a wonderful occasion to look forward to. Do you have your hat yet?!!

I felt so bad for my dearest boyfriend tonight. He loves cooking for me and made me a lovely dinner but the dessert he got me was a soya one. It looked so lovely but cos I'm a 9 on the hormone score Im too scared to touch soya now. He was really understanding but I felt sad. All over a soya dessert. Little things like that just get to me!!!
Member
Posts: 123
Registered: ‎17-06-2018

Re: First Few Weeks After Ringing That Bell

Aww Gill3105 bless you. I cry when i see a stranger in a wedding dress, so you seeing your daughter im not suprized..what a beautiful moment for you though. Your focus now is getting stronger for the wedding day. Youve overcome the most traumatic..surreal..baron clinical cold..helpless situation in your life..but my beautiful youve come out the otherside. So dust that crown off straighten it up and look forward to seeing ur lovely daughter getting married. We will all be here for any meltdowns inbetween ..all on same road my lovely but we will all get there..big hugs and love xxx
Community Champion
Posts: 9,808
Registered: ‎16-11-2016

Re: First Few Weeks After Ringing That Bell

Gill

 

Oh my darling you are entitled to have emotional times, and goodness seeing your daughter in her wedding dress is very justified at any time.  It is not unusual to have times like this, but I promise it does get better over time and the melt down times get less.  You are still getting over your treatment so it is bound to have an impact on you.

 

I was talking to a colleague at work the other day about my op and promptly burst into tears, where they came from or why I dont know, but I felt a lot better afterwards.

 

That is the beauty of this forum we can let go and the ladies on here know exactly what we are going through because they have been there and can give us loads of support.

 

Sending you loads of Helena huggles xxx

Member
Posts: 138
Registered: ‎10-08-2018

Re: First Few Weeks After Ringing That Bell

aww Gill, you are allowed to cry when you see a precious daughter in her wedding dress !!  And of course you're going to be there, we're all going to want to see the pics.  Daughters always look beautiful in their wedding togs  -  it makes them glow, and it makes us super-happy for them.

 

Meltdowns are in the ticklist for all of us, for the most obvious or the most bizarre reason  -  like I nearly always cry if any therapist pays attention to what I am saying, or if virtual strangers show interest in what i am saying? ( My husband has the out of the house face, and the indoor face  -  the indoor face doesn't talk, watches TV incessantly, and is ALWAYS more ill/in pain than I ever could be haha  ).

 

So now it's looking forward time for you Mrs  -  flowers and pretty things and happy talk  -  sounds like South Pacific !!  My younger daughter got married in Hawaii about 18 months ago  -  they wanted to be super-private   -   but the photos were beautiful, and enough for me  -  elder daughter married at the local registry office with my 2 granddaughters and grandson bridesmaids and pageboy.  As we always say - as long as they are happy.

 

Happy daze for you  -  onwards and upwards  -  and no R/T side effects by then !!! yay !!

Member
Posts: 293
Registered: ‎30-03-2018

Re: First Few Weeks After Ringing That Bell

Ohhhhhh dear melt down alert!!!! Thought I was doing well. Emotional moment when youngest daughter had her first wedding dress fitting today and they didn’t let me in the changing room till she was ready so was quite happy looking around for ideas on little bridesmaid dresses as I am making these. Well went in and was fine and she looked stunning. Sat down why she tried on head gear etc etc and just started crying 😢. And the reason was those bloody emotional gremlins appeared from nowhere as they do and all I was thinking is this might be the only time I see her in her dress. Awful awful feeling. Haven’t told her this and never would so just need a vent and get it off my chest. So here I am. Like you say lucaboo where has the carefree person gone and me being one who doesn’t normally do tears specially not in public. So a few steps back for me again but I am ok and I will see my daughter get married next year and I will best this. Speak to you all soon in here or next doors lounge 😳
Member
Posts: 123
Registered: ‎17-06-2018

Re: First Few Weeks After Ringing That Bell

Hi Gill glad ur picking up now and taking steady pace into work. Ive worked on and off through mine but its been tough i can say. Anyway for whatwver reason i dont know if it rads or tamoxifen but its knocked me off my feet. Mcnullcc Chris i feel your pain and anxiousness if you stop your letrozole like my tamoxifen its a roll of the dice for sure. Ive tried so hard this week but omg. My clients come to me for help and i swear they must go out wanting to hang themselves. Its really a tough one. So im praying its the rads ans not tamoxifen couldnt stand 5yrs of this. Does anyone feel like they have taken on another personality ?? Or is just me? I keep wondering where this carefree person went.
Im glad ur feeling well back at work everyone needs a focus otherwise u would go crazy. So stay well lovelies see u on the flip..lol aka new site. Xxx