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April 2018 Radiotherapy

Member

Re: April 2018 Radiotherapy

Hi Runawaygirl, I’m doing the breath holding and it isn’t as bad as you think. They count me down for 25 seconds about 6 times, and you just take the breath when you’re ready. You also hold a button down in your hand, and if you need to breath at any point you let go and the machine stops and you can breath again. I was near to letting go yesterday but managed not to! Makes your mouth dry so I take a bottle of water into the changing room so it’s there straight after. 

Number 5 for me today so will be 1/3 of the way through. Xx

Member

Re: April 2018 Radiotherapy

Yeah its a bit disheartening Jencat when the finish line moves but I guess we are all getting nearer to the end 😊

 

Had my planning meeting today and rads due to start 24th April, got the April dates only so far.

 

Also after speaking to Radiographer they said I would be looking at a 25 second breath hold but as I wasnt keen they have an alternative to protect the heart with use of lead lining materials so feel better about it.

 

Hardly noticed the tattoo dots being done but after chemo cannulas and endless blood tests they are nothing lol 😁

Member

Re: April 2018 Radiotherapy

Thank you very much for filling me in about next weeks appointment. I'm probably going on my own, but it doesn't sound like it will be too daunting or too much to remember xx

Helena, hope your mammogram goes well tomorrow xx

Community Champion

Re: April 2018 Radiotherapy

Once you get the first session under your belt it gets easier because you know what to expect.

 

Sending you all hugs

 

Helena xxx

Member

Re: April 2018 Radiotherapy

Hi JenCat.

 

Yes, same as for me. And they took me through the gated breathing with a few practice runs so i felt comfortable with it. The radiographer also had a chat with me about what creams to use (answer - diporobase or aloe vera is their preference). I was out in about 45 mins.

 

Good luck! I was really wobbly before I went in, but the staff were lovely and made me feel really comfortable. 

Member

Re: April 2018 Radiotherapy

Hi Jencat.
On mine I had to lay on a bed which is the same as you lay on for rads. The nurses draw all over you and then do a CT scan. They'll also give you your free nhs tattoos. After that I waited a few minutes then saw my onc who got me to sign a consent form and talked about side effects. I got a full list of all my appointments too.
Cassie x
Member

Re: April 2018 Radiotherapy

Hi jencat
I had CT, tattoo and then chat with the Macmillan radiographer - advice and questions. Didn’t take more than 45 mins though
Xx
Member

Re: April 2018 Radiotherapy

Lesley I've pm you x

Member

Re: April 2018 Radiotherapy

Hi everyone, I've got my planning meeting next Tuesday and on my letter it says it will last for 1 hour and 10 mins, what happens at the meeting. I know I will have a CT scan, but I wondered what else? x

Member

Re: April 2018 Radiotherapy

Hi runawaygirl, I was told my oncologist that I would be having 3wks of rads, but have had to change hospital for them because mine doesn't do the breathing technique and now I've been told I've got to have 5-6wks of rads. Think it's because I'm TN and got a couple of lymph nodes in my breast. It's not an age thing in my case as I'm 58.

I've got my planning meeting next week and rads starts on 30th April, which will be 6wks after I finished chemo x

Member

Re: April 2018 Radiotherapy

Just done number 2. All fine. Had a very hot boob last night and really vivid dreams - anything to do with radiotherapy (the dreams not the boob!).

Am also doing the breathing thing - it’s fine. They have broken the zaps up so I’m not holding my breath for more than. 10 seconds at a time. I could probably do the 20 seconds but it’s less stress knowing I don’t have to.

I’ve also had four boosters added because of my age but heh - it’s only another week. So 2 down and 17 to go....
Member

Re: April 2018 Radiotherapy

Planning meeting today - it was all very simple and made so easy by the excellent nursing staff.
Thank you WhyteFawn for your support and advice today. Hope the next 2/3rds of the treatment go well for you
Feel much more reassured following the planning meeting today.
BizzyLizzy/Dusty
How did you find your first sessions?
Nat223
How did it go today?

My 1st of 15 sessions starts on Monday.

Good luck to everyone xxx
Member

Re: April 2018 Radiotherapy

 
Member

Re: April 2018 Radiotherapy

Hiya. I was the other way around was told 25 sessions but when I started it was just 15.
5th one done today so now a third of the way finished!
Member

Re: April 2018 Radiotherapy

I know what you mean RunawayGirl - I went from 3 to 4 weeks and felt cheated .... but in the overall scheme of things, one extra week doesn't make much difference.  It will be 11 months from start to finish by the time I get to the end of rads!!

I am TN and I think that is why I am getting the boost - definitely not under 50 - I wish!!

 

My trust likes at least 4 weeks inbetween last chemo and rads - but really it's only a week off.  I managed to get 5 weeks.

 

Mine is also my left side and I dont have to hold your breath - I was told they pick that up in the planning scan - its all to do with how close your heart is to your boob - mine must be a way away??

 

Good luck to everyone going on the sunbeds today ☢️  and any planning meetings.

Member

Re: April 2018 Radiotherapy

Morning ladies

 

I had a meeting with my Oncologist yesterday and found out that I will be having 3 weeks of radiotherapy as I was originally told back at diagnosis but an additional booster week has been sprung on me which targets the actual tumour site rather than the whole breast due to me being under the age of 50...Im 39. My Oncologist said it is common practice for younger ladies to have booster sessions. To be honest Im feeling a bit peed off as I feel the finishing line has slipped away again, I know its only by an additional week but still its like something else sprung on me at the last minute! My tumour was highly ER+ (score 8/8), grade 3, 16.5mm with excellwnt clearance margins and a small micromet (0.66mm) in the removed SLN.

 

I had my Planning meeting later today and because tumour was in the left breast, I too will be taught the breath holding technique. Am a little concerned after reading this thread that some ladies are having to hold their breath for up to 20 seconds and with a machine?? My Onologist said yesterday it would be for around 5-6 seconds! Maybe it is different for everyone?? My treatment is all at St James Hospital, Leeds.

 

I am only on day 12 of my final chemo cycle 6 so still really feeling the cumulative effects of all the chemo including the tiredness, fatigue, nausea, bad throat, digestive tract and bladder irritation and yet I was told rads due to start 23 April and my body still not feeling uo to it.  I guess I will get definite dates ar the Planning meeting today.  It just seems very soon and 2 other ladies on the same cycle dates as me dont have their Radiotherapy meeting until 16 April.  Really dont understand sometimes how they work it all out!

 

Good luck to all those already on and about to start rads treatment 😊

Member

Re: April 2018 Radiotherapy

Well done Bum on your last one!
It's nice to get the first one under your belt Nat. All the others follow the same pattern so you know what to.expect.
Number 4 done for me today. Just 11 to go.
Member

Re: April 2018 Radiotherapy

 
Member

Re: April 2018 Radiotherapy

First one done today. Felt emotionally much better now it’s started. As you’ve all said, painless, although I’m sitting on the sofa with a rather hot boob! Also saw a physio today for my cording, which has relieved a lot of the pain under my armpit. 

 

Only four weeks to go!

 

 

Community Champion

Re: April 2018 Radiotherapy

Bim

 

Ding ding dong ringing the bells for you as well. 

 

Well done, thats it now no more treatment for you.

 

Helena xxx