Hi Ramade was getting worried about you .Yes all treatment was stopped, until I felt stronger .Back on letrozole only .Having biopsy March 14th , will let you know how it goes. Hope your feeling a lot better too .They now think tumour on spine , might be low grade cancer . Will wait and see .Speak to you soon xxx
oh Hannah so sorry to hear that, i hope you are feeling better now. i have been in hospital for a week with dehydration, stomach infection and gastritis due to capesitabine. Not back on until 7th March to allow me to recover. Hopefully they are giving you a break too.
hugs Ramade xx
Hi Ramade not been too good , have been in hospital with pneumonia.Am home now , but still feel quite weak .So oviously spinal surgery and cancer treatment have been on hold .Hoping to have biopsy on tumour in March .So just got to get myself better. How are you doing , better than me I hope xxx
Hi Hannah, ggod to hear from you. Don't worry about the biopsy, I had one deep into the neck, he anaethatised the area first and i only felt pressure.
i,m hanging round the treatments thread at the moment struggling with capecitabine side effects but pleased it seems to be working.
good luck to you
Hi HANnah, my results were not good yesterday. Huge lump in neck, doctor is asking about radiation possibilities. Looks like I'll be on harsh chemo all over Christmas and most of year, it's paclitaxol that I had 18years ago with my primary. They are having a team meeting next week and I am to go in on Thursday to see what decision has been made.
Is it you that talked about cyber knife possibility and is that the same as proton beam? I thought I would ask if that is a possibility because the neck sounds a bit risky to be.
Hope you're not having heavy chemo too, you thought you might.
There is 1 immunotherapy that gotten a patient with stage 4 breast cancer "cured" it has been 2 years + and there is no sign of cancer coming back. It was headed by Steven Rosenberg at National Cancer Institute (USA). You should check that out. Unfortunately i cant apply for my wife as it is open to USA citizens only.
Current immunotherapy (CAR-T cells) only work best on liquid tumor. The immunotherapy i mentioned is under phase-I trial by Stanford University School of Medicine only.
Thank you and Ramade for the reply.
Didn't they have booster jab to boost the production of white blood cell or blood transfusion? If stopping treatment to have whiteblood cells going back normal won't it take quite awhile?
Anyway my wife tumors on Brachial plexus are all only 1mm to 2mm. So i'm sure they are not wrapped around the nerves. Maybe is due to the difficulties that the doctor does not dare to operate. Anyway i will be visiting her tomorrow. I will try persuade my in-laws to seek 2nd opinion...
Did you guys try Keto diet?
Also are you guys aware that there is a new immunotherapy on CpG with Anti-OX40 (Cancer Vaccines) that cleared all solid tumors (Breast & Colon. Single or Metastasized) on 90 mice. 87 of them have all their tumors cleared and the 3 of them have theirs cleared too after 2nd treatment and have no recurrence. Now it is in phase 1 trial on Lymphoma patients only and results will be out Oct 2020.
Hi Hannah, so sorry to hear this. Hopefully if they do operate they will take it all away from the sacrum and you will feel more comfortable. i had mri on Wednesday whole spine and brachial plexus, i know it's got worse just hoping they can do something and not a heavy chemo all over Christmas. i'll let you know.
thinking of you