Member
Posts: 71
Registered: ‎18-03-2018

Re: Living with pleural chest drain

Just wanted to add I drained 1.5 litres of fluid from my lung initially the amount after chemotherapy and now drain 300-350 m&s a week xx
Member
Posts: 71
Registered: ‎18-03-2018

Re: Living with pleural chest drain

Hi sandy
Sorry to hear the fluid is still there - did they say how much ? . Chemotherapy can help to dry up the fluid but can take a few weeks - if your having a lot of symptoms from fluid - coughing, breathlessness , chest pain etc would they consider draining the fluid until the chemo kicks in to make things more comfortable for you?
When I had the permanent chest drain sited none would give me an answer if it was safe to fly - after I did a lot of research found there was no contraindication . I had my oncologist write a letter saying I was fit to travel and informed my insurance company of the drain - I didn't inform the airline but did get stopped in security and they examined me - I showed them the oncologist letter and all was fine. I have flown 5 times since with no issues. I suppose the issue would be if your condition is stable by the time your holiday comes around. It can be so frustrating and upsetting as spending time away with the family is so important and precious to us isn't it . I really hope the chemo helps I know it has with some ladies.
Hugs Sarah x
Member
Posts: 8
Registered: ‎01-04-2018

Re: Living with pleural chest drain

Clinic today after repeat chest x-ray says fluid back. As bloods ok they want me to start chemotherapy tabs tonight. Consultant thinks the treatment maybe the only relief I can get from the symptoms. She didn’t install me with much confidence on my pending holiday in May though. Thinks the airline won’t take me with fluid in the lung?
I’m gonna fight & try & prove her wrong.

Wish me luck Sandy
Member
Posts: 8
Registered: ‎01-04-2018

Re: Living with pleural chest drain

Hi again Sarahlew lovely to hear from you it’s my 1st reply so must be getting used to this site. I’m off to have a chest x-ray today & then a meeting with the oncologist to see the state of play for starting chemotherapy tabs tomorrow. I’ve already had a 3 week delay due to this fluid. If you were to ask me honestly do I feel as if the fluid feels better the answer is no. However I am wondering if it’s the worry of everything.
Our holiday is to lanzarote Porta del carman staying in a villa with the family. To not make this holiday possible would be devistating for all of us.
Thanks for the tip
Cheers Sandy x
Member
Posts: 71
Registered: ‎18-03-2018

Re: Living with pleural chest drain

Hi sandy
Sorry for late reply been away over the easter. Your story sounds familiar to mine in that diagnosis of secondaries took a while. I hope the talc procedure went well how are you doing after that? . Hopefully that will resolve the issue of the build up of fluid for you now. The hope was that after a while of my drain being in the lining of lungs would Seal and the drain could come out I'm still waiting!!!!! Where are you going on holiday - if you are flying get a letter from your consultant saying you are stable and they are happy for you to fly for insurance purposes. Feel free to pm me if you want anymore info. Take care sarah x
Member
Posts: 8
Registered: ‎01-04-2018

Re: Living with pleural chest drain

Hi Sarahlew,
I’m new to this plural fluid build up as only got diagnosed with with a secondary to lung 2 weeks ago. I had BC in 2016 & only a year out of treatment May 18. Came on with breathing problems that started in nov 17. Breast care been investigating me since January 18 & it’s taken this long to get a final diagnosis. They told me twice nothing sinister. I’m in hospital having my second chest drain due to lynfrangitus?? They are hoping to do a powder blast to seal the lining in between the plural & lung tomorrow. Reading your post is this something that will be a permanent thing for me as they have not really informed me of this yet? I’m due to start chemotherapy in tablet form on Thursday. I must say though you appear to be enjoying life & this has lifted my spirits as I’m due to go on a family holiday in May am hoping to be ok with this?
Sorry I’m new to this forum so still finding my way around the information. Lots of useful information.
Sandy
Member
Posts: 71
Registered: ‎18-03-2018

Re: Living with pleural chest drain

Thank you nicky and tatyana for your kind words. Life seems so bleak at the time of diagnosis and it's important to know there is hope and life can go on albeit with a new norm!!!!
Sarah xxx
Community Champion
Posts: 4,534
Registered: ‎01-05-2012

Re: Living with pleural chest drain

Yes, thank you for sharing. When you have some type of treatment that isn’t the norm it’s very difficult to find anyone to speak to to find out what it’s like. It’s good to know that your drain is working well, and your treatments, and that you can get on with life - especially the travelling 😊

Nicky x

Member
Posts: 764
Registered: ‎30-05-2017

Re: Living with pleural chest drain

Hi Sarahlew,
I don't have this particular problem at the moment, but I'm quite new to Mets, and who knows what the future holds! Just wanted to thank you so much for sharing, it is SO heartening to read someone's positive experience. We all need a bit of encouragement sometimes! I love your can-do attitude. Good for you!
Member
Posts: 71
Registered: ‎18-03-2018

Living with pleural chest drain

Hi I'm new to the forum so not sure what I'm doing - not too good at tech stuff!!!!. Anyway wanted to post something about my experience of living with a pleural chest drain as I couldn't find much info on the forums when I started looking for others living with this. I was diagnosed primary breast cancer in 2011 stage 2 after treatment all seemed well until developed cough in 2017. To cut a long story eventually diagnosed with secondaries to the pleural lining bones and liver may last year - I was very unwell at the time and thought there was no way back but following treatment that involved draining fluid from my lung with a permanent chest drain, carboplatin chemo and letrozole my condition greatly improved. I have since then enjoyed lots of travelling (you CAN fly with a drain - something that worried me!!!) I have just returned from a fabulous trip to vegas with no issues ( insurance a struggle but had it via MIA for £800). I have also returned to work part-time although still weighing up taking I'll health retirement. I walk my dog daily and go to the gym when I feel able. My husband and I take care of the drain - draining the fluid weekly - as it gives us more freedom. I just wanted to reassure anyone who finds they may need a drain you can still have a good quality of life. I have lived with it for 10 months and was desperate to have it out and became increasingly disappointed when the fluid persisted but now I have learned to live with it and make the most of live whilst I feel well!