Hang in there, you are doing really well. You have faught your corner. I too was quite upset, but didnt complain because I felt too vulnerable. Now you have done your very best, time to let the anger go a bit, if you can, as you need all your strength to fight this disease. Thank you for sharing....if you find it keeps nagging away at you, do let us know..we are all here for you
Hi Marye, sorry youve had such an uphill struggle...my initial diagnosis was missed and I went away feeling like a hypochondriac, left things for a year, may not have lost a breast if I had persisted....
About the ribs, i do have two hairline fractured ribs which funnily enough started hurting a couple of years after my mets diagnosis! I went to the onc with pain and he said, ' we told you you had hairline fractures in your ribs, didnt we?' And of course they hadnt. i am unsure if they are due to rads, or to bc, but they do hurt if I turn unawares.
Well done for fighting your corner...never feel intimidated, if you mention something and they dont take heed, you can say' please note my concern about my 'xx' in my notes'. and you will find they wont dismiss it easily.
it IS your life and they have been trained and are paid to listen to and care for you!
i am very lucky, my onc does listen. After I was missed, I did change hospitals tho. But not everyone has that option.
do keep us posted,
sorry you have had to join us here but welcome. You will find you are not on your own with your gripes!! It seems no one but us grasps the fact that we know our bodies better than anyone. My SBC started as a lump which was misdiagnosed as a sebaceous cyst for 5 months by at least 4 'professionals'. It has now spread to my skin, pleura and bones. I am finding that you have to push for everything (althuogh i have to say my new oncologist acts on whatever i ask for), do my own research etc, etc.
Dont ever feel you are being pushy and never accept an explanation/diagnosis your not certain about. Of course this all adds up to stress we dont want or need but keep needling away until you are happy. With regard to bones it seems that we are all on denosumab, zometa?? or other biophosphates. i have a six weekly injection but most people seem to have it 4 weekly. I'm sure there will be someone along soon who can give you better information than me but in the meantime plese feel free to vent your frustration on us. xx
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I was diagnosed with breast cancer 4 years ago had an op went back to work in 2015 I started to get pain in my rib, I kept visiting hospital they stated I had a fractured rib this went on for months, after doing my own research, I found that most secondary starts usually in the ribs this was not taken seriously and I continued to try and work, eventually the pain became too great, after much more pushing I finally had a bone scan which showed a hot spot, I believed tings would really move forward now cut lng story short it took another six months before I was diagnosed, finally June 2016 I had an op to remove partial rib muscle and tissue, then in September more pain two episodes of a and e due to severe pain , usual have to wait to see oncology another ct scan showing more spots on ribs now waiting full body scan I feel as if I have to fight for every answer and it's very difficult to get the hospital to listen, I feel that when I had the original cancer I was treated fantastically and quicker, now I have to be assertive to the point of pushy, it's stressful enough being in constant pain without, having to push for treatment I wonder has anyone else had this issue. And the best treatments for breast cancer in the bone thanks sorry bit of a rant still processing it all