good to hear from you...yes......we must expect more time xx
my primary was 2001, with 12/13 lymph nodes...bc affected......bc returned in 2013....liver and bones.
i know it's hard not to feel that trickle of fear at the back of the mind.....but there is so much more in our favour these days. Moijan xxx
Juma- there is a drug you can inject, which will boost your white cells and help against infections as a result!
gcsf or filgrastim...you could ask your onc. Xx
I know exactly how you feel Happy, bone met found responding to chemo when rescanning to check lung nodes (which are benign) Shocked at diagnosis but relieved it’s been found now. Having said that, I am still finding it difficult to come to terms with, and feel completely out of control at times.
6/8chemo done, then another scan and breast surgery. Haven’t seen the surgeon yet so don’t know what would be the best option (WLE or Mx) and whether radiotherapy is needed. Decisions also to be made on plan for bone met (high dose radiotherapy and/or surgery) Herceptin and hormone therapy then for the long term.
I guess it’s no wonder I feel so uncertain?
I hope your chemo went ok and your veins were willing. Good luck with the SE. Xx
How did today go? Happygolucky. (Love the name)
as as the others have said.....we are here for you.I was missed in 2000, mastectomy 2001, mets to liver and bones 2013 ish
looking forward to hearing how things are, when you are ready.
Moijanx 🤗 💚💚💚
It's a huge blow, as you say, to be given a secondary diagnosis - let alone a primary one. There are several ladies on the form, with various mets, who have had the 'double whammy' so they know what you're going through. It takes time to adjust to all of this especially the thought of having to continue treatment once you're friends (and fellow chemo ladies have sailed off) think you've finished and conquered all (as one of your other posts mentioned). However, you do have us so you are not the only snowflake in the globe (love that description) and we are all here sparkling with you. It is really tough at first and you do need to give yourself time to adjust to waht we call the new normal. The read that is most popular here is 'Bone mets, please join in' - even if you dont have bone mets. We hang out on there quite a bit although there are also other threads about particular treatments and also different mets.
I started off in 2003 with primary, then diagnosed with bone mets in 2008, then liver mets in 2013 - it's been a rollercoaster but I'm still here getting on with things. I found even with my primary and especially when I had my secondary dx and was on FEC chemo that I needed to plan some small treats for when I felt OK (mainly on my days off treatment and the side effects). Something to look forward to and then plan something a bit bigger for as and when you feel more able to enjoy it. As to hunt the vein, alot of us have had that delightful experience. Mine have pretty much given up after FEC destroyed them and I now have a portacath fitted which makes life so much better - and easier. Others have a PICC line - it might be worth considering even though it needs flushing every week? Once you've had your chemo presumably the Herceptin will be the subcutaneous injection every 3 weeks so at least you won't have to face the IV each time.
Anyway I hope treatment goes well today and you have your catchup, I actually liked going to our chemo ward as I used to have a nice natter plus someone made me cups of tea and brought me a sandwich for lunch. The nurses are all so lovely and I'm sure they are where you go. You seem to have a positive head on your shoulders which is good but expect a few ups and downs, we're here for you and understand what you're going through as we've all been there, done that, got the T-shirt!
Juma ..... Wishing you all the very best for the second opinion. In my first oncology appointment, I just sat there and listened - I think I, too, was just in shock ... not able to process the information, let alone ask anything or take any decisions. In the second, I worked through my list of questions, despite feeling a slight impatience from the oncologist. I have my third appointment on Monday, with the results of the new scan - and will go armed with a new list of questions. I find it hard to be strong and articulate, at a time when I feel desperately vulnerable .... but I think it's just what we have to do ... to have some sense of clarity and a modicum of control. Sending you love xxx
I agree ... it means the world to me to read these comments and sense the solidarity.
Juma - sending you love and support. I sense that these early days of diagnosis bring their particular challenges. Apart from anything else, I feel plunged into a world of unknown vocabulary and processes - within which it's incredibly difficult to have a sense of control. Everyone is different and needs different things, but, for me, it will help to have the new scans done and have more information, whether good or bad - as my own mind is not my best friend right now. Thinking of your.