15-08-2016 06:08 PM
08-08-2016 10:35 AM
just saw your message. Not sure if you meant me or another Debbie but I'll reply anyway. Thank you for asking. Well today I have got to go for my first review ct scan after being diagnosed primary and secondary in May. Feeling very nervous right now but I won't get results until Thursday when I have to see oncologist. Been on Zoladex now for three months, bisphosphonates (Ibandronic acid) for 11 weeks and tamoxifen for 10 weeks. Hoping and praying they are doing something for me. I've had a few side effects but on the whole not too bad. Bit achy today but think that might be stress and anxiety building up.
hows everything going for you?
debbie (daisyjane181) xx
25-07-2016 10:05 PM
25-07-2016 07:42 PM
Hi, I am in the same club too I guess, I am 37 years old, have been just diagnosed with bone mets and feel quite uncertain of my future. lots of pictures in my mind, but for the time being I have decided to keep head up and fight. If you give up and desparation ovewhelms you will be dead already. Many hugs to all
P.P. Have not started chemo yet_EC one-has anyone been through it?
23-07-2016 03:46 PM
Dont think they're looking at surgery. Oncologist didn't seem to think they would put me through it. Guess if it's already spread then no point really. Really hoping hormone treatment works. I've been told a couple of times that as I've not had any previous treatment, what with getting primary and secondary diagnosed together, then hopefully my body should respond well. That's what I am aiming for anyway. I hope you feel more positive soon and we can keep in touch. Debbie xx
23-07-2016 09:19 AM
23-07-2016 08:28 AM
just read your message. I'm completely flummoxed over private messaging but not to worry.
my story began when I got called for my first ever mammogram in April 2016. Got recalled two weeks later and after further mammogram and two biopsies in one breast, got told I had invasive lobular oestrogen positive but her 2 negative. Had pet ct scan a week later and got told it had spread to spine so stage 4 bone mets. A week later again after full body bone scan got told mets were extensive. Absolutely devastated. To go from complete normal life to being told this is extremely hard to deal with. My oncologist has got me on monthly Zoladex injections of which I've now had three, Ibandronic acid bisphosphonates to strengthen moth eaten bones and tamoxifen which I've been on for eight weeks.
i had absolutely no symptoms of any of this going on. Since treatment started I get a few night sweats but luckily no flushes in day. I do get some joint aches predominantly in shoulders and neck. Did have a week of headaches at the beginning but they've gone now thank goodness.
I absolutely refuse to let this 'condition' get in the way of what I want to do. I'm in the fortunate position of working only a few hours a week as I'm self employed. I've also been awarded pip payments which helps.
Due to go back to see oncologist in August which I am dreading I have to say. I guess I have to go though so can't dwell on it. Fingers crossed hormone treatment working that's what I want to hear.
just an extra note - I have just read the cancer conqueror by Greg Anderson and am now reading cancer 50 essential things. I personally found these books extremely uplifting and positive. Maybe try them.
i wish you much love and please please keep in touch. I don't know what part of country you are in but I am in east Anglia.
22-07-2016 09:01 PM
16-07-2016 09:02 AM
16-07-2016 07:50 AM
just seen your post. I'd love to be a buddy with you and help each other get through this journey. I will try and private message you. Do you know if your account is set up to do that yet? I ask because several other people don't seem to be allowing private messages. Not sure whether it's because they are new accounts. Anyhow I'll try and send you one now. Love Debbie x
15-07-2016 11:40 AM
Hi All. Seems like there's quite a few of us newly diagnosed with bone mets (last month for me) - am here to 'chat' if anyone feels like it.
Much love and hope to you all.
14-07-2016 12:50 PM
18-06-2016 07:58 AM
Hi. Skippy I have just tried to send you a. Private. Message. But it appears your account. Isn't set up. To receive them. Can you have a look when you get a minute and I'll try again. Debbie
16-06-2016 06:17 PM
16-03-2016 09:44 AM
I hope you have found the Bone Mets thread? If anyone needs to search on the forum there is a search box in the top right hand corner of the page. There is an empty rectangle box with a magnifying glass image in it. Next to that is a drop down list so that you can either search on the board area, which is where we are at the moment, or you can choose to search the whole forum.
Hope this helps everyone
Digital Community Officer