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SCANXIETY!!

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Community Champion

Re: SCANXIETY!!

Hooray Linda 😊 A huge sigh of relief for you and a few more weeks of not having to worry about scan results and not many cycles left for Taxol. A great result and thanks for sharing.

Nicky xx

Member

Re: SCANXIETY!!

Hi everyone

Just thought I would share some good news. Got CT scans. Liver tumour disappeared and bone is showing improvements. I have just had no. 9 out of 12 weekly taxol.

Linda



Member

Re: SCANXIETY!!

Thank you for your kind words and your suggestions. I really appreciate it.
Member

Re: SCANXIETY!!

funnyface, I have an appointment for a PET on Sept 5, so I think that will tell me and my doctors more.  My doctor and I discussed getting a biopsy after the PET.  Because of the lesion's location, the only way to get a biopsy would be a lung resection, meaning that it is a major operation and they would remove a segment of my lung.  

 

Thank you for your insight.  I really appreciate it.  Now I just have to try to keep positive and not fall apart.

Community Champion

Re: SCANXIETY!!

Citrinetiff, I would want to start with the lung. I would want the lesion biopsies. This would tell you if it's breast cancer mets, lung cancer or nothing at all. From this it could be decided if the liver needs biopsied. FF

Member

Re: SCANXIETY!!

Hi Citrinetiff

I'm sorry you find yourself in this position not knowing what's coming next. It's devastating. I don't have answers to your questions and there may not be anyone here who does but you could contact the nurses at BCC. You can email them at 
https://www.breastcancercare.org.uk/information-support/support-you/email-our-nurses or phone them at 
0808 800 6000  I hope they can point you towards some information. It will be good to talk anyway.

Sending you lots of hugs

Bon xx

Member

Re: SCANXIETY!!

Hello,

 

I am hoping someone can help me.  I was dx'd with IDC stage 1 Grade 3 in October 2015. I finished my treatments (ACT + radiation) in September of 2016. I had one lesion on my right lung that could not be ruled out for mets, but it has remained stable since my first scan (January 2016).  Mets have not been confirmed so I go for scans every 6 months to check its progress. I recently did my routine scans and this is what was revealed: new lesion on liver + radioligist thinking that  lesion in lung is not likely to be mets but perhaps an adenosarcoma (lung cancer). I will be doing a PET scan in the coming weeks to rule out lung cancer + do a follow up scan on liver to see if lesion has changed (I did an ultrasound but the lesion is too small and too far back to see).

 

My questions are: is it possible to have both lung cancer and breast cancer mets in liver at the same time?  I am a wreck.  Has anyone experienced something like this?  Help please!

Member

Re: SCANXIETY!!

Afternoon ladies

Quick update from me. Just had my 3 months VT scan. Probably not get results for about 5 weeks.

Hope cap is still working as I am now finding it OK once dose was reduced after 3.

Hope everyone is well.

Linda

Member

Re: SCANXIETY!!

Hi Carolyn

Just wondering whether you have your scan results yet?

Hope pain you are suffering turns out to be nothing to worry about.

Linda
Member

Re: SCANXIETY!!

Great news, πŸ‘πŸ»
Janette xx
Member

Re: SCANXIETY!!

Fab news, so pleased for you xx

Member

Re: SCANXIETY!!

Great news and a wonderful start to the new year for you! 

Member

Re: SCANXIETY!!

Evening

Just to let you all know had scan results today all stable bone and liver mets go back in 2 months time.

Pleased that is now out of the way and I can forget about scans for a few months.

Linda

Member

Re: SCANXIETY!!

Afternoon Kirky

Sorry you having to wait along for scan results. Like
You I am having to wait 5 weeks. I dont tend to think about the results until the night before. We can"t change the results so for me no point in worrying. I have been living with cancer for so long now. In the early days I definatly worried more.

Happy New year to you and your family.

Linda
Community Champion

Re: SCANXIETY!!

Oh Kirky

That's a long wait for results too but I suppose Xmas holds things up a bit.

We just have to pull on our big girl pants and try to focus on other things !!
Xxxx
Member

Re: SCANXIETY!!

My GP won't allow medical records on the app (patient access) just appointments and prescriptions, bah. Had scan on 20th and not seeing ONC till 17th Jan. Cue sleepless nights.

Community Champion

Re: SCANXIETY!!

Hello windflower

I haven't tried registering yet either ..no doubt it isn't that straightforward !!
Maybe ..I will just rely on info given as and when !
Hugs xx
Member

Re: SCANXIETY!!

I have just looked at my post and see that there is an "emotional warning" at the bottom!  I don't know why.  Perhaps I pressed the wrong button or something.  

Windflower

Member

Re: SCANXIETY!!

I don't know if this is the right thread for this topic, but others have mentioned that they have registered to get their medical records on line, on this thread. (perhaps it should be a different topic?)  I too registered just before Christmas and I have tried to access my records a few times since (the last time this morning).  All I got was a list of my most recent prescriptions and nothing else.  This is very frustrating as I want to know about myself, not what I already know.  I am waiting for the holiday period to end and then I will contact the surgery.  I know they can veto information, but I would think they would have to see you first and assess whether you are capable of accepting what is written.  The only time I go to the surgery is every 12 weeks for a pre-treatment blood test, when I see a health-care assistant.  I haven't seen a doctor there for a year.  I think it is probably a problem with the site, but it is a pain to have to bother them with this.

Sorry for the rant.  Compared to some of you I am in a relatively good state at the moment.

I wish all of you hope for the new year.

Windflower

Spoiler
 
Member

Re: SCANXIETY!!

Evening Carolyn

It was shocking you had to wait 5 weeks considering they had them in 2 weeks. I wonder whether all hospitals are like ours when we have to wait so long.

I remember awhile when at GP surgery they give me a password so I could go on line that must a couple of years ago now. Hubby did register but when we looked only had what happened when he went that day. Might be better now I am definitely going to try. At the end of the day why should we be kept in the dark as to what is happening to us.

Happy New year to you and the family.

Linda



Community Champion

Re: SCANXIETY!!

Hello Linda
I've just looked to see how to register online too ..you just print off a form and provide 2 forms of ID and send it to docs for approval.
I also had to wait 5 weeks for results of my scan but docs had it within 2 weeks !!
Member

Re: SCANXIETY!!

Afternoon Bon

That's really goodness news. I am not registered on line with GP. I did not realise you could view letters from oncologist on line.

I have requested many times for copies of any letters but I never have received them.

Think I will register if I am able to see everything. I would rather know if anything is wrong. I am sure you aware I am still waiting for my CT scan results. It will be 5 weeks I have had to wait. Got appointment on 8 January. Poor really.

Have a good new year.

Linda




Member

Re: SCANXIETY!!

I had an MRI scan of my head back at the beginning of November, never heard anything, began to think that either the shortage of radiologists had reached rock bottom or that there was no change so they were waiting to tell me next month when i have an appointment. Dizzieness went away so, always reluctant to ring them up about anything, I left it. Yesterday was on the GP online site and discovered a copy of a letter to me saying nothing new had been found. I wonder where my letter went. I have been scrutinising the snailmail every morning when it plops through the letterbox and Andy our postman is a treasure.

Bon x

Community Champion

Re: SCANXIETY!!

Hiya Linda

Well hope santa brings u a very good scan result ..we all hope to be stable mables ..so fingers and toes crossed for you ..

I'm still wrapping pressys but as and when they arrive now from that lovely white van man ...
Member

Re: SCANXIETY!!

Morning All,

Well that is CT scan done now it is the waiting game. I would like to have results before Xmas but unfortunately it usually takes at least a month for them to be reported.

After scan went Xmas shopping to get the last bits and pieces now it is just all the wrapping.

Hope everyone waiting results get good response with treatment and have a worry free Xmas.

Linda



Member

Re: SCANXIETY!!

Thank you Bon, will definitely try to! Kxx

Member

Re: SCANXIETY!!

So glad to hear your good news Katie. Have a peaceful 6 months. Bon xx

Member

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Thank you Janette! Kxx

Member

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Aww that’s brilliant news Kate!!
Hugs Janette xx
Member

Re: SCANXIETY!!

Thanks Barton! Such a relief!! Kxx

Member

Re: SCANXIETY!!

Congratulations, Kate! Well done! Long may it continue. Enjoy the next 6 months.

 

Hugs. Barton.x

Member

Re: SCANXIETY!!

Scanxiety over for another six months! The relief when you hear NED!!! Bloods all good too, so very happy! Hoping for the same outcome for others, Kxx

Community Champion

Re: SCANXIETY!!

No scan results yet ...I have a letter everytime before ct saying no food for 4 hours and a litre of water hour before ? Strange isn't it ..
Last time I had to sit with sis at lunch and have a bottle of water only whilst she chomped through hunters chicken and apple pie !!
Hugs xx
Member

Re: SCANXIETY!!

Weird isn't it? Every hospital seems to have different policies.Mine only ask if I'm pregnant. i take all sorts of meds including blood thinners. Plus I have only had 1 bone scan and 1 MRI in 5 years yet have a ct with contrast every 3 months like clockwork. Mets in lungs, liver, nodes, as well as several bones inc spine.

Member

Re: SCANXIETY!!

Good luck Bon!
Carolyn have you had your CT results yet lovely?? You can eat normally before a CT, it’s just certain medications you have to hold off on, think it’s metformin, naproxen and anticoagulants.
Hugs Janette xx
Community Champion

Re: SCANXIETY!!

Goodluck, Bon.

Community Champion

Re: SCANXIETY!!

Bon
Best of luck for mri tomorrow. .I've not had one of those but are u allowed to eat first ? I wasent allowed food for 4 hours before my ct scan ..oh suppose it's the head only ? Ct scan does abdominal areas ? Think I've answered my own question. .what a numpty !!
Think we are meeting Thursday this week?
Hugs xx
Member

Re: SCANXIETY!!

Hey Ho, MRI on my head tomorrow. Still, having lunch beforehand with a friend who has been really supportive  and she's coming with me, (luckily she lives near the hospital which I don't.) I haven't known her that long. Sometimes this disease throws up some pearls. I wouldn't have met Carolyn and Barton otherwise.

Love to all Bon xx

Community Champion

Re: SCANXIETY!!

Optimissy, Thank you. Never wrong to stop in and support someone! You are my friend! Hugs! FF

Community Champion

Re: SCANXIETY!!

Yeah Janette! You go girl! FF

Member

Re: SCANXIETY!!

Awww thank you everyone for your good wishes!
Hugs Janette xx
Member

Re: SCANXIETY!!

Jeanette

A wonderful birthday present, so pleased for you, have a great day. Bon xx

Member

Re: SCANXIETY!!

Excellent news, Janette - well done you. And happy 50th for Wednesday!

 


Hugs. Barton.x

Community Champion

Re: SCANXIETY!!

Jeanette

Whoopy what a lovely 50th birthday pressy ...right now u have finished with the big girl pants ...they are here for others waiting on scans ..

Hugs xxx
Member

Re: SCANXIETY!!

Afternoon Rosie

That is really good news. Enjoy your birthday celebrations.

Linda

Community Champion

Re: SCANXIETY!!

Remade, Thanks! I have some on hand. I will wait and see what Inc says on Thursday.

Member

Re: SCANXIETY!!

Well I can take my β€œbig pants” off now! Bcn has rang to say my results are good, all stable and nothing new shown up!!!!
I can now look forward to my big birthday on Wednesday.....the big FIVE O, I’m going embrace every single minute just so happy to see it!!
Good luck Carolyn and FF for your results.
Hugs Janette xxx
Community Champion

Re: SCANXIETY!!

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Member

Re: SCANXIETY!!

Hi ff, thinking of you this week and hope you get good results. In case this helps the one thing that lowers pain in my cancer filled spine is half a steroid each day, take early in the morning while eating and at this low dose I am even able to get some sleep, one a day kept me awake all night.love and hugs

ramade xx

Member

Re: SCANXIETY!!

Morning FF

Sorry to hear you are on so much pain hope it subsides soon.

Good luck with your scan and results. Hope E/E keeps on working for a while longer.

I am sure there will be further treatment when this one fails especially in the US.

Take care of yourself.

Linda