I start on the 10th April and have been told nothing apart from that I may get a sunburn effect...aqueous cream was mentioned to use, but not certain if the skin needs to be clean before each sessions?....dreading having a bad reaction...any ideas or advice would be welcomed
Thank you Cassie for your reassurance on this thread and chemo. This is what I keep thinking, surely the consultant wouldn't be putting me forward for rads if he was really worried. He did comment that although I had clear after the op, they were quite close, so I suppose there still could have been some cancer left, but then I'd have thought chemo would have made a difference if that was the case?! Also, the consultant isn't seeing me again after I've finished radiotherapy and as I'm not starting for another 3wks and treatment will be for 5-6wks, that's a long time before I next see him! xx
Thank you all for your good wishes today x
My PET scan showed that there is no sign of spread, which of course is a relief.There is still a little cancer in the two lymph nodes in my breast, but the consultant said the scan didn't show up anything he didn't expect.
My breast also showed some signs of activity, but the consultant didn't seem worried and said it's probably where my breast is still settling down after the op and scar tissue. He won't know definitely until he can compare my two PET scans, so I'm feeling a bit anxious about it.
He said that he's going ahead with radiotherapy as planned and I can have it at that hospital. (Hurrah! It's not my local hospital, but nearer than Guy's where I might have had to go) Consultant said 5-6wks of treatment and he's going to give me the strongest dose! I've also got to hold my breath for 20secs, so I'm practising! Planning meeting should be next week, but don't think rads will start for a couple of weeks after that!
Felt really teary when I got back to the car and had a good old cry! I'm grateful nothing else showed up on the scan, but then worrying about something else going on in my breast, even though the consultant doesn't seem to be. Also surely I couldn't get bc whilst having chemo?! Having to keep giving myself a good talking to! xx
2 down, 13 to go! Easier today 😊 home again and all creamed up.
Weekend off, have a good one everybody! Xx
4 down 16 to go!!
First week done - and touch wood it's all going ok. I've noticed a bit of pinkness but not sore or tender. 2 days respite and then lets do it all again next week!
Had a good session with the onc aswell, I wasn't sure about her at the beginning but she's ok!! Told me vitamin supplements were a waste of money, unless the bloods showed anything and then she would prescribe something and we spoke about weight and fluid retention. Basically too soon - give it a year! Bit depressing!!
I only see my partner at the weekend, so will be heading over there shortly to be spoilt .... and work in his garden!
Hope everyone is getting on ok
Thanks Cassie x My appointment is at 11, although last time I saw the consultant there he was running 45mins late! x
My onc asked me if I wanted to join it
Glad you all got on ok with your rads today x I'm seeing the consultant tomorrow morning, so hopefully I'll be given a start date and told how many sessions I need. It depends on the result of last weeks PET scan-feel a bit anxious about that xx
I aim to please!!
Life's too short to frown, plus it gives you lines and uses more calories!! I'm basically lazy!!
They took x-rays on day 1 and said they would be looked over and if more were needed they would be done day 2 and 3 but then told me that the day 1 pics were fine?
They haven't said anything about weekly pics??
Seeing my onc after my sunbed session in the morning - consent for the add asprin trial, but I will be quizzing her about my complete lack of weight loss and awful water retention poss chemo 🙃 - really not happy dragging all this around with me!!
Thanks Cassie, they did say something about pictures but I didn’t really understand what they meant! Think I was just short of half an hour today, so will see what happens tomorrow!
Number 1 done! Was quite a long one in all - certainly not as fast as you Lesley, not yet anyway! Plenty of breath holding whilst using my scuba diving tube 😂 25 seconds at a time 😱 felt my brain drying out at one point but was ok once I’d had some water!
Understand what you mean about being peeled off the bed Roxanne, it was a bit of an effort getting up after!
Took my cream with me but left it left my bag with my Mum, so didn’t put it on straight away 🙄 Will remember next time!
New list of times which are all over the place 😂 that’ll keep me on my toes!
Have a a lovely evening everyone xx
No 9 of 15 down 💃💃💃.
I remember the days when i was in and out in 10mins before the machine started breaking down and fatigue kicked in.😭 They had to scrap me off the machine today 😊😊😊.
I'm seeing the consultant tomorrow and hopefully my GP, i need to get over this😷😷 i need some 💆💅💓
Morning Butterflyflyfree - number 3 ticked off for me this morning - in and out in 10 mins and that includes getting undressed and dressed and moisturised!!
yep watches, short necklaces and earrings all ok - specifically told not to take off trousers, they only give me a little half gown.... but apparently an 80 year old lady walked out fully stripped a while back ..... she was whipped back in to get re-dressed pretty smartish!
Butterfly, I was told I could wear a belt and had one on for my first session yesterday. You only need to strip your top half. I was also told earrings are fine and necklaces as long as they are not that long. You can also wear a watch. Good luck with your first session - my first one was yesterday and its very quick but keep expecting to see or feel something from the machine but of course its just like getting a scan so it just makes a noise when its doing its thing x
Silly question ladies but I’ve had so many scans and stuff I’ve got myself muddled! Are we allowed to wear earrings and do we keep our trousers on, even if they have metal at the waist, for radiotherapy? My first one this afternoon. Thank you xx
I had my first radiotherapy session today and amazed at how quick it is. Having 15 in total plus 3 boosters.
The areas being treated are where the lump was removed from my right breast, under my arm where the lymph nodes were removed and above my breast near to the collar bone.
I had 8 x chemo prior to surgery and had a partial response as the lump shrunk by half the original size and 2 of the 15 lymph nodes removed contained cancer cells.
Has been a long haul but now Ive started rads it feels like I'm finally getting near to the end of treatment. Hoping the side effects are not too bad and I'm definately planning on having a nice break away somewhere after xx
Bim, there's nothing wrong with good song
💃💃💃 having to admit I've been "rollin down the river" all day😂😂
It is hard I know but it will benefit you in the long run as it helps with the potential dehydration from the rads which can cause fatigue.
Hi WhyteFawn I had lumpectomy and a couple of lymph nodes removed and I’m having 20 Rads. 15 all breast and 5 targeting the area where the lump was removed. So similar story to many on this thread 🤗 I’m almost done just 3 to go. I keep bursting out into the song 🎶 it’s the final count down 🎸 like a right wally 😂
I remember my oncologist telling me I was cancer free , and he actually said those words, when I met him for my apt prior to starting rads. He actually said that they and the tamoxifen were just the belts and braces.
I had a lumpectomy and full node clearance, but nodes were only 2/11 so onc said we didnt need to rad the neck area.
6 chemo sessions - 3 FEC and 3 T - you've got to love it!!
15 general boob and 5 targeted where the lesions were (one big and one baby!), which are on the left boob and on the side
TN - all gene tests came back negative
repeat CT scan after chemo came back clear - they were worried about my liver
In my little mind I was cancer free after the surgery - chemo and rads are just the clean up crew for any rogue cells. Probably deluded, but it keeps me sane!!
I was told that you get more rads for a lumpectomy because they haven’t removed as much tissue, so there is more risk of stray cancer cells in the breast. I’m having 15 normal and 4 boosters -had lumpectomy and SNB. Hope that helps prove your theory!
Another bites the dust....
i had a mx and immediately reconstruction.
i'm having 15 sessions of radio because the cancer was close to my skin.
i also had the sentinal biopsy and that was clear
Hi Cassie, I’m having 15 and have had a left side mx with SNB. I had chemo first, I wonder if that affects the number too? Xx
They're targeting the lymph node and collar bone the same as you Cassie, but it's on my left side, hence the holding breath, hope I'll be able to do it! Didn't realise wmen who've had mx didn't get boosters. I can't remember, are you TN like me?
No, haven't got a start date yet! As the hospital I was supposed to go to couldn't do my rads, my onc referred me to Guy's, so had to wait to be accepted by them. Fortunately I didn't have to go to Guy's to see the consultant as the trust has links with another hospital which is nearer to me and I'm hoping they will be able to do my rads there. (Had to go to Guy's last week for the PET scan and I was exhausted when I got home, wouldn't like to have to travel up there daily for rads)
I saw the consultant on 16th March and he said rads wouldn't be starting for 4/5wks because he wanted me to recover a bit more from chemo and he wanted me to have a scan so that he could check the size of the lymph node (It shrunk back to normal size during chemo) and that will determine how many sessions I need, although he was saying minimum of 4 1/2wks because of the node. I got the impression that 15 would be on my breast and then boosters to target the node and collar bone. I'm seeing him again this Friday, so hopefully I'll get planning and start dates then. Feeling a bit anxious about it though as I always worry about getting results of a scan, although I understand why the consultant wanted me to have one. Sorry Cassie, I've rambled on a bit! xx