I guess I need to be very careful with this post as I got an email saying they rejected the last one as they thought I was advertising something! My daughter died in 2011 of primary angiosarcoma of the breast. If I understand correctly, you developed angiosarcoma due to radiation of a previous breast cancer. Our facebook page, " Angiosarcoma Cancer" has hundreds of members from all over the world. They are fighters and survivors of angiosarcoma or caregivers of someone with AS. We have a number of survivors of secondary AS of the breast due to radiation. We even fund our own research via cycle for survival, and numerous other events as angiosarcoma is, as you know, very rare and being an orphan cancer is not funded. I wish you all the very best in your fight and know that you are more than welcome to our FB page for lots of information, latest studies, love and support! Eileen
Hi Jill, sorry that you are in a lot of pain just wish I could take it away for you. Three weeks is a long time to wait for your results but I am sending good vibes and hope time does not stand still. With the waiting it seems to be forever but normally time flies by and we never have enough hours in the day. I am having to wait just over a fortnight for my chemo and have done about 10 days now but it does seem forever. It starts on the15th. I have to pluck up courage and have my hair cut shorter and it seems silly but I really don't want it cut. I keep thinking I won't have it cut and nothing will happen. I know if I don't have it shorter I will lose it even quicker. I'm pathetic really but it is like an admission that I have cancer. I know I have but it will be like telling the world. I am having the cold cap but also got an appointment booked for a wig. My oncology nurse gave me the information on the cold cap and then promptly booked me for a wig appointment. I did think was he trying to tell me something. Probably my imagination. I know two of my drugs on the chemo cocktail (I wish) I will definitely lose my hair and the 3rd is a possible. Sorry about the negativity but occasionally it comes in waves a bit like the tiredness. On a lighter note my new trick is putting my tops on back to front. I have been doing this all week. Maybe I should start a new fashion. One thing my friend noticed that with the 4 nodes gone I have no batwings on that arm. I did think about designing a one armed jumper to show it off. This morning we went on the beach with my daughter and two friends and our three dogs. My daughter is so bubbly I felt so happy and had a fabulous time. I forgot all that had happened and what will be happening. It was wonderful. My hubby (I now call him Pingu due to his broken hip as he walks like a penguin) and my friends hubby who has had knee op hobbled on the promenade while we girls went down to the sea. The dogs swam and had a brilliant time. After all this treatment I have this to look forward to plus a really good holiday. Someone said you have to give up a year of your life. I will do that and then get my life back. Knowing me though I will still make it to the beach no matter how I feel. To me it is like taking medication to watch the dogs and us having such fun and a good laugh. They keep joking saying they will be chasing my wig down the beach. That should be a sight for sore eyes but good for a laugh. Tomorrow I am going shopping with a friend so that should be good. I have a knack for finding bargains and have loads of clothes but can still find room for some more. I have a lousy memory but I can remember almost all the things I have bought and how much they cost. Weird that as someone last night said what did you have for dinner yesterday and I truly couldn't remember. This forum keeps me from losing the plot it helps so muchknowing we are all in a similar position.
I am thinking of you. Keep in touch and let me know how you are getting on. I hope I have made you smile at my antics which are even worse than before but they make me laugh.
Hi Jill, so so pleased no further spread and that you have had your op and you are now home. I was thinking of you and wondering how you got on and suddenly had a light bulb moment (me before I start chemo) and went into your thread. I think that is what it is called as I am a newbie at this. Home is definitely the best place to be. I am thinking of you as I know, as you do how painful it is but you will get through this but as you know it takes time and patience. None of us appear to have a lot of that as time stands still and we just want to be getting on with things. I took my son to work the other day and fell asleep at the traffic lights. He woke me up and I shot off and the car started bleeping. I was going with the handbrake on. Luckily I didn't break it. My body is telling me to rest but the brain or what I have that stands for a brain is ignoring the message. Today hubby cooked me roast beef and all the trimmings. He is spoiling me as well as trying to build me up ready for chemo. He cooked a joint which serves 14-15 so we will be eating a lot of beef this week in different guises. Keep in touch when you feel well enough.
Take care and get plenty of rest.
I'm so pleased that the CT scan was ok, and that the surgery is done. Now you just need to concentrate on getting better. I can't imagine what it feels like to have to go through it again but you have been so strong to get this far, especially with all the waiting etc, that I am sure you can do this.
Take it gently and feel better soon
Just wanted to say that I hope everything is going alright. If you had the mastectomy today I really hope all went well and wish you the swiftest recovery.
Take care, Emxx
I'm really pleased they are moving quickly and keeping everything crossed that the ct scan doesn't show anything more sinister than the stuff you already know about.
If you do go in tomorrow then I really hope that everything goes well and I will be thinking of you. Stay strong
I'm really pleased that your support nurse is being supportive
And that the CT scan is not a long wait - although I know even a few days will seem like forever. Will keep everything crossed that there is no more spread. Hope you find something nice to do over the weekend.