29-05-2017 05:48 PM
You need to join us on the Flippin awful thread! I get a few aches and pains but nothing that a couple of neurofen can't sort out. That said I still take claritin haver fever pills which I was taking for the bone pain when I was on the GCSF injections.
26-05-2017 06:58 PM
I hope all turned out alright for you. I am in between my second and third Herceptin only infusions after 12 chemo treatments after masectomy on right. I have aquired so much muscle/joint pain it wakes me up at night. I am better when I am moving all day but the morning is like I'm 80 yrs. old. I wanted to know if this subsided for you if at all? I am considering stopping the Herceptin as I have 8 mths (every 3 weeks) to go. I cannot continue with this pain it is debilitating to me. My job is semi physical and I can barely make it into work!!
07-02-2015 09:00 AM
I'm sorry to read you're experiencing such a difficult time at the moment. Whilst you are waiting for the other users to reply with their knowledge do give the BCC helpline a call on 0808 800 6000. Here you can talk through your thoughts and concerns with a member of staff who will offer you a listening ear as wellas emotional support and practical information. Lines are open today 10 to 2pm and weekdays 9 to 5pm.
Best wishes Sam, BCC Facilitator
06-02-2015 03:00 PM
I am soooooo depressed...... Following FEC x 3, Taxol x 12, surgery, radiotherapy, I embarked on a year of Herceptin. That was last September and I have now had my 8th of 18. My Onc told me that Herceptin was 'a breeze' compared to my previous chemotherapy. That was very untrue! In October I started to get boils in my groin, thighs, ears & nose and my palms started to get red, sore spots and scaliness. Three months and many embarrassing, painful boils later, I was referred to a Dermatologist. He said the boils were Hidradenitis Suppurativa which I have googled and its a really horrible disease of pus and abscesses for which there is no cure, only treatment. In my palms and groin I now have itch, sore psoriasis, which is also not curable. It's all really painful and uncomfortable. I am 51 and never had these problems before Herceptin.
Has anyone else had any similar skin problems or has any advice for me? I am contemplating stopping the Herceptin to see if that is what is causing the problem. I am running out of stamina for all this treatment now and just want to get back to some sort of normality. I have terrible muscle and joints aches and pains from the Herceptin too. Sorry to moan but all this just sucks!