Hi Bexter77, nice to meet you, and sorry you find yourself having a wobble.
Good luck for your scan next week - hopefully the antibiotics will have kicked in and begun to resolve things before then in any case xx
I wonder how many others are out there following the Posse's escapades? Lurkers - make yourselves known!!! We're a friendly bunch - as you must know by now!
My goodness me - someone who started chemo in October 14 and hasn't been in hospital - a rare person indeed! Welcome Bexter77 - nice to get to know you.
Hopefully you will get some reassurance next and go off to have a fab holiday in the sun - I am not at all jealous
I hope everyone else is doing ok...
It's lovely to meet you after all this time, welcome to the group. :-)
I had a lumpectomy too. Since then I've had five infections that all seem to have started from the dissolving stitches that are inside my boob, not outside. Two of them have resolved themselves by turning into an obvious absess - both times I went to the doctors and got antibiotics and dressings and they cleared up very well. Another three times I've had the same sort of thing but it just became sore and inflamed (the last was about 2 months ago, so that's 9 months after surgery) but then settled down on it's own. When the area has been swollen and inflamed it did make the pores on my skin look really big. I was surprised that the allegedly 'dissolving' stitches hadn't dissolved, but the doc said they can take up to a year and my body was just getting irritated by them.
It sounds like you're doing all the right things, I hope this sets your mind at rest and you get it all sorted soon. Have a great holiday and come back and have a chat with us soon. xxx
Hi Bexter77, that's great news you have been squeezed in for a scan next week. I'm one of the 'lucky ones' on this thread....no mastectomy, cancers found really early, clear margins - but had micromets in the SLN biopsy...hence chemo. Despite this positive I've still had an emotional rollercoaster ride....we've ALL got that 'monkey on the back' now! You are sounding more positive.... well done you. 😀. x
Yes, this thread certainly has legendary status. Whenever I was feeling low or hard done to, I'd have a read and give myself a slap as i was quite fortunate with side effects and never ended up in hospital! In fact, i was pretty fortunate overall. I found the lump very quickly, there was no spread, I had clear margins and no lymph node involvement, i didn't have to have a mastectomy etc etc ....it all could have been so so different....I think this is why i'm super vigilant now, so that if it happens again, i find it quickly!!
So - update - after speaking to my consultants secretary and my doctors again this morning, i've gotten through to a BCN who, in lightning speed, has got me an appointment for next Wednesday....it's the earliest one they have. I'm happy with that and can manage for a week (I think!). I am usually the most positive person there is. I was the one comforting others when i was sharing my news (which i'm sure you all did to). Positive mental attitude, a smile and a "let's do this" focus goes a long way and helped me massively. I just think that i believed i was all done and could move on, but actually i've just turned into a paranoid wreck! I'm trying my best not to worry and I did always say that i would be much happier after a follow up scan (which wasn't due til September) so i should be grateful i'm getting it earlier i suppose. At least i will be able to enjoy my holiday and relax. Fingers crossed it all goes well!
Thank you for all your positive thoughts and hugs xx
Hi Bexter77 and welcome....it's good to hear that you have found our postings useful and amusing. The October Posse rocks 😀😀😀.
I'm sorry to hear that you are having extra problems at this stage. I agree with Murphy, it sounds like an infection so fingers crossed the ab's will soon start to sort it out. I too had wle's in August and healed well. However since rads in Feb/march, my boob is more tender, a bit weird looking around my nipple area and a bit lumpy. I've been told by my onc that this is normal and will settle in time - but it will never be how it was or feel the same as my other boob 😕.
Anyway, I hope your scan appointment comes through quickly. Let us know how you go on. X
Welcome to the forums, I’m so pleased that you are finding them helpful.
Whilst waiting for replies to your post maybe you would like to give our free helpline a call where the staff can offer practical information as well as emotional support. The free phone number is 0808 800 6000 and the lines are open Monday to Friday 9.00 to 5.00 and Saturday 10.00 to 2.00.
Hi everyone! This is my first post on a forum, even though I’ve finished treatment (for now at least), albeit i have another 9 years and 9 months of Tamoxifen to take! I need advice, reassurance, and some straight talking and I thought this would be a good place to go…I've always followed this thread as i started my treatment in October, although i didn't post anything - i did get support, some cries and some giggles from reading everyone's posts. What a group this is!! The other threads even speak of this group and they can't believe some of the traumas that have been faced!!
I was first diagnosed with invasive ductal carcinoma of the right breast in August 2014. My lump was 18mm and a Grade 3. I had a lumpectomy and 4 lymph nodes removed, all of which were clear and I had clear margins. 6 rounds of chemo (3 x FEC and 3 x TAX) as well as 15 rounds of radiotherapy later I finished my treatment on the 2 April and rang that bell like no bell has even been rung before!!
Now, a couple of months on, I found myself at the docs with a swollen breast (same breast as cancer site). I had noticed it was heavier and larger than the other and felt like a water balloon. It was also a bit hot. The doc has given me antibiotics as he believes it is an infection, however he has referred me back to the breast clinic to be absolutely sure. I’m due to go on holiday very soon so am desperate to get this scan done as soon as possible so I can either be relieved or prepare for another fight.
At the moment, after 2 days of antibiotics, there is no improvement. I feel a burning where my scar is through to the nipple area, the area around the nipple looks quite large but flat, if that makes sense, and either I have very large pores or there is some dimpling going on. I’m petrified it is inflammatory breast cancer (stupid bloody Google). Is that even possible so soon after the treatment finishing?
I just wondered if anyone out there had experienced something similar? All good news stories and bad news stories welcome!! I don’t want to burden my friends/family with this if turns out to be nothing, so I’m reaching out to people that will understand like no other people can.
Yes jingo, a slice of good news for everyone is what's needed
Thanks eveveryone for your good wishes and positive thoughts. It makes such a difference.
Oh heck Lainie! Glad its "just" a seroma though. Nasty things to have, but as Junash says the relief on draining is immediate. Mine refilled to an extent then eventually went away on its own without further draining.
I got my CT scan results today - all clear of anything cancer-y. To say I am relieved is such an understatement. They did find that my lower spine is degraded and some discs are bulging, so some of my pain is probably from that. I was offered an MRI but I am so sick of hospitals at the moment that I declined. The onc is going to write to my GP to advise that they refer me at a later date should I wish, if the pain persists/gets worse. I've had lower back trouble before, so I don't think what they're seeing is anything new. It's just that taking the oestrogen out of the equation is making my body rebel. So, first official wobble out of the way. Moving on...
My chemo brain is ridiculous...I still hardly ever say the word hospital without first saying 'hotel' first (why?!), left my watch at the hospital yesterday....and didnt notice until they rang me in the evening. Was taking someone else's child to footie with my son this morning and had to write it on my arm I was so petrified of forgetting to pick him up or leaving him behind!
One of my appointments last week was back with the lovely Integrative Medicine doctor who really helps me with my worries and mind and keeps me posted on all the latest research in Mind-Body things. I find it very useful and am learning to train my focus so that I can learn to ignore the 'threats' that preoccupy me. You may find it reassuring to hear that we are biologically programmed to focus on these threats as it is part of our survival mechanism, so it is natural for us all to have our head filled with it, but there are ways to re-focus your mind and switch it off. Not sure if links work - will post on FB if this fails, but have a look at www.stressfree.org and sign up to the 7 day happiness challenge. This week I have been getting a daily e-mail and theidea is that you focus on one positive emotion every day eg Monday is gratitude day, today is the senses. It calms the busy mind and has helped me get through the week so I intend to keep the 7 day cycle going and now try and think of 5 things I am grateful for every morning before I get out of bed (I have time as getting out of bed takes a while )
Enjoy your Dirty Dancing night out tonight nicnac15, and remember - No-one puts a member of the October Posse in a corner!
Sorry, couldn't help myself.
All the best for Monday and your results Linzz. Sending a hug and try not to worry (I know it's easier said than done)! Try and enjoy the w/e
Wow ladies, so many of us struggling with so many scary things. Hugs to all of you!!! This is definately the side of it that is hardest, coping with new pains, coping with The Fear. I hate it. I get my CT results on Monday and in my head I can picture two scenarios, me skipping out of there SO happy and reassured as the onc told me I probably would, or like jingo_x says they've taken a good look and they're bound to find something they want to look further at. I am terrified that they won't find anything relating to the problems I was having when the scan was ordered but that something else is about to blind-side me. Add to that I'm choked with a head cold and indulging in feeling sorry for myself. Oh, and I had to go back to the prosthesis clinic and swap down to a smaller foob as all this weight loss has made my good side deflate so much. I now need an AA cup but M&S don't even do AA in my band size. #feelinglikeabitofafreak
Hope everyone can put stuff to the back of their minds as much as poss this weekend. I think I'm going to go to see an inane comedy at the cinema and then eat lots of comfort food
Thinking of you Jingo and sending a hug x
Junash my burns went from under my chin, my whole right side where the breast was and then a few weeks after that the burn continued out the other side through my back. My rads finished in March and burn on back only just healed. Gor infected as well. Can still see burns but not painful now I did have a bad reaction but apparently some people with fair skin do and this is what happens so is not completely un-normal although I wasn't preapred for it.
I had to laugh though Junash about you wearing your cardi inside out as I have lost count of how many times I am doing that with clothes Did anyone else when they didn't have eyebrows and were pencilling them in ever go out having forgotten they had only done one brow like me? I did this a lot as would get distracted and then forget only remembering several hours later or on going to bed!
Hope everyone has a good w/e without too many worries.
MM Eurotunnel don't even want to know if you are taking medication! I spoke to so many companies before I called them who wouldnt cover me as I was 2 weeks post-rads and had new lymphoedema.
I am sitting here staring at my lymph arm this evening. I somehow managed to get an insect bite on my arm and it has gone red and hot so I am armed with antibiotics waiting to see if I need to take them to stop cellulitis. Hard to decide if I hate cancer or lymphoedema more!
Saw my onc yesterday to discuss my cancer found accidentally during my prophylactic mastectomy. The plan is not to give me more rads or chemo - they don't know if the cancers were new or old. So I am now coming off tamoxiden and will go on to letrozole in 4 weeks. Started my injections yesterday to shut my ovaries down and if I get on ok without them I can have them 'popped out'. Onc didnt seem quite so confident about my 'bone thing' anymore though. I have an MRI booked in July but am now going to have a PET scan to check everywhere else as well. I have managed to get myself a bit worked up about the fact that the PET scan wasnt mentioned until after I had been examined which was about 45mins in to the appointment. I too have sore ribs and lumps and bumps everywhere. She warned me that the scan would undoubtedly find something that needed looking at or biopsying and I needed to mentally prepare myself for that. Have to say I always assume I will get bad news these days anyway!
Getting ready for the school fair next week and everything I do reminds me of a year ago - I find myself thinking 'this time last year I didn't know' and remembering how happy and well I was feeling when I went for my mammo. Can't beleive a year later I am still waiting for scans and results all the time!
have lovely weekends posse! xx
Hi Murphy thanks for your reply. I am off to Turkey as well! Will have a look at that insurance company thanks. Several of them seem to be saying that as I am taking Tamoxifen they regard it as still in active treatment which doesn't seem right.
I too have a lot of pain where my boob was (deep inside) and also the rib hurts and through to my back. I also had a lump. I saw oncologist last week about it as was really stressing and they are confident that it is caused by the radio-theraphy (I did suffer bad burns). They wouldn't scan me as said there are risks in doing so unless they really believe there is a problem despite me really begging for one. The lump they are happy is scar tissue. Of course, I am now back to worrying again in case they have got it wrong. But I suppose it's a case of trying not to panic? Although I feel slightly hysterical sometimes! Not sure really. I think I wouldn't be so worried if I didn't have any pain. I must say I am sorry you other ladies have pain but it is a comfort to me knowing that you have the same thing. I am going to see a psychologist to help me with ways to move forward and cope so I hope that helps. Maybe that could also be an option for you?
Wise, wise words Murphy. I'm really sorry to read that some are having yet more worries and niggles. I do so hope that investigations and appointments are quick to happen and bring good news and relief from all the extra worry xx
I've had a few odd days in the last couple of months when I could have strangled OH and/or crumpled in a miserable heap....weirdly though, not actually aware that I'm codging on any particular worry. I put it down to general weariness and feeling old, fat and very ugly at times....all positives thoughts - not - lolol, so I keep taking the citalopram 😉.... then, I just seem to bounce back! I would think Murphy, that as you are working and looking after your family.... perhaps utter exhaustion is to blame?!!?! As you say, a holiday is required! Xx 🍹🏄🎋🌞🏄🍸🍹
Madam, I hope you are doing ok now following your recent recon surgery. xx