Member
Posts: 2
Registered: ‎05-11-2018

Re: New

So sorry to hear this news . You must be devastated and no wonder you are confused. Did you get the opportunity to ask why you are having chemo when you have been told it won’t work ? Maybe it’s a different drug they are going to use ?

very best wishes

Member
Posts: 22
Registered: ‎16-09-2018

Re: New

I too have a pain at my hip but Dr just waved it off as perhaps arthritis or stg but it’s been improving. I am taking densonub injections once in 2 months now as I’m into my second year since bone metastasis. I didn’t know it was because of densonub
Member
Posts: 28
Registered: ‎14-11-2017

Re: New

One year now since diagnosed bone mets.  On EE and densonub injection every 4 weeks.  Just come to terms with the reality of this and has been a very anxious year but have been doing well and other than a painful hip which am told is an improving situation due to the densonub and also am supposedly stable.  Have been so encouraged by reading good inspirational stories from you ladies keeps me positive.  So thank you.

Buzzing

Member
Posts: 22
Registered: ‎16-09-2018

Re: New

Yes it’s really encouraging to hear how you have all preserved through the years and gives us hope. I was diagnosed with secondary cancer last year n thought I would only live a maximum of 2 years based on Dr Google!! It’s a blessing to hear there are so many doing well through the years. Thank you
Member
Posts: 234
Registered: ‎30-03-2017

Re: New

that's amazing  ff, 15 years coming on 16.It's so good for all new people on the site to hear this because it's really frightening at first. welcome to all newbies by the way, there are a lot of you at the moment.

hugs to all,as ever

Ramade x

Community Champion
Posts: 4,321
Registered: ‎01-05-2012

Re: New

Ramade, In 2003 we went across country and visited a bunch of our National Parks. I couldn't walk very far at all. I was congested and coughing up junk. Came home and was the same way. Thought I developed allergies. I slowly got worse over the next 2 years and finally told the Dr I thought it was more than allergies. Once I started chemo the coughing was gone. So even though I was dx in 2005 we feel it was there before the summer of 2003. FF

Member
Posts: 358
Registered: ‎26-07-2014

Re: New

I'm another positive story, I'm in my 6th year of secondaries and my 24th year since my primary with a few local recurrences in between. I know our specialists want to allay fears but being told you are "cured" after 5 years might make you too complacent possibly?

 

 

Member
Posts: 234
Registered: ‎30-03-2017

Re: New

IThanks for your recent post ff it gives us all hope. i will be 11 years with secondaries end of year and that includes the first 4 years where i was not treated at all because they read the scans wrong. So hang in there folks!

Member
Posts: 1,598
Registered: ‎01-05-2012

Re: New

Cazbo, I know how let down you must feel. I was told I was 'cured' 5 years after primary when I stopped treatment. Secondary was diagnosed a few months later. I'm still going fairly strongly 3 years later. Funnyface is the woman we look to for hope and inspiration. Hugs to you
Bon xx
Community Champion
Posts: 4,321
Registered: ‎01-05-2012

Re: New

Cazbo, I'm on my way out the door for work. I can't promise you this, but do hope it can give you some hope. I've had lung mets for 13 years. FF

Member
Posts: 235
Registered: ‎14-03-2018

Re: New

I’m sorry you’re feeling this way. I know it’s hard and I can’t say I always practise what I preach but try to focus on the treatment. Secondaries are hard to face but although not curable can be treatable x
Member
Posts: 16
Registered: ‎24-09-2017

New

Hi all,I had breast cancer last yr ive now been told ive got cancer again in my left lung.was hoping to start a new tablet next week but ive just had a phone call to say I cant have them will need to start chemo again even though the dr said chemo wouldnt work .I feel totally let down after being told in september that my cancer had gone