03-11-2018 08:12 PM
Contact your radiotherapy team and let them know what is happening. There is a dressing called polymem which is for the treatment of radiotherapy burns, they can probably give you some and you can get a prescription from your GP for more but just in case it takes a bit of them for them to get it in, your first recourse is your rads team even when you have completed your sessionsl. It has something in it that promotes healing.
03-11-2018 04:16 PM
Hi I have just completed my Radiotherapy, my burns under my boob is so painful it hurts to move. I have been given so medication with Zinc in it by my Doctor. The burns are sore red and open, how can I keep them dry to heal. Any advise will help..
Thank you x
10-10-2018 09:53 AM
Hi ladies, I had 25 sessions on breast and sub clavicle, including 5 boosts to the nipple. I had great advice from my team, and was supplied with a range of specific ointments throughout as the burns intensified. My skin never broke, which was the main aim, and when it got really bad the burns unit were called in and I got a cream which provided aplastic skin over the site. The only products I was allowed to use were Aveeno, which are oatmeal based. I was advised to lie on my back 30 mins after showering in cool water for the air to circulate. Also advised to wear loose clothing and go without a bra if at all possible. Contradictory advice if you think about op! I was supplied with codeine for the pain. The district nurses popped in weekly for additional support and morale boosts. Never bought any creams, and I'm afraid I wouldn't use anything not ok'd by my medical team. The rads unit supplied me with hot line phone number in case of emergencies. I was checked every day before session started for skin condition and pain level , and then more discussion after session. Loved my team! 😍 I think once the skin has broken then it's really important to get medical care and not self treat. After all, not being medical people how do we know the various creams don't work against each other? Just my opinion. Best wishes to all sufferers. X
08-10-2018 07:29 AM
01-07-2018 02:43 PM
I just finished 21 days of radiation and I want to share this with you. I was told to put raw cabbage on my breast from the first day of radiation. It puts moisture back into the skin tissue. You know how you will bunch up newspaper and put it into a wet boot. It draws out the water. Well the cabbaged works like that in reverse. It worked to cool the skin down also. I would take it out of the frig wash it and keep it as large a leaf as possible. I would even put them in a cooler and take them to radiation. I would put this cream called calendula on first. I am still suffering from burns and it is not perfect but I still use the cabbage leafs to cool my skin and put moisture into it. I was blessed with great Doctors. I hope you can get some relief. I put the cream on and than let air get to the burns from time to time. I will also put a cloth under my breast to let air get under the breast where it is very painful. I pray this helps you. Remember your beautiful !
12-03-2018 12:15 PM
12-03-2018 10:48 AM
thanks Jill! that was my first post on any forums too.
i did want to add that I haven't been comfortable using a petro chemical product but at the same time wanted to follow what I was told was best by the radiation unit. I saw (here) that someone else used a variety of creams that sounded good. I have seen a recipe today for a salve with beeswax which I'm guessing gives the salve a thickness/body that might work well - replicate the particular qualities of the parrafin ointment in moisturising and sealing moisture in?
Here is the link if anyone is interested:
Lots of other great recipes too.
10-03-2018 11:51 AM
Hi all, I'm in Australia and wondering about the totally different advice - except for the last lady - about wet and dry. Here I was told that it is very important to keep it moist.
I had 20 sessions of raditiation and skin started to blister during the last week. The nurses at the radiation clinic started off treating the burn and when i finished a nurse visited me every day - we have a fantastic not for profit service here where nurses come to your home (for anyone not just cansurvivors) and they have continued the same treatment.
Which is - I have my shower before they come and then I soak the burn area in a solution of 1 litre boiling water and 1 teaspoon of salt (made earlier in the day and cooled) using large cleaning cloths (straight from the packet), soaking them in the water and then laying them over the burn area and leaving for 15 - 20 minutes - rewetting them if they get a bit dry. Used disposable gloves to protect from infextion. Then the nurse applies a thick layer of parrafin ointment (dermeze - I buy a tub of it from pharmacy) to the whole area and I get them to go over the edge onto the good skin too because I can always feel it pulling on these edges. they then put these squares of netting/gauze that are saturated in a thick parrafin ointment (called Jelonet in Australia) on the burn and then use non-stick pad dressings over the top of the whole area (including under the arm).
We then try various methods to tape the dressing so it doesn't slip around (even tho the jelonet is very soft it still feels like its scraping if it moves around - the best method so far has been using a flexible tape that is called AsGuard flex or Fiso Fix ? and try to put it on skin that hasn't been treated. To start with I also used a type of compression bandage over the padding, around the chest under the breast (only one in my case!) and then over the shoulder (I have an additional pad running vertically from collar bone down over the top of the other pad and this gives me extra protection esp for seat belts etc). This made me feel really secure. I stopped using the bandage once the burn on my thinner skin (under collar bone) had started to heal as this was the worst part esp with rubbing. Until this week I was wearing this the 24 hours until the nurse's next visit. Over the top of that we would put a little light stretchy top made from - wait for it! - incontinence pants. The nurses at radiation unit showed me that trick - you just have to cut a couple of extra holes. very soft and helps hold it all together.
I really feel for all those women who had been told to keep it dry - just having a shower before the nurses visit, which had the effect of removing the ointment, it was instantly painful and would stay painful until the ointment was applied.
I was told that the radiation would continue to act for up to two weeks after the last treatment (in other words, the burn continues to develop) and it was quite miraculous how when that two weeks passed my burn suddenly started to get better.
The ointment is very messy though and you need to wear old t-shirts etc because it does stain.
Another idea is to ask for a referral to the burns unit of your hospital so you can get the best advice.
good luck to all of you.
24-02-2018 03:36 PM
Hi Chata3070, I had real trouble with burns under my arm and under my breast. They gave me some intrasite gel and some melipex dressings on the last day of treatment and a note to give to my gp to get some more. They told me it was better for the wounds to heal in a wet environment rather than letting them dry out. It took two full weeks for mine to heal with the gel being applied twice a day and a dressing change every day. At one stage my whole under boob area was raw. The skin is still very fragile but it has now healed over. I took co-codomol painkillers too as it was very sore. Can you have a word with your gp or BCN and see if they can give you something? I feel for you it is horrible. Good luck x
22-02-2018 10:18 PM
hi I also have some bad burn especially in armpit area I even have broken skin? Is this fucibet prescription? Also can it be used on the broken skin? I appreciate and thank you in advance for your respons
26-09-2017 07:38 PM
Hi, sorry to hear other people are going through similar to myself. I finished radiotherapy 3 weeks ago and I have been in total agony ever since. I Have been using polymem dressings for 3 weeks and have been taking cocodamol tablets along with ibuprofen for the pain, however they don't seem to help. Sleep is non existent at the moment due to the pain. Went back to breast clinic today because my local gp surgery had ran out of ideas, and there was no improvement in the last 3 weeks, to be told to carry on with tthe polymem as it was the best thing on the market for such burns, and my suffering will go on for at least another 8 weeks ! The underside of the breast is all burnt and lacking in skin, it is a side effect that I was not aware of. After surgery in December 2016, wound breaking up, infections, chemotherapy, wound breaking up again, almost a year of my life has been spent in hospital, clinic visits and agony. I am hoping there is light at the end of the tunnel for me and everyone else going through similar. Love and hugs to anyone going through similar, you are not alone. Xxx
04-07-2017 11:14 AM
03-07-2017 08:43 PM
Well thats them all done, I know you still have a lot to go through, hopefully not too bad, but the bells are ringing for you tonight loud and clear zzzzz
03-07-2017 12:05 AM
02-07-2017 11:47 PM
Yep that is the one I am on about there is one side that you place on teh skin but I cant remember if it the one with the lines on or not but it is supposed to help with the oozing xx
02-07-2017 10:47 AM
02-07-2017 10:34 AM
Was the dressing they gave you called Polymem, if it is ask them for some more and get a prescription off your GP, it will take a few days to come in so ask the rads team for a weeks worth, if that is what they gave you. I had a rads skincare nurse who who specifically dealt with my skin and was not part of the daily rads team, it might be worth asking if they have one at your hospital and arranged to see them regardless of the fact that you will be finishing your rads.