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Start of Treatment

5 REPLIES 5
Community Champion

Re: Start of Treatment

Wishing you a lovely holiday, and that you come back refreshed and renewed. 🥰. This disease is certainly life changing, isn’t it? I would use a mask on an airplane as my neutrophils are shabby by the end of my two weeks and I do pick up anything and everything. Your GP will give you some anti biotics to take with you if you ask.  I have been in hospital too many times with temps of 40*C to tempt fate! Fortunately everything seems really good at the moment , but I have only recently been given permission to travel outside the uk. This was accompanied by a letter from my Onco for insurance, and a reminder to take my file and thermometer. Need a separate suitcase! This is after two years continuous treatment.  Lots to be grateful for though, and like you, can’t wait for my first flight abroad. 🏖

Member

Re: Start of Treatment

Hi Paris just read your post .I too can confirm pomegranate is definitely a no no .Hope you have a lovely holiday , enjoy 😊 

Member

Re: Start of Treatment

Hi Anniej. Thanks for your reply. I will ask the Oncologist again next time I see him about the Pomegranate and mention the Selenium and iron supplement. Fingers crossed I'm ok when I get my bloods checked next week for the first time. I'm going to Ibiza for a week on 28th and the oncology nurse looked at me in horror when I told her. She said it was the worst time I could be going away and in the worst situation. Air con on the plane! Told me to wear a mask! I'm sorry, but I could pick up a bug walking around a town, in work, in a lift, touching door handles etc etc. I'm not wrapping myself in a bubble. Life goes on and if I feel unwell I will just take myself to A&E for antibiotics. I have not been away for a proper break with my husband yet this year due to me feeling unwell and having a plethora of tests and scans etc, so cant let the chance I may pick up a bug stop me from going!

Take care x

Member

Re: Start of Treatment

Hello. I’ve been on Ibrance Anastrosole and Zometa for 18 months now. My hair is a little thinner and I often have to have an extra week off (I have Ibrance one week on one week off) as my blood counts are too low but otherwise feel fine. I work full time. I try to see it as doable and focus on the here and now x

Community Champion

Re: Start of Treatment

Hi Paris, I love your post. Very upbeat and accepting of where you are. I quite agree with the healthy diet, but Pomegranate is on my list of no no’s with the Ibrance. Just thought I’d let you know. There is a supplement which I think is excellent as it contains selenium and iron. Selenium is such a good anti oxident. The Ibrance does crash the neutrophils, and it really did a number on me at first. Unfortunately there seems to be little you can do except stay well clear of snuffles and sneezes. I’ve been on the Letrozole-  Palbocilib combo for two years now and it’s keeping me very well indeed. Not that it’s been plain sailing, but the body needs to adjust, doesn’t it? As my Onco says, theres plenty more little tricks in his black bag!  Good luck, and stay strong. X

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Member

Start of Treatment

Hi. I started my first treatment yesterday. Denosumab and Palbo (ibrance). I have been on Letrezole as well since I was diagnosed back in July.

 

I have to say I have had no side effects from the injection, they should develop within 24 hours, so to all those who have yet to have this treatment...its fine don't worry! Took seconds for the injection. The waiting around for the blood results was the worst part, as I had them at the Marina Dalgleish Centre a couple of days earlier and the injection at The Royal in Liverpool and they are on different computer systems so have to rely on the telephone to get the results! I'm sure that some side effects from Palbo will develop but nothing that cant be managed and certainly better than chemo side effects that we all know only too well.

 

Whilst I was there I had a chat with my Oncologist who reassured me that I was on the best treatment there is for secondary ER positive breast cancer with spread to bones. She said that 10 years ago a new drug would be available maybe once a year. Now its 3 or 4 a year. She knows of new drugs at this present time that will become available that are even better. She told me to keep positive, eat a healthy diet and just carry on with life. I must admit I came out  lot more positive than when I went in!

 

My boss is an expert on healthy foods and told me to drink Pomegranate juice daily, eat lots of broccoli, peppers, tomatoes and take Vitamin C and Vitamin B complex supplements to keep my immune system tip top. Just thought I would share this with you as it cant do us any harm. The only thing I was told not to take was Grapefruit Juice or the fruit as this can increase the side effects of the drugs.

 

Hope this has helped and wish those starting treatment all the best. xx