12-08-2018 10:48 PM
11-08-2018 10:15 AM
09-08-2018 09:23 PM
09-08-2018 08:06 AM
Do you feel good enough for running between treatments? The first week after chemo I don't really have a lot of energy but I seem to be ok the 2nd week, I hope it will continue this way!
Yes I'm going for bloods today... fingers crossed!
Everyone I've spoken to says that EC is much worse than Taxol so even if it does get a bit worse it's only 2 more sessions and then it will get better! You're already halfway through the worst bit
I've signed up for counselling, starting in about a week so hopefully they can get me through it once it really starts 'hitting' as I am worried about that as well. Have you looked into counselling yet?
I hope you can take advantage of feeling relatively normal the 3rd week, have you got anything nice planned before your next chemo?
08-08-2018 11:13 PM
08-08-2018 10:22 AM
Hi I feel fine this week, have been to the gym and running, trying to get back to my pre pregnancy fitness! Got my next chemo this Friday, I think yours is next week Friday right? How do you feel now?
I still didn't get the genetics test results did you? I need to chase them again...
I haven't discussed monitoring yet but I think you're a bit ahead of me in the process as you've had surgery already right? I will need a mastectomy after chemo which will hopefully be just before Christmas so I still have quite a long way to go.
Do you have any side effects apart from the hair loss? Hope you're doing ok!
05-08-2018 11:19 PM
05-08-2018 10:54 PM
02-08-2018 04:40 PM
Sorry for the late response...I was in a bit of a state because I was stressing about the zoladex and couldn't get hold of the oncologist or the breast nurse, turns out they're both on holiday this week!
So I'm going to have to wait until next week to speak to someone which is not ideal... But I actually got my first period today since pregnancy so I just hope that means it's not too late yet!
My hair is falling out fast now, I have some bald patches on my head but I'm not quite ready to give it all up yet so I'm wearing caps or a head scarf and just hope I'll have enough hair left to get away with it. Taking a shower is depressing enough seeing so much hair going down the drain...
I'm also hopefully going to start counselling next week because a colicky crying baby just makes me cry every time she cries!
How do you feel now? I think I'm generally ok apart from obviously the hair and my gums are really sore. I even tried going for a run but the port was moving around so much under my skin that it was really uncomfortable. . might try to do a bit of cycling at the gym this weekend
30-07-2018 08:37 PM
29-07-2018 09:37 AM
Hhm I'm a bit angry now that nobody mentioned zoladex to me, and worried it's too late to start now! I'll call the nurse first thing tomorrow see what she says.
Yeah so when I was at the hospital for bloods on Thursday they told me children are not allowed so I didn't actually bring her with me! Luckily my husband could work from home so my sister could still come with me.
I didn't sleep so well these last 2 days, nausea seems to be worse during the night and it's hard falling asleep again after Ellie's night feeds. Have you been sleeping ok?
I'm sure you'll look great with the wig and at least it's not so hot now that it will get all sweaty and itchy! Is it comfortable to wear?
28-07-2018 09:52 PM
28-07-2018 01:59 PM
So 2nd chemo done and finally it's cooler which I think helps. Using the port was fine and they put a new dressing on it and told me to come back on Monday to have a look at it. Bit of nausea but nothing too bad. How are you? How did it go?
Have you heard of a drug called zoladex? Apparently it can protect your ovaries but my oncologist never mentioned it to me! I wonder if it's too late now and i couldn't ask him yesterday because he's on holiday
I've noticed quite a bit of hair falling out but you can't see anything yet. Are you using the cold cap? I'm really hoping I will have enough hair left so I don't need a wig! I've started wearing wide running headbands which hides the fact that I've stopped washing it and should also hide bald patches on the top. Plus it keeps my head cooler in the heat!
26-07-2018 08:42 PM
25-07-2018 09:33 PM
My neck feels a bit better today fortunately but because of this bloody heatwave the dressing is so itchy! And I'm supposed to keep it dry which is very difficult if I'm a sweaty mess the minute after stepping outside! I think they did say they can use the port on Friday but hope they will just remove the dressing if it's not bleeding or weeping?
I need to go for bloods tomorrow and also really hope I'm ok for Friday! Did you get your results yet? Fingers crossed!!
Aww I'm sorry you can't take your little boy with you but at least your husband is with you and it's nice that you have family close by and they can babysit.
At least from Saturday it should be a bit cooler as this heat is horrible enough as it is without feeling a bit rough after treatment!
My sister is going to babysit tomorrow night so that me and my husband can go out for a nice meal for the first time since Ellie was born! She's been very grizzly today as she had her first vaccinations and it breaks my heart to see her in pain but it will also be very nice to have a baby free meal for once and spend some quality time with my husband!
24-07-2018 10:29 AM
23-07-2018 05:24 PM - edited 23-07-2018 05:26 PM
So the port is in, it's a bit painful but not too bad, just feels very strange and the skin over it feels very tight.
I'm glad my mother in law is here today as picking Ellie up and having her against my chest feels uncomfortable, hopefully it feels better by tomorrow morning. How did yours go?
We've got some family in Canterbury but I've never actually been there, I've heard it's very nice though!
I love living in Guildford, it's such a nice town. Did you like it when you were here?
Yeah you're right, they did give me some contact details for counselling but so far I've been putting it off as I didn't think I really needed it....i guess I should try it anyway as it won't hurt and it might help dealing with all this!
So this Friday I'll try taking Ellie with me to hospital, my sister will be with me as well so she can help with feeding and changing during the chemo, I just hope she won't have a massive crying fit while we're there! Do you take your little boy with you or do you get someone to babysit?
22-07-2018 06:06 PM
21-07-2018 07:42 AM - edited 21-07-2018 07:44 AM
They didn't even give me the choice between the port and picc line but from what I know a port is much better.
I'm in Surrey (Guildford), what about you? It's nice that we're close to Gatwick and Heathrow so that family can get here easily.
My sister has met Ellie once already but that was just after she was born and she's grown so much since so it's nice that she's coming again even if the circumstances are not great this time!
I'm not actually sure they've done the genetics test yet....I was going to get it done privately and they've sent blood for it but then my insurance said they won't pay for it so I'm trying to figure out now if the NHS can pay for it or whether I need to do it again on the NHS!
Ok I'll ask my oncologist about this additional drug because if it helps I want it as well! My mother died of breast cancer 28 years ago but never got tested for the gene so there is a significant chance I've got it as well.
Do you get scared sometimes? I'm generally coping ok but couldn't sleep last night and just kept thinking about what if the chemo doesn't work? What if the cancer spreads and I die and leave my husband on his own with our little girl? Scary thoughts....