20-04-2018 06:13 PM
20-04-2018 06:07 PM
20-04-2018 08:09 AM
20-04-2018 08:00 AM
hi there and thanks so much for your kind messages
I endured 9th Rads yesterday and saw my oncologist who has prescribed morphine and also steroid tablets
I am going to have a MRI scan to see what is happening to my shoulder hopefully today
Tuesday evening it was so bad I had to go to my local hospital and was given IV morphine which helped
I could still feel the pain but was too out of it to actually care !
They are thinking it is the position we have to lie in and having ME is contributing to making it so much worse
number 10 today and determined however much pain I'm in that I shall have it as want the whole experience over asap ( sure I am not alone in this as know we all do ! )
thinking it may be a rotator cuff injury
funny thing is my skin isn't too bad at all - some pinkness but not too sore - shouldn't tempt fate.
hoping we all get through this as well as possible x
20-04-2018 07:51 AM
19-04-2018 04:06 PM
19-04-2018 03:51 PM
18-04-2018 08:39 PM
18-04-2018 07:40 PM
18-04-2018 04:23 PM
18-04-2018 02:50 PM
17-04-2018 09:49 PM
17-04-2018 08:09 PM
Done 7 of 19 now. Going a bit pink and feeling swollen but also just getting bored of going to hospital every day. I want this over now!
felt very tired today but hoping that’s a one off and not bad fatigue. Will get an early night...
BizzyLizzie - hoping you’re ok.
17-04-2018 07:42 PM
17-04-2018 01:34 PM
17-04-2018 12:45 PM
Hi Bizzy Lizzy,
Sorry to hear you are experiencing shoulder pain through rad's....and a few suggestions which you might want to consider.
If you are experiencing nerve pain, you might want to ask your doctor if something like Amytriptyline might help? From what I understand it is more targetted at nerves.
You should be continuing to do the exercises that you did post op to help ease tightening through rad's, though I sympathise that exercises starting when in pain aren't the best, but it might help ease it?
One very simple exercise which may help your shoulder could be yoga arm swings. You stand up, feet below you just slightly apart, knees very slightly bent (as opposed to locked bolt upright). Raise your arms up in front of you (no higher than chin level) and then gently swing them down and back, then down and forward (if someone was looking at you side on you would be moving your arms from 6oclock straight up to 9oclock then back to 6 and back/up to about 4 or 5 oclock, what ever is comfortable). Carry on very gently and it usually helps ease should mobility. Fine to do them for 10 mins or so...most people hear a bit of clonking as the should loosens up.
Try and stick with the rad's. You could also ask if it would be possible to have a referral to a physio, but I appreciate waiting times may mean this doesn't fit the rad's programme.
I hope it improves. Sending positive vibes (from someone who is much further on and way post rads).
17-04-2018 11:20 AM
BizzyLizzy - so sorry to hear you are having such a rough time of it - have you spoken to your BCN - they should be able to help you?
I can sympathise, I am feeling some stiffness in my left shoulder (I am right handed) it is not stopping me doing anything, and because of my joint hypermobility I am fairly supple.
You are over half way - and you can definitely do it - one more big push over the line and then your zapping is finished!!
Did they give you any arm exercises after surgery? Maybe you could try them again??
Sorry I can't give any more practial advice
17-04-2018 11:06 AM
Hi feel again like the voice of doom ""
im having number 7 today of 15
i have developed the worst shoulder pain - think it's from the position we have to lie in and my ME
been twice to GP
cant use my left arm properly or write infact the whole arm I'd useless and I am left handed
hopIn that the Rads haven't damaged my nerves - as having shoulder and breast Zapped !!!
Full of opioids / naproxen and voltarol gel but excruciating and thinking this may be the last I can endure
juat cant do it