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First Few Weeks After Ringing That Bell

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Re: First Few Weeks After Ringing That Bell

Lucaboo Sue your so right have got a second chance think I'm just really tired and fed up with the tablets mind working overtime thinking is this what the next five years is going to be like. Plus we should have been going away today but cancelled as the holiday was going to be two weeks full on and I know now there was no way I would have been able to go and enjoy it. Going to London for a few days next month so need to get my head sorted and start looking forward to that. Thanks for your support and reassurance means a lot xx
Community Champion

Re: First Few Weeks After Ringing That Bell

Hi Chris. Sending hugs to you. Know exactly what you are saying and I am identical to you. Rock of the family and just get in with stuff and cope. I have the competition on illness with my hubby. Never complete the conversation of how I feel before we are discussing his aches and pains. Just a man thing I think. Crying is not a bad thing you know it’s a release. I am anastrozole and doing ok with it. I don’t get insomnia but I don’t go straight to sleep like I used to and it’s at this point when I feel I can’t take any more. But we can and we will because we will get better. I am so glad I started this thread as we are all helping each other in so many ways. We will get there ladies. X take care
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Re: First Few Weeks After Ringing That Bell

Mcnulcc Chris...so sorry you are feeling this way but perfectly understandable. You are emotionally drained and everything gets on top of you. I am the same some days i wonder who is looking back at me in the mirror.
But when i feel really down i just think back to my test results appoint at royal, and the lady in front of me had results where the was nothing they could do. So remembering her kinda jolts me back into i got a second chance mode.
But that said if ur letrozole is giving you these really back side effects you need to change course with medication.
My heart breaks for you when yoy say something is missing, because i feel it too. Will i ever ne same again i ask myself.
The long and short of it is yes we will..but it doesnt happen overnite it will take time day by day.
The worst i think is the insomnia when ur lay awake over thinking everything getting it all outta context and then ur mind tries to rationalize it...thats a tough one. Maybe ur gp would give u short course of sleeping tabs to help you through i would certainly ask Chris.
I think when ur alone in the house its worse its like all ur thoughts and fears are crushing you...and that my lovely is exactly what it is fear...fear and anxiety. And sometimes it overwhelms us with the what ifs. If i feel like that i do something i need to focus on that takes my mind away from my thoughts.
Its certainly not helping you when ur feeling poorly too meds and rads no wonder.
So dry them tears and get the fears into another room in ur head. Once you start feeling bit better med wise you will start to calm ur mind.
Why dont you ring up and bring onco appoint nearer so yoy can get letrozole reviewed dont suffer chris get it changed if not suiting you.
Big hugs lovely just go with the flow today and rest..and dont forget text if ur having rough day ...dont forget im travelling the same road as you so here to help xxxxxxx
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Re: First Few Weeks After Ringing That Bell

Paulus. Thank you for understanding I think I have been quite upbeat most of the time but today I am just really miserable and feeling sorry for myself. To be honest with you I have always been the rock of this family and its so hard to be dealing with all this personal c##p. I'm never really ill and when I am like most of us I just get on with it but this has just knocked me off my feet. I do feel a bit better for putting how I feel into words and knowing that no one will judge me for how I am feeling is a great help. Unfortunately stuffing my face or a glass of wine is not an option at the moment as I really do feel sick today. Again like you not sure if it's just exhaustion,the Letrozole or perhaps the Rads that are making me feel like this. Going to have a long soak in the bath later and an early night. I'm sure tomorrow will be a better day. Thanks Chris xx
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Re: First Few Weeks After Ringing That Bell

Sorry to hear this mcnulcc,

 

I know what you mean  -  we have lost the days of just getting up and getting on with things as we used to.  Our new 'normal' is still very odd, where we question every twinge or ache or upset  - like you, I have had the odd tummy upset, and I couldn't work out if it's letrozole, or delayed radiotherapy side effects. 

 

Men are nearly always 'practical' about OUR health, but oh boy, when it's their turn, nobody ever suffered like they do  -  my old man almost seems to turn it into a competition?  If I say this or that is troubling me, I then get treated to a resume of all his aches and pains  -  and to be honest, it's MY TURN NOW !!!

 

Let it out, do something nice for yourself ( in my case usually stuffing my chops with something bad for me ), and tomorrow will be another day, and hopefully a brighter one. . . .we have a lovely autumn day down here in London.  Wish you the best.

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Re: First Few Weeks After Ringing That Bell

Hope you don't mind me having a bit of a weepy post but I am feeling very down today and don't know how to cope with it. Husband has gone out with grandson and I'm sitting here crying again. I had a terrible night last night blasted Letrozole giving me insomnia sweats and terrible stomach ache followed by frequent trips to the toilet. I can't believe that 5 months ago I was fine getting on with life and oblivious as to what was to come I feel like a cartoon character today you know the one that is walking around with the **bleep** thunder cloud hanging over their head. It just feels so unreal and I'm not sure how much more I can take. I want to be me again not this knackered wreck that seems to be in the mirror every morning I tried to explain to my husband that I feel something is missing but he doesn't understand I think he feels that I should pull myself together but it's so hard today and I just feel empty and exhausted. I know it will get better but today is just a bad day and I really needed to get this off my chest before I crack up completely.
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Re: First Few Weeks After Ringing That Bell

Hi Rosieposie and welcome to this thread, its nice to see your 12 weeks down the line! I didnt get to ring the bell either, although the centre did have one. But my last appointment was full of elderly patients and to be quite honest i thought i would scare them half to death if i started ringing that brass bell lol...so i skipped out the place never to return!
Oh the joy.

I hope you are recovering well and keep popping on here its always nice to have a chat ...someone always pops up to say hello big hugs xxx
Member

Re: First Few Weeks After Ringing That Bell

Thanks Sue c i will give it a go xxx

Community Champion

Re: First Few Weeks After Ringing That Bell

Hello rosieposie and welcome. As you can see we are all getting there slowly and sharing how we are feeling and it sure helping me. Come back in for coffee as kettle is always on.
Helena thank you for your kind words as always. Thing we need you big knickers some days so we can all hang out in them!!
Take care
Community Champion

Re: First Few Weeks After Ringing That Bell

Rosyposie

 

I remember when I first posted on here back in November 2016, the ladies used to ring their doorbells or rattle their door knocker for those who finished treatment.  I did it for those after me and on several occasions scared teh living daylights out of the postman who caught me doing it Smiley Happy

 

It is strange for a while after you have finished active treatment because you have got so used to the toing and froing of appointments and you do feel a bit lost from time to time but it does get better

 

Helena xxx

Member

Re: First Few Weeks After Ringing That Bell

Hello Ladies

 

I hope you don’t mind me popping in on this thread. I finished my rads nearly 12 weeks ago now. Didn’t get to ring a bell as I’ve had all my treatment in France where I live...however came home and rang the doorbell several times instead!!!😉 

 

Lucaboo you’ve said some lovely things and I think everyone takes comfort from what you've posted. I still feel a little ‘lost’ at times but try not to ‘indulge’ myself too much!! It’s just so lovely to be able to speak with people who have been there too as nobody else quite understands in the same way.

 

Gill, I too listened to the inspirational ladies on radio 2 yesterday and have listened to some of their podcasts in my early days of diagnosis but now need to catch up with a few more.

 

Lilacmoon, I’m sending you some hugs all the way from France - hope all is well now.

 

Take care all you lovelies and thank you for listening to me.

love Rosie xx

Community Champion

Re: First Few Weeks After Ringing That Bell

Hi
It's Medihoney barrier cream. A bit pricey, but we'll worth it.
Sue xx
Community Champion

Re: First Few Weeks After Ringing That Bell

Hi Jclarke and welcome. I was sore under the boob just after I had finished rads it was on the creaseline and the skin had broke down. I rang my rads team and they advices to leave off the cream and place a cotton hankie between the bra and boob to allow air to get their. It soon dried up and was fine. Hope this helps
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Re: First Few Weeks After Ringing That Bell

Hi Gill, yes I have listened to that podcast and Neareat and dearest... it was really interesting and comforting to listen to other people’s thoughts and know that how you feel is also how others feel when dealing with cancer. I am really struggling with the reality do what has happened to me in the last few months and am having some sessions with a therapist but ultimately YOU are the only one who can deal with your feelings and at times that is scary and lonely and hard xxx sending hugs to all of you out there post treatment xxx the journey is not over xxx take care xxx
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Re: First Few Weeks After Ringing That Bell

Hi! Can anyone help with some advice on how to treat very sore patches underneath the breast post radiotherapy? It wasn’t happening during the treatment but has got worse in the week since finishing. It hurts!!!! Xxx thanks xxx
Community Champion

Re: First Few Weeks After Ringing That Bell

Hugs to you lilacmoon. Lovely words there lucaboo. Did any of you hear on radio 2 yesterday. You me and the big C and putting can into cancer. I listened to some of the podcasts and will listen to the rest today. 3 ladies who have had cancer in different ways. There are several podcasts on there but one is called “about the nearest and dearest”. Good listening. It is an hour long but lots ring true to me personally. It is the 3 girls and family and how those close really didn’t understand what the girls were going through until this podcast was recorded. There is also visual recordings of the girls talking of their journey. Just type in you me and the big c podcasts and take a look. You do have to sign up to listen to the full podcasts but it’s quick and easy. We will get there my lovelies but it sure is going to take time. I keep looking back at hour far I have come to today and you know what I have done pretty good even though my hubby says my feeling are all in my mind ! Huh yeah right! I think it all about keeping busy as lucaboo says do something each day that takes your mind off things. I have bought a bike and go round the village 2/3 times a day and it is helping. Have a great day ladies and speak later as off on me 🚲
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Re: First Few Weeks After Ringing That Bell

Morning lilacmoon..dont be sorry ever..men/women/kids they can all be insensitive to someone with cancer diagnosis, they dint mean to hurt you. But like weve said before people in general think youve had the op, you had chemo/rads etc now suddenly you should be all better. Well im afraid lifes not like that. Cancer diagnosis is a huge huge mental curve, and your lived ones need to support you. If you cry...let it out..if you want t shout..shout..anything that makes YOU feel better. And if boyfriend understands he will just walk into another room and let yoy do it then come back and calm you. Your treading on a lune at the moment..one false move mentally and u wobble over it for a while..but u will get back on track. So if yr bf is being insensitive again just get out the room...dont retaliate that makes u worse stress wise..if u can go for little walk and just get away from the situation. You be suprized how different things look when you take a step away. So dry those tears my lovely....you will get there..as the old saying goes which is very true " when life says give up...HOPE whispers ....try it one more time...Big love and hugs xxxx
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Re: First Few Weeks After Ringing That Bell

Thank you so much Lucaboo xxx

Feeling very very low tonight. My B/F has really peed me off being so stupidly blokeish and thoughtless and I'm beside myself with stress and upset. Really not what I need right now 😕😕😕

Hopefully things will calm down by the weekend and he'll realise what an a☆☆e hole he's been.

Sorry xxxx
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Re: First Few Weeks After Ringing That Bell

Lilacmoon..its almost unreal its called dissassociasion. What happens is your brain is on auto pilot because of high levels of stress, so when you look back on it all irs happen to someone else not you in ur mind. That is how ue mind keeps u safe and sane. But little bit will come filtering thro as months go on and ur mind will process them and put them to bed in another room in ur head. You will get there lovely but bit by bit. Distration is the key ..distract urself few hours each before u know it uve not even thought about it and thats how u recover. Hope all u lovies are well and feeling a much better .. we stick together...and were strong when one has fallen. So we do what we can but pick them up. But be sure someone will ur never alone on..so goodnight my beauties sleep well xxxxx
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Re: First Few Weeks After Ringing That Bell

I hadn't thought about looking and feeling like a bag lady- I turned into one without noticing. I am happy to have my 2 battered and scarred breasts but since start of radiotherapy they have been encased in M & S brilliant supportive crop tops instead of usual underwired nice silhouette! I am almost scared to return to usual bras but I do look s sight!!
Amazing how these things don't matter when your life is challenged
Xx
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Re: First Few Weeks After Ringing That Bell

I too feel like this all happened so long ago and to someone else! Seems so unreal now and feel like I'm at a bit of a loose end.
Silly mare.
🌻🌼🌻
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Re: First Few Weeks After Ringing That Bell

Hi sue c.... can you tell me if the medihoney was cream or medihoney dressings, ive looked but there seems to be a few different ones, i certainly could do with something. Big hugs xxx

Community Champion

Re: First Few Weeks After Ringing That Bell

Hi lucaboo and welcome to time after ring that bell that you didn’t ring. Big ring for you from me. Glad sister is ok. Tense time. Come back let us know how your getting on. Bring cake and I will make the drinks!! 🤗
Community Champion

Re: First Few Weeks After Ringing That Bell

Hi sue. Pop in anytime the kettle is always on 😃. Chris’s turn 😝
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Re: First Few Weeks After Ringing That Bell

Afternoon Chris glad the boobs feeling bit better. Im going to leave those polypem off for day or two my nipple looks worse so im going to let it dry a bit. I know what u mean about tshirt and leggings ive lived in them too lol.
Im glad to be free of that place tho grateful for treatment but jez couldnt wait t fin and ysday just fin me off. I feel like the whole experience happened to someone else its strange.
Hope your feeling better emotionally its a rollercoaster for sure.
I didnt know at the time ysday but as i was sat in rad centre my sister was admitted t aintree with heart trouble..mt family tjought best not t tell me whilst i was sat next door to hospital..jesus what an afternoon. Shes ok thankfully but got t go back for scans etc....rock and roll life! Xxx
Community Champion

Re: First Few Weeks After Ringing That Bell

Hi Ladies
I hope you don't mind me popping in....
After rads I too had very sore nipple. The nurses gave me Medi honey and it worked really well. I believe you can get this on amazon. Would highly recommend.
Sue xx
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Re: First Few Weeks After Ringing That Bell

Morning ladies hope you are all well and feeling a little better each day. Pleased to say nipple not so sore can actually bear to have clothes next to skin so progress.
Sue hope you are okay after yesterday and that you were able to finally relax last night knowing that you haven't got that awful long trek to do today. Weather is really grim here today so I think I'm go to have a sort through my wardrobe, lived in leggings and baggy tops for weeks easily taken off for Rads.!! Time I stopped looking like a bag lady xxx
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Re: First Few Weeks After Ringing That Bell

Gill 

 

I know - totally daft thing to do, but with the excuse of finding a nice ‘oil smell removing’ fabric conditioner to treat my jeans and polo to, I went round Tesco’s trying out the brands by smell-test, good excuse for hand and arm exercise with twisting tops off...!, - also Mrs Google says bicarb works wonders, so clothes have been duly bicarbed and have to report it worked well...one small mercy for my favourite jeans ! 

 

I hope your BCN gets back to you, I feel a right pest bothering mine as I had a couple of issues with a very pink breast, uncomfortable stitches and possible Lymphoedema after my TM op, and felt I was being a nuisance. I actually got more help, info and reassurance from the Rads nurse who reviewed my treatment, she said pinkness after TMs can go on for at least six months, got some stitches out for me, and I got help with the Lympho, which was confirmed as being there, (mild, thank goodness) when the BCN said it wasn’t...

 

Got my Rads treatment completion letter today, (the one that goes to the GP) and it says there, in confirmation of what others have said here, that ‘side effects will continue and reach their peak after 10-14 days..’, bit different to what the oncologist told me initially, that it would be at its worst 2-4 days after ! 😳

 

Had to look up ‘erythema’ as mentioned on the letter, (knew about fibrosis, the hardening, but erythema just means redness) ..I’d say mine was the one described as ‘bright’ ! There is also a mention in my Rads booklet, that I’d not noticed previously, says rads can make the arm weak, -  it’s down to nerve damage again, however that is not a common SE and is described as a late effect.

 

Cheers, Helen xx 

 

 

Community Champion

Re: First Few Weeks After Ringing That Bell

Hi Helen

 

Sorry bout the oil spillage!!.   What you like?   We will get there all of us I am sure and good to have this little thread going as it is helping me and like you say confirms we are not alone in our aches and pains.  I think we really have to just give it time.  I have also asked my BCN about councelling or mindfulness course etc.  Dont want things to get worse of which they may not but then again they  might so not going to wait for it to get worse if you know what I mean.     They haven't rang yet so must be pretty busy but she usually reads all her mails at the end of the day.          

 

 

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Re: First Few Weeks After Ringing That Bell

Thank you so much for the replies, Chris and Gill, really encouraging to know I’m not alone..I am ringing a contact number today to see if I can sort out some counselling or CBT, whatever, to help. It really hits me hard sometimes and makes me feel life, good life, is over, you know ? Awful. I’ve had depression in the past and it’s not nice.

Been doing the arm and shoulder exercises, but sometimes only once a day, I admit..and having a physio for a sister is very handy, Chris, even if she sounds a taskmaster ! 😄 -  I will try the jar-opening exercises, that’s a great tip.

 

Drinking water and putting on the cream.. yes...

 

I had an awful fright yesterday too, I stupidly upended half a bottle of hydraulic oil all over myself, on my bad side too...! - while helping to do a mechanical job on the boat. (Concentration is not good at the mo and I can’t use chemo brain as an excuse, but that’s what it felt like!) I forgot completely that there was no bottom on this plastic bottle, (it was upended to drain the oil into the steering, can’t explain better, sorry) and when finished, I just turned it right way up...stupidly...Oil everywhere...boat is in a right mess, and I was worse! 

Had to rush down to the shower block- thank goodness there’s a shower ! - and wash off the oil that was all over arm, clothes, bra and boob... I was convinced it was stinging the skin on my hand, and was imagining the arm visibly swelling with Lympho ..Other people must’ve thought I was nuts racing down marina with a towel and shower gel while clad (braless) in husband’s spare trackies and sweatshirt ! 

 

Good grief. Well it made me momentarily forget the aches and pains I’ve been getting ! 

 

How to get rid of oil smell on good jeans 🤔😄 ?  (I’ll stick to housework and trying to get the garden less like a jungle, safer than messing about in boats at the mo...) 

 

Regards, and thanks again, ladies ! 

 

Helen (Thistle) xxx

 

 

Community Champion

Re: First Few Weeks After Ringing That Bell

Hi thistledown. 10/14 days after I’m afraid. 😟. My emotions are all over the place 9 weeks on along with more discomfort that the last 4 month. Have mailed my bcn this morning just for a bit of re assurance. I am sure she will ring me later so will let you all know what she says. I am sure it is all part of the healing process and all the nerves settling down. Will be back when she has rang me.
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Re: First Few Weeks After Ringing That Bell

Thistledown. I have been having trouble with the grip on my effected side Fortunately my sister is a physio and reassures me it's down to the nerves etc reconnecting following the surgery she is a bit of a tyrant when it comes to me doing my exercises but has told me to practice taking the tops of bottles several times a day to improve grip. It does hurt but she tells me that's good. Her mantra no pain no gain!!
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Re: First Few Weeks After Ringing That Bell

Hello Zippet

 

I finished rads on Friday last, been fairly ok, - but  today I felt dreadfully weak in the arm and shoulder, with a really sore area of skin on upper chest (with lots of little bumps, you know how it’s like when you’ve had a bit too much sun? - sometimes they turn to small blisters) and emotionally low..You mentioned you got similarly hit by sore skin, weakness and low mood 13 days after treatment end? 😬 -  I was told the worst should peak round about now, 3 or 4 days after, and then gradually improve, so here’s hoping it will..

 

Anyone else had their arm and hand feeling weak, - I can’t use left hand to turn taps on or anything lately ! Just not sure if it isn’t down to Lympho, which I have unfortunately developed, although it’s mild at present..

Yuck.

 

Thistle xx 

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Re: First Few Weeks After Ringing That Bell

Hi I am new to the forum 

 

I rang the bell at the end of July i wished i joined alot earlier looking back now i see what i was feeling was what everyone one else was going through.

 

Thank you 

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Re: First Few Weeks After Ringing That Bell

Gill. I have really missed having the grandsons stay over while I have been having treatment. We have alway had them staying at least once a week since they were really little my daughter has one little boy age 6 and my son has 3 boys 9,7 and 18 months old. The boys think I have had an operation on my shoulder and that's why they haven't been able to stay but I'm really hoping that they will be able to stay in the next few weeks. Like you say what goes on at nana and grandads is our secret. We have fab movie nights with popcorn or play monopoly and stay up till at least 8.30!!. But mum and dad don't know that!. Enjoy your midnight feast when it happens. Happy time's ahead xx
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Re: First Few Weeks After Ringing That Bell

Love the Lego story Chris, brilliant.

 

Everyone seems to be being busy, and I'm starting to feel a bit inadequate!!  I do my walking in the park virtually every day, feeding the wildlife, getting recognised by crows and moorhens, lol.  We have a jackdaw who comes to our window sill in kitchen for 3 years now, since he was a scrawny youngster, with legs he had to grow into.  Quite amazing that he still turns up for some mealworms and a few croissant crumbs!!

 

Around here, it seems to have become a popular things for youngsters to decorate/paint/find pebbles, and leave them part-hidden in the parks and other places  for others to find, photo, and then maybe leave somewhere else - so I've found myself a lovely smooth large pebble, and I'm giving a lot of thought to this first effort  -  my sister is the artist of the family and leaves some fab ones around, but mine are going to be a bit more basic lol.  It's piddling down in London . . . 

Community Champion

Re: First Few Weeks After Ringing That Bell

Brilliant Chris. Love it. Off out with my two grand daughters tomorrow, special times with nana and grandad. They are also on sleep count down to a sleep over next weekend with the promised bike ride 😳. And midnight feast (at 8:00) lol. What happens at nana,s stays at nana,s Can’t wait happy and crazy times.
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Re: First Few Weeks After Ringing That Bell

Lilacmoon - Thank you for replying I knew I had seen a post about sore nipple but could not find it Been to Boots and got cream and nipple pads hopefully I will get some relief...
Also thought I would share today's experience and hopefully make you smile

Took my grandsons to a lego event at the exhibition centre in Liverpool earlier today. Part of the exhibition is a model of the new cancer hospital they are hoping to build funded by selling lego bricks for £1.00 each. So we bought some bricks and the boys are adding them to the model,I turn around and who is standing next to me but one of the radiographers who had been treating me up to last week. Hi he said and then gave me a massive bear hug. How are you doing.you look really well. I'm great I say. Can't really stand surrounded by kids and say "actually my nipple is on fire and I'm knackered." Anyway my husband shakes him by the hand and says in a really loud voice thank you for looking after my wife although im suprised you recognised her with her clothes on. We did get a couple of strange looks from the people standing nearby!!
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Re: First Few Weeks After Ringing That Bell

Gill

 

Its a pleasure glad I can be of help x

 

Wow bridesmaids dresses that is something special.  Yep it is pouring down here, I am sitting doing a cross stitch baby sampler for my friend who is due in November, thought I ought to get my act together and a good excuse as there is nothing I can do outside.  Thank goodness I actually managed to get my lawns cut yesterday xxx

Community Champion

Re: First Few Weeks After Ringing That Bell

Thank you helana your an angel. It is all about over doing it I think as you say the aches and pains kick in and this is me. Busy dressmaking today as it’s raining. Little ones bridesmaid dresses. Exciting and it’s quite chilling also so I am relaxing in a fashion!! Thank you again for your kind and always re assuring words.
Community Champion

Re: First Few Weeks After Ringing That Bell

Gill

 

Think you might well be running before you can walk.  It does take some time to recover from rads, I was told although it does get better as times goes on it can take up to a year before things settle down.  Occasionally, especially if I have overdone it in the garden, I will get some aches and pains.

 

I am sure that your bcn will not think that you are wasting their time, she will reassure you that everything is ok and that what you are feeling is normal.  I know mine did when I asked her the same thing a few months after rads when I was having some stabbing pains.

 

Have a lovely Sunday despite the flipping rain xxx

Community Champion

Re: First Few Weeks After Ringing That Bell

Morning all. Well almost 8 weeks on now and feeling ok. All se,s have now settled other than slight discomfort near snb scar and nipple. Trouble is I keep prodding and poking and checking just in case which I suppose isn’t helping. Might give bcn a quick mail see what she says. Don’t you just hate wasting their time with something that you know is fine and all part of the healing process . Maybe re assurance is what is needed. Also note to others with big boobs “don’t run lol”. Ran out from the rain on Friday and ouch pretty painful just like after the op when sat in the car and went over a pebble!! I suppose I have to accept that my boob nerves are still very much settling down. Am I trying to run before I can walk? This new norm is taking some getting used to. Have a good Sunday all and hope all going well for you.
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Re: First Few Weeks After Ringing That Bell

Meant *It wasn't a pretty sight*!!
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Re: First Few Weeks After Ringing That Bell

Hi Chris, I've posted about my nip in other threads, so apologies to anyone who's read my take on it already!!!
Scroll on if you have 😂😂😂
My skin did great, no issues at all but my nip didn't fair so well. It was very itchy and swollen and so so sore to touch. It was almost like a blister around it and although there was no blood or skin breakdown, it was a pretty sight.
Never forget the look of horror on my boyfriends face when i gave him a flash 🤢
I went to Boots and got a tube of Lanolin cream "Lansinoh" tiny little purple tube and a box of breast pads. After using it for a week my skin dried out and once the scab feel off it was lovely new skin underneath. Sorry for the graphics!! Boob and nip now fully recovered but i have more or less a full box of breast pads...........
🌼🌼
Community Champion

Re: First Few Weeks After Ringing That Bell

Hi Chris. Sorry about your nipple but know exactly what you mean. Mine was more itchy than sore and thankfully didn’t break down. Also same with bothering the rads team. Please don’t worry about bothering them it’s what they want you to do. My skin broke down under the boob and advice was no cream at all for a few days and to let it dry a little. It worked almost overnight for me once I stopped with the cream. Hope this helps but give them a quick ring on Tuesday as I would imagine they will be waiting for your call!
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Re: First Few Weeks After Ringing That Bell

Mcnulcc Chris..sorry to hear about ur skin probs omg nothing worse. Ive had one if those polyprem dressings on mine its helped a bit. When i was at rads a lady came in who had finnished rads the week before with split skin and the rads nurse told her to ring her bcn at hospital she was under. I think they may be someone in duty there so try give them a call. Also i read about special rad cream ur gp can prescribe. What a nitemare for you though on a bank holiday to. If all else fails u can get those polyprem dressings in amazon next day delivery. Hope you soon get it sorted....love and hugs xxxxx
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Re: First Few Weeks After Ringing That Bell

Hello ladies looking for a bit of advice. Most of my skin is still doing well but oh dear my poor nipple is so sore and cracked. Itching like mad. Have been slapping the cream on every couple of hours but wondered if anyone has any suggestions. I don't feel it warrants bothering the Rads team yet and with it being a bank holiday I am not sure that anyone will be there anyway. Any suggestions welcome. Hope everyone is well x Chris
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Re: First Few Weeks After Ringing That Bell

AnnieA, I hear ya!! I was called in to my boss' office yesterday (felt like a school kid all over again being sent to the headmistress) and actually considered that she was going to ask me how i was. But no, she just talked about a company restructure. But even when she or my line manager ask how I am, its not in the way of "Seriously, how are you, are you coping, can we do anything to help" its more of the causal "How are you?" -meaning for me to give the shortest answer possible.
Hey ho.
I have a job where Im out and about most of the time so as long as they leave me alone I'll do my own managing of how I feel.

🌼🌻🌼

Member

Re: First Few Weeks After Ringing That Bell

Hello my lovely friends xxx Been a bit quiet on the forum front this week as it was my first full week back at work.
My life was I knackered by yesterday evening!!!
My body wants to hit sleep mood at about 1 to 2:30 and although I could easily have a siesta i fight it. (Although the thought of an afternoon nap really appeals but not professional when at work!!!)
Now 7 weeks since the end of treatment and everything has pretty much settled down. I still have a very faint pink patch on my chest where the rad field ended and the non zapped skin meet and it get slightly itchy and warm if I get hot. But I carry a tube of moisturiser in my handbag and dap on some of that to calm any flare ups.
Im really impressed with the way my wounds have healed, i keep meaning to up the use of Bio oil but my scares have more or less gone. Thankfully the scare from my node removal gets hidden in a convenient bit of under arm fat 😂😂😂
Im keeping an eye on any side effects from the Tamoxifen as I've been on the for 3 months now and touch wood, the only thing I can think of is a hot flush to the middle of my chest a few times a day but thats not every day. Plus Im using it as an excuse as to why I can't lose weight!!!
Im back at the hospital in about another 3 weeks and I think that that is when they sign me off?? I might give my BCN a bell just to confirm what its all about.
I know there is never an ideal time for all this rubbish to hit, but Ive got to admit that it was well planned with it all coinciding with a lovely summer rather then a dark and gloomy winter.
Every cloud!!!!!

Much love xxxxx
Member

Re: First Few Weeks After Ringing That Bell

I finished on 15th with everyone's expectations that 'that's it then, you've done it'- I I passed through sessions with no issues and now have itching and pinkness but nothing more- yet.
I feel it was a surreal experience, nobody asks how I am because I'm fine-!
What an odd experience I've been through and continue to go through. I'm so pleased to read about others in a similar position to me.
Xx