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Triple negative secondaries/ recurrences

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Re: Triple negative secondaries/ recurrences

Hi Tatyana my breast care nurse did say if you don't hear nothing from her take it as good news and my onc as got me down to finish my cemo surely she would have had me in by now if there was anything feel so well and at least my liver ok hey I'm having a chilled out weekend cemo to mix normally sat but my oncolegist couldn't get me in coz it's double dose xx
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Re: Triple negative secondaries/ recurrences

Hi Pinkaboo, it sounds like you are doing well on gemcarbo, fingers crossed it is working for you! I'm on my sixth cycle,they only said six, I had a scan last week and get the results on 7 Nov, then we'll see what happens. This time, my haemoglobin was very low but they gave me the gemcarbo anyway, and a blood transfusion a few days later, which did the trick. But my neuts were still too low to have the gem on day 8, so that's been delayed by a week. It's been one delay after another and I'm down to 70% of the original dose. But I am living my life in between times. Going to see my mum in the care home today, it's her 96th birthday, not that she knows, sadly! This evening we're going to some old friends for dinner, lovely people rearranged it at a moment's notice because of the change to my chemo day. Really looking forward to some nice food and a good gossip! Hope you are having a good weekend.xxx
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Re: Triple negative secondaries/ recurrences

Forgot to say had to miss gem coz my plattlets low this is the second time I've had to miss it but never the gemcarbo x

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Re: Triple negative secondaries/ recurrences

Hi tatyana had to have picc line in for rest of my cemo 2 more cycles to go had ct scan two weeks ago the lady that did the scan said I had a extremely healthy liver no news yet but fingers x it's doing its job coz my oncologist as ordered rest of my cemo to go ahead how you doing wish I could stay on this cemo forever as we have nothing else xx

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Re: Triple negative secondaries/ recurrences

Hi unable to have gem on Saturday due to immune being low rang secratery and told her I didn't want to miss is so now got to go and see my onc tomoz for review is this normal
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Re: Triple negative secondaries/ recurrences

Silly to ask but how do you no if gemcarbo is working had a feel of my nodes and carnt feel anything feel well just worried there is nothing else or can we stay on some form of cemo 

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Re: Triple negative secondaries/ recurrences

Hi Pinkaboo, I'm on my fourth cycle of gemcarbo so I'm not far ahead of you. Only slight hair thinning, which is a great relief! I've had several delays due to low blood counts, but now they've reduced my dose a bit so hopefully this will get the balance right! Recent scan result was stable, which is good. Hope your blood holds up well, but if you do get delays, don't worry,it seems it's very common with this combo and they just work around it.
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Re: Triple negative secondaries/ recurrences

glad the bloods are good Pinkaboo,

I'vejust finished 6 cyclesof Eribulin and awaiting scan results

xx

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Re: Triple negative secondaries/ recurrences

Just finished my second cycle of gemcarbo and fingers crossed only a tiny bit of hair loss putting my bloods through it this cemo but this last cycle as been spot on with bloods as anyone been on this combo long term
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Re: Triple negative secondaries/ recurrences

hi Pinkaboo,

 

Secondaries started two years ago. At the start it was also in my liver but the initial chemo cleared it, and now just ('just'! hahaha) in nodes.

xx

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Re: Triple negative secondaries/ recurrences

How long you had it in nodes hun at least we got it no where else fingers x
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Re: Triple negative secondaries/ recurrences

hi Ladies,

 

TN too, in para-aortic nodes.

I'm on Eribulin, next scan mid September.

 

We keep plodding away don't we!

x

Member

Re: Triple negative secondaries/ recurrences

almost didn't have my cemo last week ammune system a little loo but small prise to pay if it sorts these nodes out and hope it keeps them from going on the move xx how are you doing xx

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Re: Triple negative secondaries/ recurrences

Cemo going ok anyone out there finished there cemo for secondary to nodes triple negative worried bat after treatment is there anything for us or can you stay on cemo
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Re: Triple negative secondaries/ recurrences

Hi having my second cemo tomoz gem only how long does this take x felt a little tired after 1st lot but not to bad is there anyone out there that have the same and how long you had them just nodes all other scans clear xx
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Re: Triple negative secondaries/ recurrences

Hi Ru had my cemo all ok a little tired but feel great hope it zaps these nodes and stops them in there tracks how you doing xx
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Re: Triple negative secondaries/ recurrences

Well had my first gemcarbo feel ok little tired but that could be being there most of the day
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Re: Triple negative secondaries/ recurrences

Got told I won't lose my hair now been told I could help x
Ru
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Re: Triple negative secondaries/ recurrences

I hope so too. All the best for Friday Pinkaboo69 drink plenty before. We can do this x
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Re: Triple negative secondaries/ recurrences

Hi I have had carbo b4 and I was ok just hope I can do the combo just hope it does the job dam you nodes x