Hi feel again like the voice of doom ""
im having number 7 today of 15
i have developed the worst shoulder pain - think it's from the position we have to lie in and my ME
been twice to GP
cant use my left arm properly or write infact the whole arm I'd useless and I am left handed
hopIn that the Rads haven't damaged my nerves - as having shoulder and breast Zapped !!!
Full of opioids / naproxen and voltarol gel but excruciating and thinking this may be the last I can endure
juat cant do it
Thank you for your reply.I have asked about the results and have been told I will hear soon. Like you said Lesley I also feel that It's the not knowing and the waiting that's the worse.
Ive had a good day today, been for a walk and on my treadmill, feeling a bit more energetic.
Big hugs to all you lovelies
If anyone wants a smile, here is a conversation I've just had with my mother.
Mum: "how is your face?"
Me: "my face is fine......(puzzled voice)... what might be wrong with my face?"
Mum "I thought you said that the radiotherapy had made you a bit pink?"
Me: 'yes, on my breast - where I'm getting the radiotherapy"
Mum; "Oh - I assumed it would be your face that went pink".
Mum: "have you thought about wearing suntan cream?"
Don't worry - I can't see how it can take 4 hours! They are probably just being really careful and allowing time for delays.
What I had done was:
- measuring me up on the CT scanner (as if I was being zapped)
- a chat with a radiologist just to explain what was going to happen and to go through consents, and to advice on cream
- the tatooing (which they did while I was lying on the CT scanner - just a pin prick with a needle)
- practicing my gated breathing.
I think I was out in about an hour.
I hope it goes well. I know I was really wobbly and emotional when I went in for my planning session as it was the thought of what was ahead that made me feel low. But the staff were really nice, and since it started I've just been counting down the days.
Good luck... x
so so sorry you’re having such a horrible time.
I feel very lucky that my underlying fitness and health is good (other than this cancer) so I can only imagine all of this on top of ME. But I was so knackered yesterday I struggled to keep awake on the way back from my rads and went to bed at 7.30pm as soon as I’d had something to eat! The hormone therapy (Letrozole and Zoladex) is also giving me fatigue (are you on that too? I’ve been on it 9 months now and the fatigue was really bad between months 2 and 7 - it was just easing before I started rads. Rads do give you fatigue so it might just be the rads.
The painful shoulder must be horrible too with the rads. Is it cording? I’ve managed to get a physio to help with my cording which has helped a bit. And I’ve been on antidepressants before - yes, they can do that in the first few weeks. But antidepressants might help so it might be worth speaking to the GP about a different brand?
Thinking of you. Hope you get some rest and relax a bit over the weekend.
5th Zap done -10 to go I'm having the minimum do feel for you all who are having more zaps
have a really stiff and very painful shoulder - also was given a new drug by my Gp to help with my anxiety/ depression poor sleep and appetite loss however
i cant take it as so so sedating and made me even more fatigued with my ME that the radiographer offered to use a wheelchair to take me back to get transport legs like jelly and dizzy like I had been out on the lash
i really didn't want to use one as it has been many years since my ME diagnosis since I couldn't walk so was determined to walk - I cannot keep my eyes open
I'm hoping it's the drug and not ME related but could be the Rads but too soon at this point - so again I'm so anxious how it will be in another weeks time !
the journey today there and back and treatment time was 4hours - better than 5/6 hours the other days
i feel like the voice of doom on this forum sorry to be such a total misery prior to this I really wasn't like this infact I was a actually good fun !
Nat thanks for your message -
lesley sorry about your soreness and redness sounds awful
5th zap done. Only 14 to go! Gosh, I’m already really sore though. The side of my breast feels like sunburn.
Looking forward to the weekend off. Have a great weekend everyone!
Great news Cassie, less left to do than you’ve had! I’m the other way round number 7 for me with 8 left!
Oh Lesley that’s a shame but pleased the nurses are on the board and hope they’ve managed to catch it in time. Hopefully the rest over the weekend will help too. Enjoy the break from the routine. Xx
9 down, 11 to go for me.
Left the unit with a dressing under by boob today - with a replacement one for the weekend. The skin hasn't broken down yet, but they were concerned that a) it could breakdown over the weeknd and I would be left high and dry b) they might be able to stop it breaking down.
The rest of my skin/tissue is coping very well with the rads so this is a bit disappointing - but hey ho ... got to be dealt with
have a lovely rads free weekend everyone
Yay, it will go quickly now you have turned the corner and you will soon be ringing that bell. Have a lovely rads free weekend xxxx