Member
Posts: 368
Registered: ‎23-09-2014

Re: April 2018 Radiotherapy

Hi Bizzy Lizzy,

 

Sorry to hear you are experiencing shoulder pain through rad's....and a few suggestions which you might want to consider.  

 

If you are experiencing nerve pain, you might want to ask your doctor if something like Amytriptyline might help? From what I understand it is more targetted at nerves. 

 

You should be continuing to do the exercises that you did post op to help ease tightening through rad's, though I sympathise that exercises starting when in pain aren't the best, but it might help ease it?

 

One very simple exercise which may help your shoulder could be yoga arm swings. You stand up, feet below you just slightly apart, knees very slightly bent (as opposed to locked bolt upright). Raise your arms up in front of you (no higher than chin level) and then gently swing them down and back, then down and forward (if someone was looking at you side on you would be moving your arms from 6oclock straight up to 9oclock then back to 6 and back/up to about 4 or 5 oclock, what ever is comfortable). Carry on very gently and it usually helps ease should mobility. Fine to do them for 10 mins or so...most people hear a bit of clonking as the should loosens up. 

 

Try and stick with the rad's. You could also ask if it would be possible to have a referral to a physio, but I appreciate waiting times may mean this doesn't fit the rad's programme.

 

I hope it improves. Sending positive vibes (from someone who is much further on and way post rads).

 

Seabreeze    

 

      

Member
Posts: 755
Registered: ‎10-07-2017

Re: April 2018 Radiotherapy

BizzyLizzy - so sorry to hear you are having such a rough time of it - have you spoken to your BCN - they should be able to help you?

I can sympathise, I am feeling some stiffness in my left shoulder (I am right handed) it is not stopping me doing anything, and because of my joint hypermobility I am fairly supple.

 

You are over half way - and you can definitely do it - one more big push over the line and then your zapping is finished!!

 

Did they give you any arm exercises after surgery?  Maybe you could try them again?? 

 

Sorry I can't give any more practial advice

 

take care

 

xx

Member
Posts: 55
Registered: ‎17-01-2018

Re: April 2018 Radiotherapy

Hi feel again like the voice of doom ""

im having number 7 today of 15 

i have developed the worst shoulder pain - think it's from the position we have to lie in and my ME 

been twice to GP 

cant use my left arm properly or write infact the whole arm I'd useless and I am left handed 

hopIn that the Rads haven't damaged my nerves - as having shoulder and breast Zapped !!! 

Full of opioids / naproxen and voltarol gel but excruciating and thinking this may be the last I can endure 

juat cant do it Smiley Sad 

Highlighted
Member
Posts: 4
Registered: ‎19-03-2018

Re: April 2018 Radiotherapy

Hi Lesley,

Thank you for your reply.I have asked about the results and have been told I will hear soon. Like you said Lesley I also feel that It's the not knowing and the waiting that's the worse. 

Ive had a good day today, been for a walk and on my treadmill, feeling a bit more energetic.  

Big hugs to all you lovelies

xxxx

Member
Posts: 44
Registered: ‎02-02-2018

Re: April 2018 Radiotherapy

Hi Whytefawn
Everything fine today thank you. Horrendous journey to the hospital lengthy traffic queues due to an accident . Was fretting I wouldn't make it on time which was more stressful than the treatment!
1 down 14 to go and as everyone says the 2 hour round trip is the worse part.
Nursing staff as ever were excellent, so kind and caring and the treatment itself was just fine.
I looked out for you this morning but they whisked me in on arrival.
Glad to hear you are on the homeward straight.
Will you be ringing the bell on your last day of treatment?
Good luck to everyone else having rads this month and those anticipating a May start.
xxx

Member
Posts: 614
Registered: ‎09-08-2017

Re: April 2018 Radiotherapy

6 left now!! Which is good as I'm getting very bored of going to the hospital everyday.
Andi I hope your first one went well today.
Hope everyone else has a smooth treatment day x
Member
Posts: 44
Registered: ‎02-02-2018

Re: April 2018 Radiotherapy

Hi Leprechaun
Just to echo Nat''s comments.
I had my planning appointment last week and start rads tomorrow.
I felt really anxious the day beforethe appointment but had some very encouraging comments here on the forum.
The whole appointment was less than an hour. Very very simple
Scan
Tattoo markers
Chat
Consent firm signed
Done and driving home.
You will be done before you know it.
Come back on the forum and let us know how you got on
Best wishes xx
Member
Posts: 23
Registered: ‎26-08-2017

Re: April 2018 Radiotherapy

If anyone wants a smile, here is a conversation I've just had with my mother.

 

Mum: "how is your face?"

Me: "my face is fine......(puzzled voice)... what might be wrong with my face?"

Mum "I thought you said that the radiotherapy had made you a bit pink?"

Me: 'yes, on my breast - where I'm getting the radiotherapy"

Mum; "Oh - I assumed it would be your face that went pink".

 

pause...

 

Mum: "have you thought about wearing suntan cream?"

 

!!!!!! 

Member
Posts: 23
Registered: ‎26-08-2017

Re: April 2018 Radiotherapy

Dear Leprechaun,

 

Don't worry - I can't see how it can take 4 hours! They are probably just being really careful and allowing time for delays.

 

What I had done was:

- measuring me up on the CT scanner (as if I was being zapped)

- a chat with a radiologist just to explain what was going to happen and to go through consents, and to advice on cream

- the tatooing (which they did while I was lying on the CT scanner - just a pin prick with a needle)

- practicing my gated breathing.

 

I think I was out in about an hour.

 

I hope it goes well. I know I was really wobbly and emotional when I went in for my planning session as it was the thought of what was ahead that made me feel low. But the staff were really nice, and since it started I've just been counting down the days.

 

Good luck... x

 

 

Member
Posts: 2
Registered: ‎31-03-2018

Re: April 2018 Radiotherapy

Hi
I'm new writing on here, but been reading alot of your messages.
I have my 1st planning meeting on tues at radiotherapy appointment it says allow upto 4hours!
I know it involves CT scan, and tattooing but not sure what else. I have to have 25 sessions, 20 full breast and 5booster. I'm hoping I get my start dates for this to get my life back to normal.x
Member
Posts: 23
Registered: ‎26-08-2017

Re: April 2018 Radiotherapy

BizzyLizzy,

 

so so sorry you’re having such a horrible time. 

 

I feel very lucky that my underlying fitness and health is good (other than this cancer) so I can only imagine all of this on top of ME. But I was so knackered yesterday I struggled to keep awake on the way back from my rads and went to bed at 7.30pm as soon as I’d had something to eat! The hormone therapy (Letrozole and Zoladex) is also giving me fatigue (are you on that too? I’ve been on it 9 months now and the fatigue was really bad between months 2 and 7 - it was just easing before I started rads. Rads do give you fatigue so it might just be the rads. 

 

The painful shoulder must be horrible too with the rads. Is it cording? I’ve managed to get a physio to help with my cording which has helped a bit.  And I’ve been on antidepressants before - yes, they can do that in the first few weeks. But antidepressants might help so it might be worth speaking to the GP about a different brand? 

 

Thinking of you. Hope you get some rest and relax a bit over the weekend. 

Natalie

Member
Posts: 55
Registered: ‎17-01-2018

Re: April 2018 Radiotherapy

5th Zap done -10 to go I'm having the minimum do feel for you all who  are having more zaps 

have a really stiff and very painful shoulder - also was given a new drug by my Gp to help with my anxiety/ depression poor sleep and appetite loss however 

i cant take it as so so sedating and made me even more fatigued with my ME that the radiographer offered to use a wheelchair to take me back to get transport legs like jelly and dizzy like I had been out on the lash 

i really didn't want to use one as it has been many years since my ME diagnosis since I couldn't walk so was determined to walk - I cannot keep my eyes open 

I'm hoping it's the drug and not ME related but could be the Rads but too soon at this point - so again I'm so anxious how it will be in another weeks time ! 

the journey today there and back and treatment time was 4hours - better than 5/6 hours the other days 

i feel like the voice of doom on this forum  sorry to be such a total misery prior to this I really wasn't like this infact I was a actually good fun ! 

Nat thanks for your message - 

lesley sorry about your soreness and redness sounds awful 

Member
Posts: 44
Registered: ‎02-02-2018

Re: April 2018 Radiotherapy

Well done WhyteFawn ....more than half way now. My first is on Monday. ..I may catch you in the waiting room!.
Well done to everyone going through treatment this month.
Relax now for a couple of days and enjoy the promised good weather xx
Member
Posts: 23
Registered: ‎26-08-2017

Re: April 2018 Radiotherapy

5th zap done. Only 14 to go! Gosh, I’m already really sore though. The side of my breast feels like sunburn. 

 

Looking forward to the weekend off. Have a great weekend everyone!

Member
Posts: 233
Registered: ‎31-07-2017

Re: April 2018 Radiotherapy

Great news Cassie, less left to do than you’ve had! I’m the other way round number 7 for me with 8 left! 

 

Oh Lesley that’s a shame but pleased the nurses are on the board and hope they’ve managed to catch it in time. Hopefully the rest over the weekend will help too. Enjoy the break from the routine. Xx

Member
Posts: 755
Registered: ‎10-07-2017

Re: April 2018 Radiotherapy

9 down, 11 to go for me.

Left the unit with a dressing under by boob today - with a replacement one for the weekend.  The skin hasn't broken down yet, but they were concerned that a) it could breakdown over the weeknd and I would be left high and dry b) they might be able to stop it breaking down.

The rest of my skin/tissue is coping very well with the rads so this is a bit disappointing - but hey ho ... got to be dealt with

 

have a lovely rads free weekend everyone

 

Community Champion
Posts: 7,952
Registered: ‎16-11-2016

Re: April 2018 Radiotherapy

WhyteFawn

 

Yay, it will go quickly now you have turned the corner and you will soon be ringing that bell.  Have a lovely rads free weekend xxxx

Member
Posts: 614
Registered: ‎09-08-2017

Re: April 2018 Radiotherapy

8 down with 7 to go!!! Over half way through. I was eyeing up that bell on the way out if the unit today.
Good luck everyone with treatments and appointments today x
Community Champion
Posts: 7,952
Registered: ‎16-11-2016

Re: April 2018 Radiotherapy

Nat

 

that is ace, so simple but effective.  I agree with Jencat you should patent it Smiley Happy Smiley Happy

 

xxx

Member
Posts: 1,355
Registered: ‎21-06-2017

Re: April 2018 Radiotherapy

What a good idea Nat, you made me laugh! Perhaps you should patent it Smiley Happy x