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Brachial plexus

41 REPLIES
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Re: Brachial plexus

Hi Ramade was getting worried about you .Yes all treatment was stopped, until I felt stronger .Back on letrozole only .Having biopsy March 14th , will let you know how it goes. Hope your feeling a lot better too .They now think tumour on spine , might be low grade cancer . Will wait and see .Speak to you soon xxx

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Re: Brachial plexus

oh Hannah so sorry to hear that, i hope you are feeling better now. i have been in hospital for a week with dehydration, stomach infection and gastritis due to capesitabine. Not back on until 7th March to allow me to recover. Hopefully they are giving you a break too.

hugs Ramade xx

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Re: Brachial plexus

Hi Ramade not been too good , have been in hospital with pneumonia.Am home now , but still feel quite weak .So oviously spinal surgery and cancer treatment have been on hold .Hoping to have biopsy on tumour in March .So just got to get myself better. How are you doing , better than me I hope xxx

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Re: Brachial plexus

Hi Ramade lovely to hear from you , glad things have improved for you .Am just in a lot of pain from spinal tumour, they are a little undecided, what to do .So let’s get biopsy out of the way and see what it is .Will keep you posted xx
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Re: Brachial plexus

Hi Hannah, ggod to hear from you. Don't worry about the biopsy, I had one deep into the neck, he anaethatised the area first and i only felt pressure.

i,m hanging round the treatments thread at the moment struggling with capecitabine side effects but pleased it seems to be working.

good luck to you

hugs

ramade x

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Re: Brachial plexus

Hi havnt been on lately, had the dreaded petscan yesterday, was worrying so much came down with a migraine.Nothing was going to stop me having that scan and the dreaded results .My cancer appears to be stable PHEW.Thats the good news still have large tumour on sacrum, biopsy in 2 weeks, which I am not looking forward to .So will update, when I get results, can I really be that unlucky Even if it isn’t cancer , they are still thinking of taking it out xx
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Re: Brachial plexus

Hi Ramade , am sorry Ure Results weren’t better .I don’t know much about cyberknlfe but it’s worth asking about .I have developed a fatty liver and lipids in my blood .Must be the treatment I guess , and awaiting operation date .Its I step forward, and 2steps back .If you can have radiotherapy in Ure neck , am sure that will help .Dam cancer hey , gotta keep going though Havnt we .Let me know how meeting goes , sounds like you are under a good hospital.Lots of hugs
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Re: Brachial plexus

Hi HANnah, my results were not good yesterday. Huge lump in neck, doctor is asking about radiation possibilities. Looks like I'll be on harsh chemo all over Christmas and most of year,  it's paclitaxol that I had 18years ago with my primary. They are having a team meeting next week and I am to go in on Thursday to see what decision has been made.

Is it you that talked about cyber knife possibility and is that the same as proton beam? I thought I would ask if that is a possibility because the neck sounds a bit risky to be.

Hope you're not having heavy chemo too, you thought you might.

Ramade

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Re: Brachial plexus

Hi Providencez I am under London hospitals , but it’s definitely worth a mention, have written everything down , maybe they trial it here .You have certainly researched everything, it’s so interesting,hope your wife gets on ok
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Re: Brachial plexus

There is 1 immunotherapy that gotten a patient with stage 4 breast cancer "cured" it has been 2 years + and there is no sign of cancer coming back. It was headed by Steven Rosenberg at National Cancer Institute (USA). You should check that out. Unfortunately i cant apply for my wife as it is open to USA citizens only. Smiley Happy

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Re: Brachial plexus

Current immunotherapy (CAR-T cells) only work best on liquid tumor. The immunotherapy i mentioned is under phase-I trial by Stanford University School of Medicine only.

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Re: Brachial plexus

Hi Providencez, I literally looked it up straight away, after seeing your message.Wow you have certainly looked into things for your wife .Am really interested in the immunotherapy, maybe my tumour has to shrink a bit more .Will certainly mention it to my oncologist, thanks so much you have been so helpful.
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Re: Brachial plexus

Dear Hannah,

Please look into Keto diet. Get a nutritionist to plan it for you if you are interested. Basically it uses low carb, high fat diet with alot of greens that are proven to be anti-cancer (garlic, carrot, kalp etc..). Alot people gotten their tumors in control alot also gotten their tumors to shrink some lucky few have went into remission.

There are a brave few that rejected chemo and radiation and gotten into remission also but i don't suggest that...
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Re: Brachial plexus

Hi Providencez I didn’t lnow about booster jabs or keto diet will look into it .Know a little about immunotherapy, which sounds really hopeful..You seem much more positive today , which is really good . Thanks so much for information, and hopefully you will get 2nd opinion .Take Care
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Re: Brachial plexus

Hey Hannah22,

 

Thank you and Ramade for the reply.

Didn't they have booster jab to boost the production of white blood cell or blood transfusion? If stopping treatment to have whiteblood cells going back normal won't it take quite awhile?

 

Anyway my wife tumors on Brachial plexus are all only 1mm to 2mm. So i'm sure they are not wrapped around the nerves. Maybe is due to the difficulties that the doctor does not dare to operate. Anyway i will be visiting her tomorrow. I will try persuade my in-laws to seek 2nd opinion...

 

Did you guys try Keto diet?

 

Also are you guys aware that there is a new immunotherapy on CpG with Anti-OX40 (Cancer Vaccines) that cleared all solid tumors (Breast & Colon. Single or Metastasized) on 90 mice. 87 of them have all their tumors cleared and the 3 of them have theirs cleared too after 2nd treatment and have no recurrence. Now it is in phase 1 trial on Lymphoma patients only and results will be out Oct 2020.

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Re: Brachial plexus

Hi Ramade , hopefully results not as bad as you think .Will keep you posted about what’s happening, .We Just have to keep going as always , yes do let me know how you get on xxx
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Re: Brachial plexus

Hi Hannah, so sorry to hear this. Hopefully if they do operate they will take it all away from the sacrum and you will feel more comfortable. i had mri on Wednesday whole spine and brachial plexus, i know it's got worse just hoping they can do something and not a heavy chemo all over Christmas. i'll let you know.

thinking of you

Ramade x

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Re: Brachial plexus

Hi Ramade how are things .I seem to take 1 step forward and 2 steps back .More scans needed for me xx
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Re: Brachial plexus

Hi Saw consultant last week about spinal tumour, apparently it’s very large , and has to be removed, I have to have another scan to see if it’s cancer , either way it’s coming out .its on my sacrum.Dreading operation, I may have to stop cancer treatment, for a short time , which worries me My white cell count has to be normal , so that’s why .Am beginning to think , I may have faulty gene , as my son was born with a tumour on sacrum.So that’s being looked into .So feeling a little down today , just seems more bad news at the moment
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Re: Brachial plexus

Maybe you can get on a trial for Ibrance, good luck for Wednesday,will let u know how I get on Friday .Have you been on letrozole , you probably have told me .Cant remember anything these days 😊