Oh Unicorngirl - How are you getting on? I didn't thank you for your hug and concern. I'm so sorry and thank you for it flower. Am a bit better last few days. Been getting out and about a bit more (escaped). Had a meal out and lovely evening with my Bezzie last night. Hadn't seen for a year due to me being mentally out of commission, so had a lot to gas about.
Your poor bums !! Is that TMI?
Snoozy - Glad you got things a bit more sorted appointment wise, plus that you aren't feeling so pressured. I'm sure your surgeon will fill you in on some of it, before your plastic surgeon appointment. What did your daughter cook last night. Awwww, what a flower. Why don't you contact whoever organises the Look Good Feel Better course and ask them if it would be okay, rather than feel you might be pushing someone nose out?
Am off for a very early night - no sleep last night and my eyes are going already.
Keep kicking you girls. Gently, until you get your strength back.
Lots of love, Delly xxxxxxx
Sorry girls, been having techy probs with b/band so haven't been able to log on last few days. Felt like my arm had been cut off. But thats all trivia compaired to what you two are going through.
I'm okay thanks unicorngirl, just a bit of a blip. I often have nights, sometimes two, where I don't sleep, just don't get or feel tired. All part of the Bi-P symptoms. No, your not being nosey - you're being caringly enquiring, thank you lovey. Just need to feel I'm in a more stable position to go have another appointment with surgeon, then be able to maintain it long enough through to a surgery date, how ever many weeks following. It's the maintaining it that's often the prob. Your mouth probs sound awful, and the rest of. Think I'd rather have the 2 x bottles and massive bag of crisps anyday. You poor girls.
Snoozysue - I think you're doing amazingly well. Yey! on the wig. It really sucks for you lot, this chemo lark - extra tough stuff. You're gonna have to pull your finger out and have some serious discussions about your surgery options, if you're feeling so uninformed, darlin, preferably with surgeon, or at least go have a sesh with your BCN. Get all the gen, and take someone with you to take it all in as well. I've mentioned nipple options to you, but you need that direct surgical info on what options YOU have. The more info you have, the more informed a decision you'll make. You seem to keep fobbing it off and there's no point really discussing it with your BF, if you're not fully informed of what your options are, is there?. Or perhaps you can have THAT discussion with your surgeon on the 15th? Have you been given a date for your actual surgery yet?? Please don't tell me it's the 15th, is it? If you don't feel informed on mastectomies and nipple recon, and haven't been given it - please go get/tell these people you need more info, sweetheart. You're not asking for anything out of the ordinary, or demanding. But am guessing your head divided in so many different directions with having young kids to look after, along with coping with all of this sh*t as well!!
No darling, No exp of chemo or Picc lines at all, but there are loads of girls on the chemo threads who have, because of the same vein probs. I don't have any probs with needles Susan. Have you previously looked into any of the chemo threads from your time with it before??
I wanted immediate recon and only ever wanted implants, which my initial surgeon was more than happy to do with my first boob. But I had a change of surgeon, recommended by my BCN, who was more up to date with self tissue recons and a very skilled surgeon. There was a bit of a mix up with what procedure I wanted i.e. not self tissue, just implants. I had smoked which the original surgeon didn't have an issue with and implant surgery, but the second did, thinking I was wanting self tissue and the circulation implications when connecting up tiny blood vessels. Basically, if I'd stayed with the original surgeon, I'd have had the immed implant recon. I've never had a healing issues, nasty gashes to legsetc. my masts scars healed up in a couple of weeks without any probs, a major knee op healed quickly and well. I just put it down to a miscommunication of what I was actually wanting - basic implants. So make sure you bash ALL the info out, and get it straight.
Hey, you're not at all rambling. Please don't ever think you are. You're both having such a tough time of it, I'll say. Am impressed with your eldest daughter.
How was your romantic early Valentine meal??
Hope you're both having a better day today?
Lots of love to you xxxxxxx
Hi girls, sorry I have not been back to update, been feeling a bit sorry for myself, and trying to get the kids and house organised before I start treatment. Hope everyone is well. I start chemo tomorrow, I'm getting 6 cycles of docetaxal and carboplatin. I had 3 cycles of docetaxel last time and it hit me hard, so not looking forward to 6 of them. I had bad bone pain last time and lost sensation in my fingers, so might not make work as much as I would like to. Then after surgery I get a year of Herceptin, yay 3 weekly treks to the hospital for a whole year after!
And who wants chemo on a Friday? That's wine day! I was ok about it until I realised my last chemo is the day my daughter comes home from school camp in May, and I won't be able to meet her off the bus. That set me off with my 1st proper cry after my diagnosis. It's the small things that do it.
So anyhoo, have appt with surgeon on 15th so have until then to decide about mastectomy. I've discussed it with my bf who says he's ok with it, but it's me who is stalling. We have only been together 5 years so nipples still play a big part in our relationship, which is the reason I didn't want to discuss it with my mum, shes gets all flustered . I just wish I'd been given more info on mastectomies, but I guess I will have time to do some research while I'm off next week, have taken a few days off to see how treatment goes.
How's everyone else doing? I've decided not to cold cap so chose a new wig this week, gone for a nice blonde highlight job, completely different for me, and much cheaper than the real thing would be in the hairdressers
Big hugs to you all