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New diagnosis

10 REPLIES 10
Member

Re: New diagnosis

I was diagnosed with SBC in June 2017 liver and bone. I have now been on Abemaciclib and Fulvestrant for three weeks and the side effects for me have been diarrhoea, tiredness and loss of appetite. Nothing too bad and so far I am coping with it. My blood results were OK last week when I had my second round of Fulvestrant. Sorry to hear about your fall and hope you are feeling better soon.

I think this will be the standard care and there will be many more of us on it in the coming months.

 

Sue

Member

Re: New diagnosis

Hi it's good to to hear your treatment is being effective  long may it continue to reduce tumours best wishes to you x

Member

Re: New diagnosis

Hi I am one month into my treatment have had the runs apart from that been ok  .As this is a relatively new treatment even my specialist nurse does not know long term side effects.Hope your ok after your fall let's hope this treatment is effective for a long time 

Member

Re: New diagnosis

hi I have been on Palbociclib which is similar initially had a bit of nausea tummy discomfort but started on Lansoprasole 15 mgs after second month and been okay since then now been on letrosole and palbo for a year which scans show secondaries in lungs base of spine and pelvis stable 4 of 6 tumours smaller. Hope you get on okay with abemaciclib Liz

Member

Re: New diagnosis

Hi all

had bc diagnosed Nov 2017 ,had chemo. ,mastectomy ,radiotherapy then 

i was diagnosed with secondary bc few months ago ,liver mets .i am being treated with

fulvestrant injections and abemociclib tablets 150 mg , had them for last month ,had bit of diarrhoea,treat it with Imodium,and feel sick but no actual sickness.,also stomach pains . I feel not too bad but went to center parks last week ,fell off bike onto my back ,so not sure what is causing a problem this week ,pain from fall or pain from medication 

going back on Friday ,will be one month of treatment,so will see how blood test results are ,seeing oncologist on Tuesday 

i m interested to see how we all get on

positive thoughts to all

good luck

janet

xxxxx

Member

Re: New diagnosis

Hi,

ive been on Faslodex for 9 months and have hardly any side effects. We are adding Abemaciclib to the mix. I’m concerned about the tummy side effects. Has it continued to be ok for you?

Thanks 

Debs

Member

Re: New diagnosis

Hi let's hope this combination is effective it has only just started being used  by my consultant at my local chemo unit at Chorley hospital

Member

Re: New diagnosis

Hi Caz1963,

I was diagnosed with secondaries to the liver, bone and remaining node in 2017. I first has BC in 2003 with a recurrence in 2014.

 

i have had a couple of different treatments over the last two years but will be starting Abemaciclib and Faslodex next week. I think this combination has only just been made available at my hospital which is in Liverpool. Hopefully this will work for a reasonable amount of time for both of us.

 

Sue

Member

Re: New diagnosis

Thanks for your reply that makes me feel much better I wish you well too 

Member

Re: New diagnosis

Hi Caz1963

 

I am sorry to hear of your diagnosis, I have not that long been diagnosed myself so am no expert but I am on Abemaciclib and Letrozole, I have found the Abemaciclib absolutely fine, the only real side effect I've had is upset stomach but a couple of Imodium a day keeps that in check.

 

I hope you take well to your treatment and can continue with your normal life too.

 

X

Member

New diagnosis

I have just been told secondary mets have progressed to spine starting abemaciclib and faslodex on Tuesday can anyone on this treatment let me know what to expect feeling scared