18-11-2017 07:03 PM
23-07-2017 03:44 PM
hi I am not much help as similar to you just been diagnosed with a small tumour and lost of nodules in my pleural lining (first cancer 2004) My original cancer was in half my lymph nodes so I feel extremely lucky to have had the las t 12 years . I think we have to trust that treatments have advanced so much and hopefully they can treat it. I keep saying cancer will eventually kill me but I am hoping for at leats ten years of manageing it. Any time is gratefully recieved. I have not had any further scans yet so it could well be in other places .I will face that when it comes. For now concentrate on wheat you do have a chance of treatment .good luck x
20-07-2017 04:57 PM
Hi Temmuz, so sorry to hear about your diagnosis,it is scary I understand completely. I have metastatic breast cancer, this is 4th time. I started in 2008 with masectomy, radiation and chemo, then following year it went to my ovary so had another op, more chemo!! Then last year it showed in my adrenal gland and now i have spots on my liver, been for scan results today and more spots on my liver and tumours have increased,very scared. I am now starting chemo next week,not looking forward to that as had chemo twice before.
Keep us in touch how you are going on, this is the first time i have been on here.
Take care,lots lovex
20-07-2017 03:36 PM
20-07-2017 02:15 PM
17-07-2017 06:13 PM
06-07-2017 07:25 PM - edited 18-07-2017 01:43 AM
Hello Temmuz, I had responded to you the other day, but I see it didn't make it here. I had posted like Ramade That when you have a long time between primary and secondry it us usually slow growing. This usually means you will be here quite awhile . My primary was in 1995 and my secondaries in lungs in 2005! I'm almost at 12 years! I wish you the best FF
06-07-2017 10:48 AM
Dear Temmuz, I feel for you, I know we all do. In your favour you went a long time between cancer so that is good, also you have been told it is not aggressive. Try to take one day at a time at the moment. There are lots of treatments, some work well, some not so well, and always new ones on the horizon. There are wonderful, kind and knowledgeable people on this site and you can learn such a lot here.
hugs to you xx
05-07-2017 10:45 PM
03-07-2017 11:55 AM
01-07-2017 11:46 AM
Hi ladies! Actually I am really sorry to write this post but also happy to find a community of us here.
I had my primary breast cancer in 2006.It was stage 2 and no mets or lymph node involvement.I was cured with radical mastechtomy,chemo and radiotherapy.Everything was well.At first I had controls per 3 months,then 6 months and last five years they were per a year.Everything was well.
In September 2015 my tests showed elevation of CEA.My onc immediately arrange a PET/CT scan for me.The results were clear.Than I kept being tested for my tumor markers every month.3 months later CEA was still elevating.My onc wanted another PET/CT scan and nothing had been found too.
Because my son was a 4th grade medical student at university,he wanted to check my tumor markers periodically.During this period with my onc's advice, I had 2 colonoscopies,1 endoscopy,1 complete CT and 1 pelvic MRI.NOTHİNG,nothing was there.Because my son was too worried about situation we never gave up checking my body.But this time period was a really challenging and destructive for all of us' psychologies.Even my onc started to think there is nothing malignant in my body since I had 'zero' symptoms.We decided to having TM tests for every 3-4 months not for every.
Finally at the beginning of this June(2017) my CEA level was extremely elevated with a moderately elevation of CA-125.(I just have a back pain for 3 weeks) I immediately had a PET/CT and that was it.I had bright spots in my thoracal lymph nodes,my lung(lots of milimetrical nodules),and my spine(especially L4-L5).And also there is a minimal pleural effusion in my left lung.I had a chest biopsy and the result was Secondary breast cancer.
According to pathology results my tumors situation was:
Estrogen reseptors:%100 (+)
Progesterone reseptors:/20 (+)
Proliferation index:%30(my onc told me this shows my tumor is not an aggresive one)
I am waiting for HER2 results before my treatment.
I just feel myself awful.I feel it is in every site of my body and I feel like it is late for me to recover.I have a daughter of 14 and a son of 23 who is a 6th grade medical student.
I am afraid ladies,afraid of leaving my children alone (