Member
Posts: 6
Registered: ‎07-09-2018

Re: Five years since diagnosis of liver mets

This mskes me happy and positive. Ive a plerual effusion and waiting on it being drained n tested. 10years clear from bc. Its a shock but staying positive. I have to my girls are 19 n 13. I need tp fight cx
Member
Posts: 6
Registered: ‎07-09-2018

Re: Five years since diagnosis of liver mets

This mskes me happy and positive. Ive a plerual effusion and waiting on it being drained n tested. 10years clear from bc. Its a shock but staying positive. I have to my girls are 19 n 13. I need tp fight cx
Member
Posts: 6
Registered: ‎03-02-2018

Re: Five years since diagnosis of liver mets

Hi. What is the treatment for bone and liver Mets.? I was just DX less than a year after having BC. X
Member
Posts: 1
Registered: ‎11-01-2018

Re: Five years since diagnosis of liver mets

Dear All,

 

Thank you for writing on this website! I was diagnosed with liver mets in May 2017. I have been taking Ibrance and Faslodex. The response has been excellent, my markers are almost normal. I feel well and positive. But  visits  tot he doctor get me down. It is very inspiring to hear from you ladies. I was originally diagnosed and treated for breast cancer in 2009 (I am BRCA2), had a double masectomy and ovaries out. All was clear until last year (May 2017). Mets only in liver, staying positive taking meds, walking my dog, loving my children. Any adivse on what else you all have done is incredibly welcome.

 

Stay strong,

 

Paola

Member
Posts: 21
Registered: ‎28-03-2017

Re: Five years since diagnosis of liver mets

Hi Jacksy ,
Just wanted to say congratulations !!
I was diagnosed with stage 4 with liver mets 2 years ago - like you I'm generally fit & well- I do 8 hours a week doing yoga , tai chi & qi gong , working & running a house
I try & stay positive all the time - keep telling myself & friends that one day a cure for secondary liver will be found & that I'll get that treatment
All you can do is be positive, live every day well & happy 😊
Member
Posts: 1,094
Registered: ‎01-05-2012

Re: Five years since diagnosis of liver mets

Hi Lillypin (and Nicky),

just wanted to reassure you that some of us are still going strong! I've just celebrated 10 years since liver mets diagnosis and my liver is clear. Im generally fit & well & have a good quality of life, although feeling a bit bleagh today after chemo yesterday (I have mets in my abdomen - peritoneum).

wishing you all the best in your treatments

Jacksy xxx

Community Champion
Posts: 4,534
Registered: ‎01-05-2012

Re: Five years since diagnosis of liver mets

Hi Lillypin.

Im not sure if any of these ladies are still around, unfortunately some, I know, have since died. However my liver mets were diagnosed in 2013 and I'm still here! I usually post on the Bone Mets thread as any Liver mets thread tends to slip down the pages too far and no one sees them!

This was 5 years after my bone mets diagnosis so I have had mets for 9 years now. I can't say it's been easy at times it, equally, I have had long periods of stability or shrinkage. Over the years I have responded well to hormonal treatments so I hope you do too and keep the big guns until much later!  Other than the normal, NHS treatments available for your type of BC there are also many trials being run at leading cancer centres in the UK so there are newer treatments being tested all the time and some are very targeted. You can always ask for a second opinion at one of these centres if you have one near to you at any time you are not happy with the treatment plan you are on. For now it sounds like it is right for you and certainly has less side effects than some of the harsher regimes such as chemo.

Nicky x

Member
Posts: 6
Registered: ‎12-05-2017

Re: Five years since diagnosis of liver mets

last post here was 2014 is anyone still around
Member
Posts: 6
Registered: ‎12-05-2017

Re: Five years since diagnosis of liver mets

Hi guys thank you for the inspiring stories.I was diganosed last her with mets to the liver I am er/pr postive and her- i am currently on tamaxifine and zoledex.Is anyone on these treatments and are they working for you
Member
Posts: 1
Registered: ‎28-10-2015

Re: Five years since diagnosis of liver mets

Thanks for this forum
I am 39 and i was diagnosed to have liver mets since one month , will start treatment shortly
Member
Posts: 40
Registered: ‎31-03-2015

Re: Five years since diagnosis of liver mets

Hi All,

 

I was diagnosed with Liver mets back in February 2015  and in March I was put on weekly taxol and 3 weekly herceptin. The taxol was stopped mid September as the side effects were knocking me bandy and I was struggling to combat even a simple cold. The scan showed no worsening/growth of the cancer, but also no real shrinkage. I am now just having the herceptin and Anastazole.

 

I can say that I am now starting to feel much better physically, but psychologically I am terrified that I am not doing anything to fight it. Every ache and pain I get panics me and I started to have panic attacks. The Complementary Therapist at the Hospice I attend weekly as a day patient made me up an inhalational aromatherapy stick which is helping alot with the panic attacks, and I am finding that my main coping mechanism has to be positive thinking and keeping myself busy.

 

Not sure if this is any use to anyone but I felt that I would like to share it as I feel quite lonely and isolated at times as I am sure all cancer patients do - despite having a great deal of family and friends that support me.

 

Penny

Member
Posts: 127
Registered: ‎11-04-2015

Re: Five years since diagnosis of liver mets

Hello Gen, I was diagnosed with liver mets six weeks ago and am only on Letrozole, so would love to know what your what your (almost) miracle tablets were? Ta, Julia x
Member
Posts: 16
Registered: ‎24-02-2014

Re: Five years since diagnosis of liver mets

That is great to hear, I also have liver mets I am 2 years on now, changed treatments.  Nice to hear someone that is 5 years on.  Hope you keep well

Member
Posts: 4
Registered: ‎31-07-2014

Re: Five years since diagnosis of liver mets

Thank you roxy12, I will certainly keep checking in to read other people's experiences, it reminds me to focus on the positive and put the rest of it to the back of my mind where it belongs! I reckon there's no point wasting a moment when life is so good right now xx
Member
Posts: 339
Registered: ‎25-08-2013

Re: Five years since diagnosis of liver mets

Hi Bornfree,

Sorry you have had to join us but welcome. As Helen says we are all here for you and really are very friendly. Good luck with your treatment and do stay on this site. It is so helpful.

Love Sheila. Xx

Member
Posts: 4
Registered: ‎31-07-2014

Re: Five years since diagnosis of liver mets

Thanks 2catlady I will take a look at the thread you mention, sounds like just what we all need. A cyber hug right back at you! xxxxx
Member
Posts: 1,951
Registered: ‎21-09-2013

Re: Five years since diagnosis of liver mets

Hello,born free ,so sorry about your diagnosis .we all have days we are terrified and days where we can put things yo the back of our mind.
Have a look on the bone mets thread,we all seem to hang out on there regardless of what mets we have. We are a very friendly bunch,who always support each other,give advice ,a shoulder to cry on or a very much needed laugh.
Sending you a cyber hug which we all need dealing with this awful disease ,Helen xxxxxxx
Member
Posts: 4
Registered: ‎31-07-2014

Re: Five years since diagnosis of liver mets

I've started turning to this site more and more over the past week - just found out I have liver mets after original BC diagnosis/surgery/chemo in 2010. Waiting to have MRI and PET scans to see what treatment i will be offered. On a good day I think thank goodness it's been found and can be dealt with; on not such a good day I find it surreal and terrifying to try and get to grips with it all. It's really helped though to read posts from other women who are going through the same thing, especially when there are so many good news stories out there. It's so great that people takes the time and trouble to share their stories to help others like this.
Member
Posts: 126
Registered: ‎22-04-2013

Re: Five years since diagnosis of liver mets

Hi there, CraftyT, I was wondering how you were getting on? I did read details of one lady on here who has liver mets that didn't disappear or shrink during chemo but have remained stable for over four years! Hopefully all these real stories will give you a bit of an uplift. Keep well, I'm thinking of you in my prayers.
Member
Posts: 126
Registered: ‎22-04-2013

Re: Five years since diagnosis of liver mets

Thank you Celia for you post. I was diagnosed with liver/lung mets at outset last year. I still live under the shadow of cancer but am enjoying and appreciating life with my 19 year old son. I hope both you, I and the other lovely ladies on here continue to chalk up many, many years to come.