22-01-2016 09:27 PM - edited 22-01-2016 09:33 PM
Glad to be here - Rads at Marsden Surrey pm
Can anyone recommend the best or most effective creams to use on breast while having rads?
I'll be increasing the water intake and a gentle walk 3 times per week with light exercises in between. Obviously, I have no idea how I am going to react to rads and I have a full time job - pm appointments seem to make sense in relation to getting extra rest and sleep. It's all new.
22-01-2016 08:13 PM
Someone was recommending a gel filled neck tie/scarf type thing, but the reviews were very mixed. I'll PM you in case the forum doesn't allow specific items/websites to be published xx
22-01-2016 05:02 PM
Sounds like you needed a treat, Brave, I really hope the film and the company hit the spot I've become a tad reclusive, except for family and friends coming here. Must make the effort to get out more....
I think a duvet day is a brilliant idea given what you've been through, Bibi. I have struggled with mornings since my dx and stopping work, but had a good reason to leap out of bed today as we visited our son at uni and treated him to lunch Both my children were born in Surrey and we visit old friends there regularly.
Getting a more nervous by the day about rads, probably because I read lots of older threads on here about side effects.....really must stop doing that! They did give me some ideas and I've ordered a towel that cools whilst wet but doesn't wet the skin and will be getting cabbages because the leaves are supposed to be good for burns as well as engorged, uncomfortable breasts after childbirth. I'll let you know if either or both of them work
22-01-2016 12:53 PM
22-01-2016 12:41 PM
Hi Tat I'm getting there slowly ta, although just couldn't be bothered to get out of bed today. Maybe the weather putting me off, or perhaps I am just a very lazy person these days. I'm at the Marsden Surrey. I used to work at the QE many years ago. xx
22-01-2016 10:50 AM
A warm welcome angelcake. We can support each other even if none of us actually wants to be here! We also start rads on the same day, although I'll be carrying on through to 17th March
Val, I'm sorry to hear your neuropathy has forced the end of chemo for you and you are worrying about what hat could mean. Its just a cr@ppy place to be, having cancer, but when your treatment doesn't go to plan it's such an extra burden. I haven't called the helpline here as my cancer is a sarcoma, not bc, but lots of people really rate the nurses. Why not give them a call and see if they can give you some more info/stats so you can organise your thoughts and hopefully worry less?
How are you today, Bibi?
I'm curious to know where people will be having rads if you are willing to share that info; I'm at the QE in Birmingham....
Hugs to all, tat xx
22-01-2016 02:12 AM
Hi Tat taste in my mouth subsiding but you remarked previously I did not have much of a gap between chemo and rads well surprise surprise they stopped my chemo I have had 3x3 EC and 7 taxol. The periphal neuropathy has got worse just mentioned it to the nurse and that was it. She phoned the oncologist who was in Clinic then I was told thats it no more. You could end up with permanent damage. They had already reduced my dosage of taxol 2 weeks ago. I cannot sleep for worrying about not having the other two doses.
anyway PICC line out next Thursday planning for rads Friday start 15 February. Cannot wait to get it all over with.
good luck with your treatment. Hugs Val
21-01-2016 10:33 PM
I am a Feb reluctant rads starter and had advised to strongly consider having the breast bed, where my tumour laid, zapped with powerful beams. I had CT planning today, start 2 Feb for 15 sessions. Had clear margins all around, DCIS, low to inter; tumour 48mm/55gms weight - "to be on safe side rads." - surgeon says/BCN agrees. After WLE, I was hoping I wouldn't need rads but there you are...it's a reality of a cancerous disease highlighted from a routine mammo. TBH, I shouldn't complain as like some of you brave ladies on here, I haven't had to go through chemo first and I hope not after wards later on in the now new world that I call 'cancer world'. Good luck everyone
21-01-2016 08:02 PM
Welcome aboard, bravescholar . Hoping you are in the 70% whose recon doesn't harden, sounds so much better when you say it that way round 😉
Bibi, hoping you have noticed even more improvements today. And Val, hope the taste in your mouth is improving.
21-01-2016 04:23 PM
Hi all. New to this thread but know Bibi from the August Chemo thread. Hi Bibi! I have my CT scan/plannning session on Monday 25th Jan with a view to starting the first of my 16 sessions of radiotherapy on Thursday 4th Feb. Oncologist ran through everything with me at my appointment with her the day before yesterday. She warned me there's a 30% chance my DIEP flap reconstructed boob may harden - forever. I know it's cosmetic but I'll be really upset if that happens. Still, last stage of this awful journey so the sooner it's over with the better. Good luck everyone.
20-01-2016 04:18 PM
That's great news about your legs, Bibi. It must feel sooo good to know that as you start to feel better this time you won't be going back to chemo for another kicking Rads will knock you back a bit, but with an end in sight, finally. That day can't come back soon enough, eh? Tat xx
20-01-2016 12:16 PM
Hi Arawak Impressed you are working! Like Tat says, we're all a bit up & down, but there's no shame in that (a normal reaction I would say). Feel free to seek our help or have a bit of a moan if you need to. Tat glad you're having a good day. We need to enjoy the calm before the storm. You have a good way with words .... I am definitely a reluctant radiator😊. I can lift my legs today without feeling as if they have a knife in them for the first time since October . Small, but very welcome, advances back towards normal. xx
19-01-2016 10:21 PM
Hi arawak and welcome to our group of reluctant radiators 😉. Working away from home 4 days a week is tough at the best of times, so I really feel for you trying to deal with bc too. I had an mx and removal of pec muscle on 26/11, so we are at a similar point in our recovery. I have good days (usually when there isn't an appointment looming or just gone) and bad days when I am weepy. I can't work because of the nature of my role, and having too much time to fill can be a problem. Today was a good day, so I have spare hugs for you 😀
Will you have to take time off work for rads, presumably your treating hospital is nowhere near your work location if you need to live away from home?
19-01-2016 09:46 PM
Hi everyone out there, came across this thread and at last felt as if I was not alone, Surgery on 1/12/15, rads appoint on 29/01 to plan course of 15. Feeling low, don't know why, still working or trying to., which takes me away from home for 4 nights a week......
19-01-2016 02:47 PM
Wow, can't believe you have to pay for parking while on active treatment Our health trust doesn't seem to give much free compared with the comments others have made, but free parking for rads is a good call. Some reserved parking spaces would be a good idea too as that's often the hardest part of the journey!
19-01-2016 08:31 AM
Thanks. I keep thinking that it should get better soon. That's very reassuring snout the planning, ta. I am pretty numb on the op site from my boob round to my spine, so at least one should be painless. I think I'm having 2, but might be different when i get there. Some places have radiotherapy free parking, but not so at our place. x
18-01-2016 06:03 PM
I do hope you start to feel better really soon, Bibi, and get your strength back ahead of rads. I am grateful I haven't had chemo too, I know it is in a whole different league to rads. I'll keep repeating that mantra to myself - sound advice, thanks
The CT was done very quickly and once they were happy they had me lined up correctly they did the tattoos. I couldn't feel the one on my mx side or on my chest, but I did feel the one on my left side - just like an injection and over quickly. After I got dressed I was shown where my rads will be done and and the procedure to follow. The whole thing was very efficient; my cynical mind says it's because they're not fleecing you for parking while on active treatment
Hope you have someone looking after you tonight, Bibi. Sending hugs, Tat xx