30-11-2018 03:18 PM
30-11-2018 09:12 AM
Hi HANnah, my results were not good yesterday. Huge lump in neck, doctor is asking about radiation possibilities. Looks like I'll be on harsh chemo all over Christmas and most of year, it's paclitaxol that I had 18years ago with my primary. They are having a team meeting next week and I am to go in on Thursday to see what decision has been made.
Is it you that talked about cyber knife possibility and is that the same as proton beam? I thought I would ask if that is a possibility because the neck sounds a bit risky to be.
Hope you're not having heavy chemo too, you thought you might.
16-11-2018 06:27 PM
16-11-2018 04:58 PM
There is 1 immunotherapy that gotten a patient with stage 4 breast cancer "cured" it has been 2 years + and there is no sign of cancer coming back. It was headed by Steven Rosenberg at National Cancer Institute (USA). You should check that out. Unfortunately i cant apply for my wife as it is open to USA citizens only.
16-11-2018 04:50 PM - edited 16-11-2018 04:50 PM
Current immunotherapy (CAR-T cells) only work best on liquid tumor. The immunotherapy i mentioned is under phase-I trial by Stanford University School of Medicine only.
16-11-2018 04:41 PM
16-11-2018 04:24 PM
16-11-2018 03:57 PM
16-11-2018 02:00 PM
Thank you and Ramade for the reply.
Didn't they have booster jab to boost the production of white blood cell or blood transfusion? If stopping treatment to have whiteblood cells going back normal won't it take quite awhile?
Anyway my wife tumors on Brachial plexus are all only 1mm to 2mm. So i'm sure they are not wrapped around the nerves. Maybe is due to the difficulties that the doctor does not dare to operate. Anyway i will be visiting her tomorrow. I will try persuade my in-laws to seek 2nd opinion...
Did you guys try Keto diet?
Also are you guys aware that there is a new immunotherapy on CpG with Anti-OX40 (Cancer Vaccines) that cleared all solid tumors (Breast & Colon. Single or Metastasized) on 90 mice. 87 of them have all their tumors cleared and the 3 of them have theirs cleared too after 2nd treatment and have no recurrence. Now it is in phase 1 trial on Lymphoma patients only and results will be out Oct 2020.
16-11-2018 12:48 PM
Hi Hannah, so sorry to hear this. Hopefully if they do operate they will take it all away from the sacrum and you will feel more comfortable. i had mri on Wednesday whole spine and brachial plexus, i know it's got worse just hoping they can do something and not a heavy chemo all over Christmas. i'll let you know.
thinking of you
14-11-2018 08:26 PM
07-11-2018 11:47 AM
07-11-2018 11:37 AM
hi Hannah,good luck on Friday i will be thinking of you. My mri is next Wednesday but unfortunately the pain has spread up my neck so they've brought the scan forward. doesn't look like tamoxifen has worked at the moment. never been on ibrance, i'm told it's not available for me on nhs.
07-11-2018 10:51 AM
07-11-2018 10:21 AM
Hi Providencez ,i was told inoperable because cancer in my brachial plexus is wrapped around important nerves .I was in terrible pain .from my shoulder ,down my right arm,couldnt even sleep.Am on Ibrance and Letrozole,and results are promising.been on it 6 months .I dont know many people ,with cancer in the brachial,but my hope is ,that if it shrinks enough it could be removed .I have also been told it would be a very challenging operation ,so not sure if it could be done .My pain has really improved so treatment has helped .Hope this is of some help
07-11-2018 10:15 AM
Hello Providence, i hope it's ok with you if i reply as i have cancer in the brachial plexus like H annah. There are not many of us. I have widespread cancer in bones aswell and a spread from the top spine across to shoulder where there is a big lump and right across chest.
We did ask about getting the lump removed but were told that there are whole bundles of nerves in the brachial plexus and it would be impossible.
However your wifw's pain should be treated, i have a lot of pain killers because nerve pain is dreadful.
Hope this helps.
07-11-2018 09:10 AM
Hope you are doing fine.
I would like know more about why secondary at Brachial plexus is inoperable.
My wife cancer came back less than a year after treatment for stage 2B breast cancer at the left breast and nymph node. Now it has spread to left lung (1cm) and i heard there is quite a few at Brachial Plexus on the left. I'm currently not sure if it is operatable or not. Just want to get more insight on this condition before i suggest my in-law to get her to another doctor for 2nd opinion as she is in pain almost every night...
I not too aware of the lastest condition is also due to communication issue as she is a south korean and i am a singaporean. She also doesnt like to talk about her condition to me and my in-laws doesnt speak english.
Thanks in advance.
03-10-2018 02:04 PM