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April 2018 Radiotherapy

Member

Re: April 2018 Radiotherapy

BizzyLizzie- good luck for your final zap tomorrow. Hope you recover soon. 

Member

Re: April 2018 Radiotherapy

So pleased for you Whytefawn well done Smiley Happy 

i have two more left had 13/15  and finally with the help of steroids and morphine managed to endure the pain of having my arms in that position !! 

Without this and the excellent support from the team and oncologist would not have been able to endure it all

one eve in A&E on morphine for the pain was enough. MRI to investigate what muscles I have pulled 

do have less function in my arm but this will get better I'm sure 

my skin isn't too bad but redder on the shoulder area SCF area 

had a lift today and for the next two days so the whole thing takes 3hours round trip not 6hours soooo pleased 

shall even make a trip for a coffee and look at charity shop tomorrow before the zaps 

i realise I have false energy on steroids I haven't been able to sleep till so late it will end 

but having ME and for all of us I know that once the steroids end I shall be knackered.

nearly there 

good luck to you all as you get through each one - 

Liz xxx

Member

Re: April 2018 Radiotherapy

Hi everyone

i started.my rads on Monday staff as ever are brilliant and so far so good.  I find the tiredness  overwhelming at times but thinks that's mainly from the hormone tablets.  I've found I also have low bone density so been given tablets, just one a week, to help,with that. Good luck to all you amazing ladies on herre.

xxx

Member

Re: April 2018 Radiotherapy

Just done number 13 of 19. Just 6 more to go. The tiredness has kicked in now though - could sleep right now. And my skin is feeling hot and sore. Can’t wait to finish.

Good luck everyone for the rest of your treatment. And hope tomorrow goes well ButterflyFlyFree!
Member

Re: April 2018 Radiotherapy

Now I can say I've got 1 more to go! 

 

Hope everyone one is doing ok. Xx

Member

Re: April 2018 Radiotherapy

Thanks Cassie...but sadly it’s not 😡 Breathing machine was broken when I got there yesterday so treatment cancelled. Means today is number 14 - assuming the engineer turns up to fix it 🤞 and tomorrow will now be my last. Thought this bit was going too smoothly! 

 

Don’t forget to keep up with the exercises..I was told once a day for 2 years after rads 😳 to avoid any long term problems. 

 

Hope you enjoyed a lie a lie in this morning! Xx

Member

Re: April 2018 Radiotherapy

Last one butterfly!!!
Good luck everyone with your appointments today. Feels a bit strange not being at the hospital x
Member

Re: April 2018 Radiotherapy

Thank you, that's very kind and reassuring xx

Community Champion

Re: April 2018 Radiotherapy

Jencat

 

thanks darling always there for you xxx

Member

Re: April 2018 Radiotherapy

Cassie,don't blame you about not wanting to have a party, not sure I'd want to do that either. A meal's a good idea though, hope you and your husband had a nice time.

Thank you for saying you'll be there to cheer me on, it's appreciated Smiley Happy Can't say I'm looking forward to 5-6 weeks of daily hospital visits, but it has to be done! xx

Member

Re: April 2018 Radiotherapy

Thanks everyone.
Jencat I've been out for a meal with my husband. To be honest I don't know if it have got through the last few months without him. Mum wants me to have a party but I'm not bothered. It's hard to celebrate something you never wanted to start in the first place. I'm happy with a meal and just getting back to normal.
Right, so what did I do before I had to get up early and go to the hospital every morning.
Don't worry Jencat we'll be here to cheer you on right to the end no matter how many you have xx
Member

Re: April 2018 Radiotherapy

Thank you Helena and great news about the clear mammo xxx

Community Champion

Re: April 2018 Radiotherapy

Jencat

 

Dont worry I am sure there will be plenty of ladies on here who are starting next week and in May, and we are always here for you xxxx

Community Champion

Re: April 2018 Radiotherapy

Whytefawn

 

Woo hoo ringing the doorbell for you tonight, well done thats it, just remember to keep on with your regime for the next couple of weeks

 

Helena xxxx

Member

Re: April 2018 Radiotherapy

Cassie and MHaz, have you/are you doing anything special to celebrate the end of rads? Smiley Happy x

Member

Re: April 2018 Radiotherapy

MHaz and Cassie, thank you for your replies-you made me laugh Cassie! I'm signed off until 26th June, but rads might not finish until 12th (I won't know until I go on Monday how many I'm having. I'm down for 23, but the consultant had said 25-30) so was wondering if I'd need more time xx

Member

Re: April 2018 Radiotherapy

I also work with little ones in a pack away setting and I'm not going back until I feel totally comfortable on the area, doctors advice too so not sure on time period X
Member

Re: April 2018 Radiotherapy

Yeah it does depend on your job Jencat. I only work with adults and as 99% of the population are taller than me I don't have much of an issue lol.
Member

Re: April 2018 Radiotherapy

Thanks Cassie for info and good wishes. I'm a teacher at an infant school, so I haven't been allowed to work (they're too germy!) and have been off since mid Oct. Wouldn't be able to work very easily during rads as my treatment isn't at my local hospital and also a lot of the kids are boob height and can run into you, so could be painful! xx 

Member

Re: April 2018 Radiotherapy

Thanks everyone. Butterfly I was er+ so still on zoladex injections and tamoxifen but as for active treatment that's now done.
Jencat good luck for starting Monday. I've worked since the beginning of March when I went back after surgery. Worked through rads with no problem. Just going to hospital everyday that's been the issue.