25-09-2017 07:46 PM
24-09-2017 08:55 PM - edited 24-09-2017 08:57 PM
I went to a 'Living with secondary breast cancer' session run by BCC where the topic was pain control. It was given by nurses from the Royal Cornwall Hospital where all the women who attended the meeting were patients. It was quite helpful. I went because although I don't have a problem right now, I anticipate it in the future. However it took me two hours to drive there. There is nothing similar that i have found where I live in Devon though there are five hospitals within about an hour of Exeter. Information and support from whatever source seem quite randomly available depending on where you live. Ramade's suggestion of your local hospice seems a good one. Bon xx
24-09-2017 04:12 PM
Linda there are pain nurses at some hospitals but not at others.the best place would proba ly be your local hospice, I find they're great.
by the way are you still on e/e? It didn't work at all for me and I'd struggled through the side effects for 5 months.so now I have a big spread of bone mets and next week have radiation all week, then a change of meds but I don't know what yet.
do not struggle with pain, I was and have now been assured that it can always ge kept under control.
love and hugs to you
24-09-2017 01:45 PM
24-09-2017 10:30 AM
24-09-2017 08:47 AM
Hi Carolyn, thanks for replying. I had meant to put this on our usual bone mets site but sent it from my phone so didn't send it properly. Have since seen a wonderful pain nurse who has
Given me pre gabalin because as the cancer is all up the spine there are lots of nerves there and this treats nerve pain. Worth knowing I think. I'm pain free now!!!!
Hope you are still doing well on letrozole it helped me for a few years and, don't worry about thefatigue because it goes away 3 days after you stop.
Lots of love and hugsxxxx
20-09-2017 09:37 PM
20-09-2017 02:30 PM