10-12-2018 05:26 PM
I am joining this thread as I will start radiotherapy on 18th December. Brief history is that I was diagnosed with a large area of DCIS and a large invasive tumour ( they thought it was 5cm but it was actually 4cm). It was triple positive so I had neo-adjuvant chemotherapy, which resulted in a full pathological response to the invasive tumour ( all the tumour had gone), but due to the size of the DCIS I had to have a mastectomy. It has been a long journey from finding a lump on 1st May. I wish all the December ladies well. We can do this!
08-12-2018 06:19 PM - edited 08-12-2018 06:21 PM
Sorry it is day late, however ringing the bell for you today on completing your rads. Re the fatigue, are you still taking in plenty of fluid as that will help with the dehydration which can cause the fatigue
Sending you hugs
08-12-2018 01:37 PM
07-12-2018 11:38 PM
I found out yesterday I start on the 17th. I just need some Aveeno or E45 I think. I have 4 weeks including 5 days which are a boost. I went to an open evening last night so saw behind the scenes. I had a Therepeutic Mammoplasty and had chemo first (7 FEC-T).
07-12-2018 10:48 AM
Ask you rads team what they can give you. I know when the area around my nipple got sensitive and looked like it might be starting to break down the rads murse gave me a polymem dressing, it is supposed to be for burns however I used to cut a square of it and put it between my bra and skin and it helped with the rubbing xx
07-12-2018 09:27 AM
06-12-2018 10:35 PM
What a wonederfully thoughtful thing to do, I am sure you are going to get so much joy and pleasure from opening a present every day and so nice that they have included something for the days when you are not having rads xxx
06-12-2018 08:37 PM
I thought I would share a random act of kindness that I have received. Someone from my local church, knowing that I was starting radiotherapy on Tuesday, gave me a carrier bag full of 22 wrapped gifts. She explained that they are one for every day of my treatment (including weekends). The gifts, she said, were small and silly, but to me,the sentiment and care taken with wrapping them speaks volumes. So far I have opened a mini stollen, a water bottle, and 2 packs of tissues. I feel so lucky as the gifts give me something to look forward to after each treatment :-).
Has anyone else experienced such kindness, or are there any other tips to lift our spirits as we go through the treatment?
06-12-2018 08:05 PM
I had a WLE and sentinel node biopsy in October and started 15 sessions of radiotherapy last Thursday, so I'm one week down, two to go.
Up until today the worst thing for me has been travelling there and back. I am having to use a taxi because I have early appointments, and it was late one day and I got really stressed and upset.
This morning I started to itch and the skin is quite red in a few areas on the breast and under the arm. I mentioned it to the radiographers this morning and they had a look. They are going to keep an eye on it, but think that there is one patch that the nurse may need to put a dressing on.
I've been using Aveeno cream but I saw my GP today for a regular appointment and he has given me a prescription for some Centraben cream so I will see how that goes.
06-12-2018 04:30 PM
Ask your rads team about polymemo which is a dressing to help with after efffects of rads, my rads team gave me some as I was suffering a bit with the area around my mipple and I just used to put it between my bra and skin it really helped xxx
06-12-2018 02:45 PM
hi Shirleyvalentine looks like we are at the same stage, feel exactly the same as you that life has been on hold for the last five months, must admit to feeling down that my skin has gotten so sore now, just feeling impatient to be able to get back to feeling normal. so pleased that you are ok and enjoy your London day out with your husband. Fezzy x
05-12-2018 10:47 PM
05-12-2018 05:58 PM
I am 7 days post radiotherapy today, thought I was doing great no real issues with burns etc, then today incredibly itchy very sore under my boob, my skin hasn't broken so my GP prescribed barrier cream and antihistamines for the itching and told me to carry on with the Aveeno cream, thought it was too good to be true that I would get off without any probs. think it must have been the 5 boosts that tipped me over the edge. best wishes to all, Fezzy x
05-12-2018 08:33 AM
04-12-2018 06:12 PM
04-12-2018 01:47 PM
I went for my first appointment this morning, and nothing was said about timings for moisturising, I also wasn't asked when I had used the cream. Maybe it is the preference of the radiographers?
04-12-2018 01:25 PM
I was recommended to use E45, I think it varies between hospital trusts. One thing I was told not to apply the E45 less than 2 hours before I had a rads session, what I used to do was take it with me and apply it immediately after my session whilst I was gettng dressed.