Member
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Registered: ‎01-05-2012

Re: Advice for ghastly radiation burns please?

Hi all

The BCC specialist clinical nursing team have looked at this thread and would advise any one having problems with burns after radiotherapy treatment to contact their radiotherapy unit for information and advice.

I hope this is helpful.

Best wishes Sam, BCC Facilitator.

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Re: Advice for ghastly radiation burns please?

hi, I had burns too, mine came out about a week after having finished my radiotherapy, I had a large one under my arm, which was raw and felt like someone was dripping vinegar on it, obviously not able to use deodorant and the warm weather made it a lot worse, my GP gave me Fucibet cream (fusidic acid/betamethasone) 30g I applied it 3x a day after the first day it felt A LOT better by the third day the redness and soreness had almost completely gone, it is now not sore or red, it is worth giving it a try, it worked for me.

hope you get some relief its horrible I know, best wishes to you Liz xx

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Re: Advice for ghastly radiation burns please?

Thanks for all your helpful suggestions. As you can see from my previous post my cry for help was made in the middle of the night as I couldn't get to sleep and I did as suggested and just spent the night lifting up my boob to the cold air of the fan. I must admit it did help and will do the same tonight. Wished I could have done it today but would have been arrested if I had wandered round Tesco with my boob in one hand and a fan in the other. lol

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Re: Advice for ghastly radiation burns please?

hi chrissy, I was just thinking that something on those lines might work, or muslin squares from a baby shop cut up. I think i would put them all through the washing machine with no detergent first though.

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Re: Advice for ghastly radiation burns please?

Hi

I am around 3 weeks post rads now and I had the same, a nasty rash first appeared UNDER my breast where the breast meats the chest and it turned into a very sore spot. It gradually opened up and it was oozing something. I did not put cream on it because it made it worse, but I did what the rads nurs told me and put a rolled up handkerchief (not used lol), a cloth cotton one, underneath and in between the folds. This worked for me and now it has cleared up. I also washed it in simple shower gel. I thought fort one minute I was going to get an infection, but it cleared up on its own. chris

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Re: Advice for ghastly radiation burns please?

you might have a point there.

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Re: Advice for ghastly radiation burns please?

Hey Drummer Girl

Talcum powder would be a no no I think- it would probably combine with the perspiration and go lumpy!

Member
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Re: Advice for ghastly radiation burns please?

Hi Isablyn

Just a thought, but how about doing as JulieD suggests to make sure that the area under your breast is quite dry then putting a Mepilex dressing onto the burn. The Mepilex dressings I have are 10 x10 cm (that's 4in x 4in - in the old money) they stick on by themselves and you can leave them for a day or two depending on the amount of exudate. That way you could wear a bra as the area would be protected. I have found that very successful as I'm also one of the Droopy Breast Brigade- I don't have burns there but the skin is quite sensitive. I have found putting a dressing corner to corner the best way, ie so that there is a "triangle above the crease and a triangle below" - finding it hard to describe what I mean. If necessary you could put two dressings on if the area is too large for one, I don't know what other sizes they come in. Moist wound healing is the way to go these days.

All the best Diana

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Re: Advice for ghastly radiation burns please?

not sure about that OAL ? my tumor was on the side of my boob I think its the way the rays are aimed from the two different directions my 'bit or strip' under my boob has gone so dark now & seemed more dried out than the reast Ill be a week post Rads tomorrow & its starting to fad a bit on the boob area but the underneath bit I can see being the last part to fade .. it is strange I must admit.
LOL Julie if the neighbours are looking then shame on them AIRING it definately at night been laying with just a sheet window open fan going so mines getting alot of air

Isablyn I hope you soon start to get ontop of it & start to get relief & feel better

Community Champion
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Re: Advice for ghastly radiation burns please?

OAL, I know what you mean about getting air on it there, I'm big busted and found that getting air to it did help but it wasn't a pretty sight - I'd lay topless on my bed and gently support the breast upwards so air could circulate! Thank goodness the neighbours couldn't see!!!
xx

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Re: Advice for ghastly radiation burns please?

Hi Isablyn

Welcome to the forums. Sorry to hear you're suffering with the rads burns. Could I suggest you give the helpline here a ring the nurses may be able to suggest something that will help you. The helpline is open again tomorrow, Monday at 9am - 5pm, calls are free, 0808 800 6000.

Hope this helps.

Jo, Facilitator

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Re: Advice for ghastly radiation burns please?

there seem to be a few posts about bad burns under the breast. is that from women whoes cancer were low down in the breast. Or is it from people like me who are less than perky and gather sweat there?? People say getting the air to it help, well I am never going to get air under there.

I wonder if baby powder would help if you used it before the burns start?? probably a daft idea but I will discuss it with my nurse next week. Another question to add to the list.

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Re: Advice for ghastly radiation burns please?

Have just finished rads and have bad rad burns under my breast. As I am 77 my boobs are no longer perky and really hurt in the crease underneath which has lost skin and is so raw and sore and sweaty. Has anyone ever heard of a sling of some kind which can lift your boob up from rubbing against the skin on my chest and underside of boob. My GP has given me Timodine which would appear to be an excellent product but cannot see how skin can grow back and heal with skin being covered, Bra is out of question as bottom edge right on soreness Any help appeciated Thanks

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Re: Advice for ghastly radiation burns please?

Another vote for Mepilex - the rads ward recommended it and gave me the name to ask my GP for a prescription - they didn't have nay big enuf for my toasty bits!!

Good luck all - it does clear, and I don't have any hair in my armpit 18 months after rads so 1 good efffect!!

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Re: Advice for ghastly radiation burns please?

So sorry you have been burned I was also but the district nurse came every day to dress them and she brought Safetac dressings which protected them and a very cooling gel and with a light bra or a tight t-shirt to keep them in place we managed fairly well.
Strangely enough once it started to heal it went away very quickly leaving silvery marks. But I am still very angry about being so badly burned and my skin is still very dark where it was radiated in January.
Best of luck,
Nan

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Re: Advice for ghastly radiation burns please?

I burned badly and eventually got the actiform cool gel sheets which were heaven ,cool to put on and neat to use.
Good luck!
Dot
x

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Re: Advice for ghastly radiation burns please?

hi , try washing gently with baby soap, dry with either a fan or cool blowing hair drier, and let the air get 2 it as much as possible, lock your door and draw the blinds and go topless all day, i found these things helped xx angie

Member
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Re: Advice for ghastly radiation burns please?

people on here are swearing by actiform cool. see if your gp can recommend that.

Nurse on holiday? there must be someone there covering for her, they realy are better to advise you than a GP, but then i dont know how near your hospital is.

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Re: Advice for ghastly radiation burns please?

Thanks guys for all your advice. My radiology nurse specialist is on holidays this week, but I have left a message for her.

I have tried the mepilex lite and a few other dressings to go over the top of the oooze, but my skin still seems to just peel off with it.

I am seeing the nurses at the gp surgery, however the only other person they have seen with rads burns was in her 80's.

It has been two weeks and they are still very open, ooozing and spreading.

I have read a radiologist oncologist's report on the matter and he says that although they may look infected, they very rarely do get infected. I just have to keep taking my temperature to make sure.

Bathing them in salt water does sting a little, but at least i feel like I am doing something to help.

I know it will just take time to heal, but I am still a little impatient after all, I have had 10 months of treatment already and I just want to move on.

Thanks again for all your posts.

yours sincerely

Lone xxx

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Re: Advice for ghastly radiation burns please?

Did they give you masses of booklets?? look through and see if one has phone numbers. In our hospital the nurse in charge of the condition of your breast is called a cancer care specialist, in other hospitals its a skin nurse, or if all else fails there should be the number of your breast care team. Ring them and they will sort you out.

I have only come across one of these specialist nurses that was less than 100% helpful and i think that was just cos she did not understand my needle problem, next time i spoke to her about other things she was brilliant. I think their job requires extra training and is better funded and so they get good job satisfaction from looking after us.