Member
Posts: 420
Registered: ‎18-05-2015

Re: Darling Rads of August

Morning ladies
thanks for all your good luck comments (any one would think im taking my driving test ha ) I just hope im not falling asleep by the tine im at the hospital..To be honest ive not took my tablets for about 4 nights and I do feel the difference..I will tell the oncologist this ...I know he will try talk me into trying another brand ..I just hope he will say im allowed the injection for my shoulder with it being on same side had my lynthnoids out..I really need to be getting back to work and a normal life again ..wellcome to the forum Lisa its been great for me on here what better than to chat to people who are all going through it we are all in the same boat.x
christine x
Member
Posts: 871
Registered: ‎22-07-2015

Re: Darling Rads of August

Hi Lisa and welcome

Sorry you have been diagnosed with BC but glad you are being treated, hopefully cured! As the girls have said, they have to give the wound time to heal before further treatment. It drags on when all you want to do is get it done and over with but makes sense. 

sending love Lorna x

Member
Posts: 97
Registered: ‎21-04-2015

Re: Darling Rads of August

Hi Lisa and welcome.  I had my second WLE at the end of May and started rads 7 weeks later. I have now had 15 of 25. When we were discussing start dates the oncologist said i had to start within 3 months of my first surgery which was end of April.  Mine was high/intermediate grade DCIS so probably a different pathway and different hospitals seem to have their own guidelines.  Good luck with it.  Xx

Community Champion
Posts: 7,664
Registered: ‎29-05-2015

Re: Darling Rads of August

Timescales do vary between hospitals but I think they are supposed to start with 30 days of your appointment with Onc.
Community Champion
Posts: 7,664
Registered: ‎29-05-2015

Re: Darling Rads of August

Hi Lisa,welcome.I had my Onc appointment 2 weeks ago and start radiotherapy week on Friday.Im presuming you def are having radiotherapy ?The Onc appt just involves them going through why they are doing radiotherapy and talking through side effects and risks and getting your consent,also any questions you may have.
mf
Member
Posts: 259
Registered: ‎03-05-2015

Re: Darling Rads of August

Hi Lisa. My rads started about 4 weeks after my final op (ended up having three). I think 4-6 weeks is normal to give time for the surgical wounds to heal. Hope you're recovering well. Where I live, they offer a radiotherapy workshop for people with all kinds of cancer where you learn about the treatment and how to look after yourself. It's quite useful. Not sure if everywhere has these.
Highlighted
Member
Posts: 7,026
Registered: ‎01-05-2012

Re: Darling Rads of August

Hi Lisa

 

Welcome to the BCC discussion forums where I am sure you will get lots of good, honest support from the many informed users of this site.

 

If there's anything you need to know, just ask, there's always someone around to help, plus our helpline team are just a free phone call away 0808 800 6000 lines open weekdays 9-5 and Saturdays 10-2.

 

Take care,

Jo, Moderator

Member
Posts: 88
Registered: ‎03-07-2015

Re: Darling Rads of August

Good luck Christine for tomorrow. Joyce X

Member
Posts: 176
Registered: ‎28-04-2015

Re: Darling Rads of August

Yes good luck Christine will be thinking of u x
Member
Posts: 5
Registered: ‎10-08-2015

Re: Darling Rads of August

Hi All

 

I have just joined the forum this evening after reading so many interesting and helpful comments. I was diagnosed with BC in June , had lumpectomy and sne in July . Have my onc appointment this Thursday . Just wondered what will happen and the likelihood of when radiotheraphy may start ? I realise it's all a process and a waiting game .... 

Any help would be more than grateful?  X

Member
Posts: 871
Registered: ‎22-07-2015

Re: Darling Rads of August

Good luck Christine...Will have everything crossed x
Member
Posts: 757
Registered: ‎01-06-2015

Re: Darling Rads of August

Good for you sharnie x
Member
Posts: 757
Registered: ‎01-06-2015

Re: Darling Rads of August

Christine, good luck tomorrow x will be thinking about you x
sheena x
mf
Member
Posts: 259
Registered: ‎03-05-2015

Re: Darling Rads of August

One thing I didn't ask about was reconstruction - wish I had as apparently it's difficult after rads because the tissue hardens.
Member
Posts: 420
Registered: ‎18-05-2015

Re: Darling Rads of August

Thanks jill and thanks mf.
very interesting im trying not to forget to ask things I dont wamt to come away and say to myself I forgot to ask this n that..x
christine x
mf
Member
Posts: 259
Registered: ‎03-05-2015

Re: Darling Rads of August

Hi Christine. Don't know what stage you're at so apologies if this doesn't apply, but my main questions for the oncologist were what treatment he recommended and how much each added to my survival. He's a bit of an arse but he gave me the info before I could ask. They did an additional test to see how fast the cancer cells were growing (ki67 test, I think). This was good because it showed that although my tumour was grade 3 and aggressive, it was at the slower growing end of the scale. This site has questions to ask: https://ww5.komen.org/BreastCancer/QuestionstoAsktheDoctorPDFDownloads.html
There are also some on breast cancer.org.uk
Good luck.
Community Champion
Posts: 7,664
Registered: ‎29-05-2015

Re: Darling Rads of August

Pathology report.

Member
Posts: 420
Registered: ‎18-05-2015

Re: Darling Rads of August

Evening ladiea
im just writting my list of questions for my oncologist tomorrow..what is the letter im asking fpr all about my opp is it a pathology repprt?? I cant find the comment about it..im up and out at 6am and have to be ready have to drop my daughter in Manchester at 7am & be back in pendle burnley for 10am for acupuncture then round to hospital to see oncologist.. so when I leave my house I
need to be all sorted wih all guns blazing and my list of questions for oncologist..x
christine x
Member
Posts: 191
Registered: ‎15-05-2015

Re: Darling Rads of August

I'm worried about effects post rads as I really want to get back to my fitness regime - I used to go to boot camp 4 times a week before BC and cycle at weekends. I know I will have to gradually build up again but am worried about going back. My mind wants to do more than my body!!! I just want to feel better about myself again - fitness was my 'thing!' Cycling is quite good as it's lovely being out in the fresh air and no pressure on boob area - I did wear a soft sports bra with a soft dressing in it to stop friction! Legs feel ok today - probably hurt tomorrow!! 

Member
Posts: 420
Registered: ‎18-05-2015

Re: Darling Rads of August

Well done sharnie for keeping up the fittness.. I was same all through rads 16 mile hill walks felt really fit im iver two months post rads now and boy have I been knocked out shatterd..they say it is recivering from rads I said I gelt better than this during rads told them about my long hill walks daily..then they said well its prob all that catxhing up with you ontop of rads...x
Lorna you keep a check in your spelling your gettin as bad as me ha x
christine x