13-10-2017 09:04 AM
13-10-2017 12:04 AM
Hi Mishy, thank you. Stayed off the May site as it's just another worry for people. I'm in good hands with Nick, and he has me on a trial. Fingers and toes crossed . Hoping you are out the other end and fit and well. 🍀 X
12-10-2017 05:09 PM
14-09-2017 05:48 PM
Had clinic today. Mets haven't grown, but doc is disappointed they are there after my chemo. Starting me on Ibrance, when and if, he gets permission . Already on Letrozole and I haven't started anything else, so I fit the criteria. Feeling very positive . Having a little rest to let me get over the rads then onwards and upwards. 👍🍀
10-09-2017 04:42 PM
AnnieJ, Back when I found out I had mets it was the day before Thanksgiving here in the states. We traditionally Decorate for Christmas the day after. My family went nuts! They were dragging decorations out that we hadn't used in years. They went to the store and bought more!! Believe me we didn't need more. Christmas my husband goes nuts any ways! We had to have an electrician out to give us a bigger electric box. Well, the more they decorated the more I cried. They were definitely decorating for what they thought was my last Christmas!! It was so obvious! I felt like Scrooge. I felt like I was being led around to see Christmas, past, present and future. I felt like they weren't my family any more. I thought I was only allowed to look through the glass and watch. I didn't go them decorate, I didn't shop or wrap. The only thing I did was bake cookies. I was a disaster!! Then, I had to give myself a good talking to. I told myself I could be m I miserable for whatever time I had, which also wouldn't help my family or I could pull myself together and not let cancer ruin my time! I washed my face and rejoined life. I admit I have some rough patches, but mostly other stress helps and over tired triggers them. Keep living!! Don't waste what time you have! FF
10-09-2017 11:17 AM
Hi Clarence, Ive been given inspiration by all the young women at the group I went to. Of course I have my weepy moments, like this morning when a good friend rang to check in with me. Completely lost it. 😢 For me it's the memories of the chemo that's still so fresh in my mind. I don't know that I could do it again. It's been a long hard eight months, and I was looking forward to it all finishing. I think I'm going to repeat every day what those girlies said to me - we're living with cancer, not dying from it. Sending good wishes. X
08-09-2017 06:33 PM
06-09-2017 09:30 PM
Thanks, Sue, all hugs welcome. I have attended a support group at my local Maggies this morning, and it was a very humbling experience. I was the oldest by far, and with the smallest ( so far) and localised (so far) mets. The heartening thing for me is that most of the ladies I met have been living with secondary breast cancer for years. I'm 70, look 55 and act 21 ( maybe 30), so I'm really not ready to check out. By the looks of my new companions, who are doing great, I'll probably die of old age rather than cancer. Yay me!! X
04-09-2017 09:31 PM
Very inspiring, funny face. Thank you, and all the other ladies who have sent such heart warming messages of support. I've had a counselling session at Maggies this morning. Very straight talk and sensible suggestions.
SO...I'm on medication for the rest of my life, just like any other chronic illness, and I'm going to learn to LIVE with this bl**dy disease now. Going to finish my rads for the primary cancer, which I felt too depressed to do, and I'll even ring the bell in triumph for making it through. It looks as though I'll be given Paxilacitol (?) along with the Letrozole. X
03-09-2017 11:15 PM
Hi AnnieJ, Sorry I haven't been on here for a few days. Carolyn was close! It will be 12 years in Nov for me with lung mets. I've had a few rough patches but have managed to get through them. Have your cry, wipe your eyes, get your treatment plan, and get moving. You can do it! FF
03-09-2017 08:50 AM - edited 03-09-2017 08:53 AM
SorryDear Anniej, bless you, I am thinking of you. There are always more meds coming through and I'm pleased your onc is being positive. I just wanted to say that I understand the crying and not being able to stop, I am having this recently and the doc gave me a pack of 1 mg Iorazepam put one under my tongue when I get so bad I can't stop the tears and don't know which way to turn. I have only used 1 so far as I believe they can be addictive but it did help me by making me feel caim for a good few hours. This pack stays in my handbag at all times!
lots of hugs to you
02-09-2017 03:46 PM
I have just seen your post. I am so sory to hear your further diagnosis, there really is not much that I can say but I just wanted to let you know I am thinking of you and sending you lots of hugs
02-09-2017 11:31 AM
Sorry to hear your news Annie. It's all such another shock after what you've been through & despite it all, you have been such a brilliant support to others here.
Although I had a primary diagnosis, what I do realise now from being on here, is that treatment can manage these issues well into the long term now.
02-09-2017 10:03 AM
02-09-2017 09:46 AM
I'm so sorry to hear this Anniej. It must be such a kick in the teeth after what you have already been through, and despite your own problems you have been such a help to others on this Forum. Don't really know what to say other than to believe your oncologist when he says there are treamtent options. It's so unfair. Thinking of you. xxxxx
02-09-2017 09:35 AM