07-12-2018 09:27 AM
06-12-2018 10:35 PM
What a wonederfully thoughtful thing to do, I am sure you are going to get so much joy and pleasure from opening a present every day and so nice that they have included something for the days when you are not having rads xxx
06-12-2018 08:37 PM
I thought I would share a random act of kindness that I have received. Someone from my local church, knowing that I was starting radiotherapy on Tuesday, gave me a carrier bag full of 22 wrapped gifts. She explained that they are one for every day of my treatment (including weekends). The gifts, she said, were small and silly, but to me,the sentiment and care taken with wrapping them speaks volumes. So far I have opened a mini stollen, a water bottle, and 2 packs of tissues. I feel so lucky as the gifts give me something to look forward to after each treatment :-).
Has anyone else experienced such kindness, or are there any other tips to lift our spirits as we go through the treatment?
06-12-2018 08:05 PM
I had a WLE and sentinel node biopsy in October and started 15 sessions of radiotherapy last Thursday, so I'm one week down, two to go.
Up until today the worst thing for me has been travelling there and back. I am having to use a taxi because I have early appointments, and it was late one day and I got really stressed and upset.
This morning I started to itch and the skin is quite red in a few areas on the breast and under the arm. I mentioned it to the radiographers this morning and they had a look. They are going to keep an eye on it, but think that there is one patch that the nurse may need to put a dressing on.
I've been using Aveeno cream but I saw my GP today for a regular appointment and he has given me a prescription for some Centraben cream so I will see how that goes.
06-12-2018 04:30 PM
Ask your rads team about polymemo which is a dressing to help with after efffects of rads, my rads team gave me some as I was suffering a bit with the area around my mipple and I just used to put it between my bra and skin it really helped xxx
06-12-2018 02:45 PM
hi Shirleyvalentine looks like we are at the same stage, feel exactly the same as you that life has been on hold for the last five months, must admit to feeling down that my skin has gotten so sore now, just feeling impatient to be able to get back to feeling normal. so pleased that you are ok and enjoy your London day out with your husband. Fezzy x
05-12-2018 10:47 PM
05-12-2018 05:58 PM
I am 7 days post radiotherapy today, thought I was doing great no real issues with burns etc, then today incredibly itchy very sore under my boob, my skin hasn't broken so my GP prescribed barrier cream and antihistamines for the itching and told me to carry on with the Aveeno cream, thought it was too good to be true that I would get off without any probs. think it must have been the 5 boosts that tipped me over the edge. best wishes to all, Fezzy x
05-12-2018 08:33 AM
04-12-2018 06:12 PM
04-12-2018 01:47 PM
I went for my first appointment this morning, and nothing was said about timings for moisturising, I also wasn't asked when I had used the cream. Maybe it is the preference of the radiographers?
04-12-2018 01:25 PM
I was recommended to use E45, I think it varies between hospital trusts. One thing I was told not to apply the E45 less than 2 hours before I had a rads session, what I used to do was take it with me and apply it immediately after my session whilst I was gettng dressed.
03-12-2018 09:19 PM
My radiotherapy starts tomorrow, and I have been told the 15th (last) session will be on 27th December. I have been using E45 for the last couple of weeks in preparation, but at the lymphoedema clinic today I was given Epaderm cream as a light starter, and also Epaderm ointment, which is heavier and oiler in case the burns get too bad. The information I was given today suggested you shouldn't use an aqueous cream, but it was the first time I had heard that - has anyone else been told that? I also hadn't heard that the cream should be applied more than 2 hours before treatment, which could be a problem for me as I have early appointments! Thanks for the tip abut applying when you are getting dressed.
02-12-2018 10:32 AM
02-12-2018 10:27 AM
01-12-2018 11:06 PM
01-12-2018 07:42 PM
I used E45 throughout my rads as that was what my team advised me to do. I moisturised 2/3 times a day, tey do advise you to moisturise not less than two hours before a session. I used to take my cream with me and applied it after my session whilst I was getting dressed again.
Difficult to explain what rads feel like. I didnt really feel anything whilst having it. I dont know that fatigue is a given, however they do recommend you take it a good 2 litres of fluid a day as rads can cause dehydration which in turn has the potential to cause fatigue. Added to that you have the thing of going to and from the hospital every day which can take it out of you. The best thing is to listen to your body and rest when you need it.
The R1 and R2 are a moisture cream and a cooling gel, which if you are advised to use, it varies from hospital to hospital, you have to use from the first day. Other hospital suggest Aveeno.
To be honest the only thing about the rads was i got a senstive nipple towards the end of the session, which they gave me a dressing to use to protect it a bit, and the fact that I had to go every week day for nearly 5 weeks, I hated my life being controlled by that apt.
01-12-2018 05:54 PM
I have bin told to use only E45 cream. so what are R1 R2 creams? So what does radiotherapy feel like,? is fatigue a given ? When should I moistrise, inadvance, or just before and after zapping?
Sorry so many questions, all this feels very exciting, but will probable be very ordinary when it starts.
Thanks love Sally