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Lung mets

7 REPLIES
Member

Re: Lung mets

By the way it is under living with secondary breast cancer  (rather than treatments and medical issues)
Hope that makes sense! https://forum.breastcancercare.org.uk/t5/Living-with-secondary-breast/Bone-mets-please-join-in/td-p/...

Member

Re: Lung mets

Hi! This BCC forum has lots of lively threads, in particular the 'bones mets - please join in' thread where lots hang out even if not bone metsers. Or did you mean are we on a different forum altogether? 

 

helen xx

 

 

Member

Re: Lung mets

Hey guys are you all on another forum? Can my find any up to date ones xxx
Member

Re: Lung mets

Hi ladies thanks for your replies 💖 Means a lot. I had a meeting and my onc said they are too small to treat at present so will just keep doing scans. He also said the last tax might do a job in more shrinking. I think the problem too is thinking of more treatment when you havnt done your first lot 😢 Xx
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Member

Re: Lung mets

Hi Tracy, you must be in shock, what a rollercoaster few months. I also have lung mets and bone mets too. I was dx for secondaries Jan16 (primary in 07) and was terrible last year with breathing etc but have improved now significantly - first 2 chemos didn't suit and third is working (finger crossed !). I also have kids, 12 and 15. 

 

Once you are clear on what treatment you will be on, life will become much more bearable. This is the hardest stage but you will get through this and life will be different but in time it becomes normal and children are amazingly resilient. Many lung metzers survive for many many years (ignore any stats you see, they are apparently very out of date) and there are so many new drugs being tested it has to give us all hope. 

 

Whilst being devasted like you, I had a brilliant year last year because I threw everything into living with cancer and not dying of it.  I travelled loads, did tons of wonderful things with my kids and got married. I feel much better and am feel in control of what happens to me and over the next few months you will build up knowledge and feel the same, I hope.

 

Sending love and hugs at a frightening time. Keep visiting the forum - its wealth of information and kindness is priceless

helenxxxx

Member

Re: Lung mets

HI Tracy, sorry you have had to join us but welcome. We can all understand what you are feeling like....the devastation of this news is truly awful isnt it. Like the rest of us with children (however old) its them you worry about most. Give yourself a little time, if you are able, before telling your girls. There is no easy way to do it but you will know when the time is right. Be as truthful as you can and answer their questions honestly. I am telling you all this but i am the worlds worst at doing it. I have just found out that my SBC is genetic..i have inherited the gene from my mum and there is a 50% chance that i have passed it to my daughter. I just dont know how to tell her. I keep waiting for the 'right time' but i know there isnt really one.Maybe we can hold each others hand across cyberland while we 'do the deed' . We are all here at any time to lend support...i dont know what i would have done withot the  lovely ladies on this forum. Please keep posting and let us know how things go. My thoughts and hugs are with you. xx

Community Champion

Re: Lung mets

Hello Tracy
A warm welcome from the forum where there is real people living with cancer. There is always someone here to offer kindness and help ..so feel free to rant and moan ..we have all been there and got the teeshirt.
I'm hoping our lovely Funny Face will be reading this as she has been living with lung Mets for eleven years and is our inspiration to keep going.
I'm afraid I can't help much as mine are still only bone Mets but scan soon might change things !!
Try to focus away from the " c" word if you can by doing something nice each day even if its just a hot chocolate or a bar of chocolate ,walk or mine I'm afraid is retail therapy .....eBay is my best friend !!!
Hugs Carolyn xxx
Member

Lung mets

Hi everyone I was diagnosed in October 2016 with TNBC started treatment in Nov so still have one more tax tomorrow. I found out yesterday's I have lung nodules which are cancer so it's metastasised. I am numb at the moment as still having treatment for primary Bc. I have 2 girls one who's 20 and one who's 8. All along we have said it will be a long year but I'm sure after treatment I will be better. But now this isn't the case and don't know what to say to them. Both my husband and I are devastated and don't know what to do.

Thanks for listening

Tracy x