Hi Clarence, sorry you are having such a rough time. We've all been there, but Funnyface is right...all the tears in the world won't undo this diagnosis. If they did then we'd all be clear! Ive had continuous treatment for two years following my primary diagnosis, then my secondary. The mets are in my lungs, and I've only just been categorised as stable. My Onco thinks that's great, and so so I. I've had a lot of help from professionals - sleep therapist, mindfulness, TaiChi , and a wonderful psychologist . I've got a better insight as to how my mind works, and a few techniques for staying calm( er) and sleeping better . Some days the only reason I get out of bed is for my family....but that's worth it, isn't it? On those days I kick my a**e into gear, get up and have a very busy day. I'm living with, not dying from, cancer, and so are you, my friend. 💐
Clarence, Mine was found with a CT. They never mention it now. I asked at my last appointment in Nov and she said that the nodes look fine now.I go again on the 21st of Feb and have a lot of questions. My oncologist left and I'm to have a new one. FF
I’ve just been told I have a minimal increase in a node in my mediaistrum (hadn’t even heard of it) I’ve to go for another scan in 4 months. Oncologist said she wasn’t worried. I’m worried sick. How was yours found and what treatment are you getting?
Clarence, Stable is fantastic! I was stable on vinorelbine for 5 years. I of course longer for it to say improvement, that didn't happen! I've been living with metaststic breast cancer for 12 years. I've had very few times that things have improved. Almost always stable. FF
Hi Tatyana, My cancer is in the mediastinal nodes and lungs. I'm sorry you have had this diagnosis. It's not easy to hear! We understand how you feel. We just hate knowing that another person is facing this heartbreak and worry. My best advice is to have some tears, get angry and stomp your feet. Then look around you, dig in your heels and get moving with a smile. Too many precious minutes, hours, days are lost on the worry and tears. Gosh, if we could add them up it would probably be a life time. FF...
Thanks for the encouragement, ladies! I got my secondary badge yesterday with Mets in mediastinal nodes, about to start capecitabine, currently in shock. I don't need to tell you all the things going round in my mind, just one quick example: the snowdrops are lovely now, will I see them next year? And how dol I stop bursting into tears every five minutes?!
Hello ladies, Doing some catching up here. I'm jumping in to give you lung mets ladies some hope. My original bc diagnosis was Oct 1995.My mets to the lungs was Nov 2005! That is 12 years. I can't promise you the same, but I hope it can give you something to hope for!! I'm doing pretty well. I'm 63 and work PT. I have worked hard at exercising and losing weight. In the last 17 months I have lost 110 lbs. and started kayaking on a nearby lake. I recently broke 2 vertebraes, and had surgery to glue them together. All of these drugs have caused osteoporosis. I'm more worried about that than my cancer. I've seen my children graduate college, one marriage and now my first grand baby. My best advice is get up, wipe off the tears, smile and keep living!! Believe me, I cried plenty before I got my act together! It won't change the situation. It is a waste of precious time. I wasted enough time crying for all of us! FF
Hi there, I have had one FEC T treatment so far for a grade 3 HER 2 tumour in the breast which has spread to the lymph nodes.
A CAT scan showed there was a nodule in the lungs which was 'active.' 3 weeks later, a PET scan confirmed this and now I have to have another CAT scan to compare with the first and see the potential growth of what's in the lung.
Initially, I wasn't too upset because I assumed the chemo would zap that too, then I looked it up, to discover secondary breast cancer in the lungs is incurable. Such a shock. I had been expecting a pretty grim year but eventually I would come out the other side.
This is now a whole different picture.
Do I put myself through all the treatment and poss 2 mastectomies, still to be left with something incurable...?
It is hard to stay positive.