Member
Posts: 297
Registered: ‎04-03-2016

Re: BC in other breast within a year of 1st diagnosis

Hello snoozysuz
I have been 2 years clear since my last lot but agree I know what to expect now! I had FEC-T first time round but this time as I’ve gone from triple neg to triple positive I will be having TCHP which is Taxol, Carboplatin, Herceptin and Perjeta
Started well and just about to start the first lot- I’m being told I’ll be here for at least another 6.5 hours after being here since 9 this morning so my bag I’ve bought of goodies should feed the ward 😂
Member
Posts: 44
Registered: ‎21-09-2016

Re: BC in other breast within a year of 1st diagnosis

Warcol good luck with chemo, I did the same, ate all the food I knew I went off with chemo 1st round. What chemo are you having? I know everyone is different but I found it a little bit easier going 2nd time round, don’t know if it’s cos I knew what to expect or if it’s because I was so determined not to let it break me again. Maybe it was because I still hadn’t fully recovered from the last lot so I’m still so tired all the time I didn’t notice a difference lol. Big hugs to you anyway - you go girl xx
Member
Posts: 297
Registered: ‎04-03-2016

Re: BC in other breast within a year of 1st diagnosis

Glad the op went well Snoozysuz! I’m having a pip interview Thursday which should fall in line with my chemo side effects so fingers crossed

had a blow out with food and drink today as starting chemo tomorrow so made sure I tasted everything today 🤣

have a good week everyone Colista xxx

Member
Posts: 44
Registered: ‎21-09-2016

Re: BC in other breast within a year of 1st diagnosis

Hi girls, op went well, still a bit nippy. I was in hospital for 5 days but actually quite enjoyed my stay, I was the youngest one there but quite enjoyed the company of the old dears in there. I got sent home with my drain which was horrible as I didn’t like moving about with it in. Got it out yesterday but I’m still leaking, my wee girl is helping me change the soggy dressings. Hate the feel of my boob with the deflated implant, can’t wait till they start pumping me up. Still got my nipple too. At the moment it looks like Sloth from the Goonies 😂.

I got PIP but not actually sure what I’m getting as money in my bank but not had a letter yet. It’s not a huge amount if it’s backdated so assuming I didn’t get full amount. Still think cancer sufferers should get full amount regardless!

Anyway how is everyone else doing?xx
Member
Posts: 209
Registered: ‎11-01-2018

Re: BC in other breast within a year of 1st diagnosis

How did your surgery go Susan? Hope you’re feeling ok?

I hope your results were good warcol 🤞 xx
Member
Posts: 44
Registered: ‎21-09-2016

Re: BC in other breast within a year of 1st diagnosis

Hey girls. Aw Unicorngirlmummy I’m so sorry. Why can’t they operate. I hope they manage to find a solution. Big hugs and thinking about you.

Haven’t found out if I got PIP yet, could take up to another 4 weeks. I hope to god I do tho as been signed off for another 3 months. The interview wasn’t as bad as I thought, don’t know if that’s a good thing or not tho.

I’m bricking it for tomo, I am such a woos. I just hate the anaesthetic and worried what I’ll be like when I come round, and how I react to what’s left of my boob.

Why us, it’s just no fair.

Hope everyone else is good and enjoying the sun despite everything we’re going through. Big hugs to you all xxx
Member
Posts: 209
Registered: ‎11-01-2018

Re: BC in other breast within a year of 1st diagnosis

Good luck for surgery tomorrow Susan, I hope you’re feeling ok. Let us know how you get on xx
Member
Posts: 209
Registered: ‎11-01-2018

Re: BC in other breast within a year of 1st diagnosis

Evening ladies, how is everyone?

Did you get awarded the pip Susan?

That’s awful to have to wait so long for your results warcol 😐

So yes, mine is back for a 4th time! It came back 6 weeks after surgery. My surgeon can’t operate so I’ve been referred to another hospital to see if a surgeon there can operate. If not, then a referral to one of the London hospitals.

I daren’t cry or I might not stop! But yes, it makes you very emotional!

Hope everyone is ok xx
Community Champion
Posts: 7,664
Registered: ‎29-05-2015

Re: BC in other breast within a year of 1st diagnosis

Yes I got awarded PIP -the whole process is pretty unpleasant but Im very glad to receive it as I lost my job due to all the physical and mental health fallout .Snoozy -don't Hoover your house and blub away - they really are judging you on what they see and you need them to see you on a bad day .
Community Champion
Posts: 7,664
Registered: ‎29-05-2015

Re: BC in other breast within a year of 1st diagnosis

So sorry you got bad news Warcol - fingers crossed for your scans 🤞🤞🤞🤞.
Member
Posts: 297
Registered: ‎04-03-2016

Re: BC in other breast within a year of 1st diagnosis

So today has not gone as planned Its spread to lymph nodes 😢 so now got to have PET\CT and bone scan to see if anywhere else and terminal or whether it’s still curable!! Will see oncologist on 2nd July as gonna have chemo first before they remove all nodes as grade has been upped from grade 2 to grade 3 as it’s
More aggressive than first thought so no need to have oncotype test now x more anxious waiting and heads thinking all sorts 😢
Highlighted
Member
Posts: 44
Registered: ‎21-09-2016

Re: BC in other breast within a year of 1st diagnosis

Hi girls, hope your all well. My surgery is booked for the 4th July and I’m bricking it, but kids are away with their dad so timing is good. After much tooing and froing im going for a single mastectomy with expander recon. I was getting the double but surgeon suggested not having recon till next year but I just can’t do it. It might be fickle but I need boobs. If all heals well I’ll get the right boob done later in year. I want to be recovered next year and put all this behind me, not be having more surgery and be off work again. Chemo is all finished and I’m not too bad but oncologist doesn’t want me going back to work in case I pick up an infection and have to put surgery back.

I have my PIP interview next Tuesday and they coming to my house. Don’t know whether to do the housework or leave it so they see how I normally live. My fingers are so bad with the neuropathy everything is a struggle! I’m dreading it tho, I’m such an emotional wreck just now I’m scared I blub my way through it!

I’m just glad the school hols start in a fortnight so we can chill and I don’t have to get up early. Just back from my daughters end of year show and yip, I cried. Can only imagine what I’ll be like next week when she leaves Primary school for good. Is anyone else an emotional wreck?
Member
Posts: 297
Registered: ‎04-03-2016

Re: BC in other breast within a year of 1st diagnosis

Hey ladies
Apologies it’s been all go! I had MRI after much chasing and got results week later! Tumour was 2cm and they said they still believed nodes to be clear! I had WLE week later and sentinel node biopsy (that was 2 weeks ago) my arms this time has been painful and my scar keeps bleeding! Each week I’m being drained of 50ml! Tomorrow is my results day to see whether clear margins and clear nodes so bricking it a little as I’m convinced my node is infected! It will obv depend on results on what happens I.e whether I need further surgery or whether I go onto chemo!

After doing some research I’m also going to ask for the oncotype test to see whether chemo will be of a benefit so that may delay things but I think if my nodes are positive then I’ll not bother and move straight to chemo!

Why is there so many decisions to make and why do we always have to wait for what seems forever

Keeping positive Unicorngirlmummy and Jill have you heard re PIP as I’ve just applied and due to chemo brain from 1st time around I’ve forgotten to attach any letter etc! Haven’t heard anything myself but been told the interview is awful 😘
Member
Posts: 209
Registered: ‎11-01-2018

Re: BC in other breast within a year of 1st diagnosis

Evening ladies, how is everyone? Have you had your surgery yet Susan? I hope you’re feeling stronger?

I’ve been back at work 4 weeks. Found another lump after 2 weeks, they think it’s an internal stitch or scar tissue, the ultrasound doesn’t show anything so they’ll just monitor it. It’s nice to be back at work as it makes me feel like me. Typically my next CT & oncology appointment fall on days I have courses on, sometimes feels like as hard as I try to move forward, the obstacles keep coming my way!!

Hope you’re all ok xx
Member
Posts: 44
Registered: ‎21-09-2016

Re: BC in other breast within a year of 1st diagnosis

Hi girls, good to hear from you Delly, hope you’re doing ok, Warcol how are you doing? And Unicorngirllass what’s the news with you? Are you getting more treatment?

I had my final chemo yesterday, it was supposed to be last Fri but for the 1st time it was postponed as my red blood count was low, which explains why I’ve been feeling so tired. The downside is it’s bumped my Herceptin schedule which is every 3 saturdays until Jan, so I’ll miss my chemo buddies that I’ve made.

Saw my surgeon and plastic surgeon on Mon. He is trying to book a theatre for a 10-14 hour op in the next 4 weeks for the double mastectomy. But it might not be in the hospital I’ve had all my treatment which I’m upset about, it’s further out and I’m worried I won’t get visitors. If he can’t he just wants to do the one boob and the other in a few months which I don’t want. I need to get back to work I’m skint, I want it all over and done with. So he’s given me another option, instead of the flaps op from my back, he’ll put expanders in which get inflated every month until I’m happy with them. There is a 1 in 3 chance of failure tho due to radiotherapy last year. I’m also now getting to keep my nipples but there will be no sensation which is fine, but at least they will be there.

So still more decisions to make. Honestly chemo is the easy part. At least with the expanders I’ll have less recover and no scars on my back, and if they do fail we can then do the flaps surgery as a back up.

Hope you girls are all doing ok, looking forward to hearing your news. Big hugs to you all xx
Member
Posts: 1,993
Registered: ‎03-09-2014

Re: BC in other breast within a year of 1st diagnosis

[ Edited ]

Hey girls
Thanks for asking. Apologies, haven't checked in on yers for a while, but am still here.
Snoozy - that's such brill news on your tumour shrinkage. You, my dear, are such a "Queen". I love Unicorns praise of you, so justified. Oooo-errr Unicorn, on shared images of your bum and flapping gown!!!
What's the latest on you all??
Much love to you all xxxxxx

Member
Posts: 209
Registered: ‎11-01-2018

Re: BC in other breast within a year of 1st diagnosis

Hey Susan, how are you getting on?
Warcol, how are things with you? Big hugs xx
Member
Posts: 44
Registered: ‎21-09-2016

Re: BC in other breast within a year of 1st diagnosis

Well had my scan, still not the right boob!! Have requested again just for peace of mind. On the plus side the tumour in left boob is now 5mm down from 13mm on 6 April. I just don’t understand, they say they don’t want to scan right breast too often yet left breast been scanned 5 times this year alone.

Anyway hope everyone is doing ok. Delly you’ve been very quiet, hope you’re doing ok xxx
Member
Posts: 209
Registered: ‎11-01-2018

Re: BC in other breast within a year of 1st diagnosis

Sorry you’re having such a tough time Susan. Blimey, 2 stone, well at least there’s a good thing to come out your scumbag ex doing what he did. More fool his new girlfriend for taking on someone who can do that 😡 I hope you have some luck with the pip and fingers crossed for fridays scan. My remaining breast gets pain but I’ve had a mammogram and ultrasound and thankfully they were normal. I’m seeing the oncologist tomorrow so I’ll find out more then 😬 Warcol, I hope you hear soon about your MRI, all the waiting really is the worst part, that constant hideous feeling in your stomach. I remember my MRI, kneeling with my bum in the air, gown flapping around trying to lower my boobs into the square cut outs! Not a pretty sight! 😂 Big hugs xxx
Member
Posts: 44
Registered: ‎21-09-2016

Re: BC in other breast within a year of 1st diagnosis

Warcol - Hope your coil removal wasn’t too uncomfortable. I wasn’t supposed to get an MRI scan but my liver scan was inconclusive so I got one on the end. Was a bit of a relief actually as I was so scared it had spread but I was lucky. I started chemo just over 3 weeks from my 2nd diagnosis, I can’t fault my cancer team really. My only complaint is I asked for my right boob to be checked again and it kept getting missed, my boobs are out of sync with scans but going on Fri finally. I’m just paranoid that after the 2nd diagnosis something might be lurking.

I also never applied for PIP last time but thought I deserve it this time. Got a txt back today that they have my form, now the decision as to the dreaded interview. You would think cancer would be automatic.

Hope your hear about your MRI soon xx