Hi I just been told got secondery in nodes after triple negative no other spreas hat all scans nodes very small one under arm other side of original masectomy and 2 bottom of neck same side as masectomy bue to start gem carbo Friday
I'm in a similar position, diagnosed with primary tnbc in Sept 2015, I now have secondaries in liver, lungs, bones and lymph system. Currently on gem/carbon. No idea if it's working yet, too soon to tell.
Good luck all
Diagnosed March 2017 with TNBC.
Had FEC-T Chemo but on 4th cycle had local spread so Carbo was added in.
Had Mastectomy Sept 2017.
15 rads November 2017.
Risk Reducing mastectomy Feb 2018.
Routine oncology appointment resulted in a CT, MRI's to my brain, neck, spine, liver.
April 2018 diagnosed stage 4 with mets to liver, spine and lungs.
Done 3 cycles of Capecitabine.
CT scan last week shows lungs and spine stabiliased but a new lesion has appeared in my liver.
Tomorrow i start Halaven/Eribulen.
Looking for positive reports on this chemo drug, especially for the liver.
Thank you x
Hi hellyhead....what was the outcome? Have heard good things about pembrollyzumab, but not tn myself.very best wishes for you.
Hi Jilly, Just wanted to mention that each time a chemo has failed me....it’s been after a break, the bc changes it’s dna and then becomes resistant to the drug, I was doing fine on Cape until I took two weeks off to address my cellulitis.....honestly I’d try not to take breaks......canceracts like a virus and becomes resistant.
’’’best wishes for you tho, love and hugs.
I know others have taken breaks and will disagree with me...but it has happened three times to me so far...,so something to think about....I wanted a weeks break this time on Paclitaxel but onc was reluctant...said he’d rather lower the dose if need be,
ps your private messaging hasn’t been activated yet....speak to the moderators xx
I thought I'd come and join you all...I'm back on Eribulin next week after a 14 month chemo 'holiday'.
I have triple neg secondary BC which has chosen para-aortic lymph nodes this time round.
Yes, our treatments are quite different to the oe pos ladies.
My cancer has changed back and forth over the years from oe neg to pos and then back to neg, so I've pretty much tried most drugs, and now I'm hoping Erib will work again.
Its nice to have support here,
I am so sorry to hear this, I have just finished treatment for triple negative breast cancer and I am so scared!
I feel like I am alone now and just have to get on with it while others get to take Tomoxifen or Herceptine to cover them
How did you find out that you had cancer cells in your chest bone?
Thanks Annie, it's nice to get a reply, do you have triple negative bc too and if so how long have you had secondaries. Hope you don't mind me asking it's just that there doesn't seem to be that much activity on this board for triple neg ladies. I picked up my cape this morning so back on it tonight, just hope it works again. What treatment are you on for lung mets? Thanks for the hug - much appreciated.
Hi Jilly, sending a big hug. You must be feeling a bit low, but if the medics can hold it at bay once then I'm sure there are more tricks in their goody bags to help you. I've got lung mets and my Onco said just that. Science is moving so rapidly that us secondary girls have got good fighting chances now. Thinking of you. X 🍀💐🍷
Hello, this is my first posting on the sbc forum so hope I'm doing it right. I'm feeling a big low today after my trip to see onc. I was diagnosed with metastatic tnbc in Feb 2016, with extensive spinal mets. I've been on capecitabane since Dec 2016 and have seen my tumour markers steadily falling. However just had a 7 week chemo break to go on holiday and cea marker has gone back up from 9 to 37. Got to have a ct scan to see what's going on. Feeling rather deflated.
Well, have been browsing this thread and realised that it has only recently been resurrected from last year and there have only been 4 posts this year so not very busy but here goes anyway...
Movetothecountry, hello, I wonder what you decided to do?
I am meeting a trial researcher in Glasgow on Thurs to discuss entry to a trial as my first line of treatment for TN recurrence in a chest lymph node and lung. Exactly the same as you, it is delaying start of standard chemo which would be carboplatin and I could have been on it already.The trlal is for Pembrolizumab, which hasn't been approved for breast cancer yet but is used for lung cancer and melanoma. My tumour has been compressing my main vein to the heart, and I had a stent put in on Weds last week to protect the vein to give me time for any drug treatment to start working. I had 5 shots of radiotherapy to the tumour in June which helped for a few weeks but then the vein obstruction symptoms recurred hence the stent insertion. I'm pretty alarmed that I had this tumour diagnosed in June (although it's been there a lot longer!) and am still waiting to start any chemo/drug treatment - and worried by the length of time a trial drug might take to give me any tumour shrinkage - if it does at all! But of course there is no guarantee that the carboplatin or anything else will work either and the oncologist's feeling is that if I run through several chemos first then I might well be too ill or my disease too advanced for the trial, so they are recommending I give the trial a shot first.
It's a really tricky one tho isn't it. The questions I want the answers to are whether the trial drug will give me longer survival and better quality of life than normal chemo.... but no one can answer that I guess and statistics are dangerous things! I hadn't heard of your trial drug Olaparib. I haven't as far as know been tested for the BRCA mutation.
Be interesting to hear from anyone else in trials for TNBC or facing these choices.
All the best, Helen