Hello Providence, i hope it's ok with you if i reply as i have cancer in the brachial plexus like H annah. There are not many of us. I have widespread cancer in bones aswell and a spread from the top spine across to shoulder where there is a big lump and right across chest.
We did ask about getting the lump removed but were told that there are whole bundles of nerves in the brachial plexus and it would be impossible.
However your wifw's pain should be treated, i have a lot of pain killers because nerve pain is dreadful.
Hope this helps.
Hope you are doing fine.
I would like know more about why secondary at Brachial plexus is inoperable.
My wife cancer came back less than a year after treatment for stage 2B breast cancer at the left breast and nymph node. Now it has spread to left lung (1cm) and i heard there is quite a few at Brachial Plexus on the left. I'm currently not sure if it is operatable or not. Just want to get more insight on this condition before i suggest my in-law to get her to another doctor for 2nd opinion as she is in pain almost every night...
I not too aware of the lastest condition is also due to communication issue as she is a south korean and i am a singaporean. She also doesnt like to talk about her condition to me and my in-laws doesnt speak english.
Thanks in advance.
Hi Hannah, how are you doing?
Having been quite worried since several treatments plus 6 months of a horrible chemo all failed i am taking tamoxifen which i never had before and the lumps in my neck are starting to soften and a big one on my shoulder is finally going down. phew, huge sigh of relief because they had become painful and i couldn't lie on my left side. Scan next month, however they always say how hard it is to see if it has moved but i also have cancer in most of my bones so maybe that will show something has changed.
Thinking of you, when is your next scan?
Thanks Hannah. MRI showed same spread but because it is deep in the chest and neck he said it is difficult to see. on Tamoxifen now as i have never had it before. Been through several gruelling chemo's and other treatments so i feel glad to have a bit of respite. Also quite extensive in bones. Hope you have a good appointment, am thinking of you.
hi all, i am so pleased to read this thread because i have secondaries in brachial plexus. i keep having mri's because apparently the ct's don't show the spread in the soft tissue very well. i have been on a lot of different treatments, having a struggle to hold it back with me at the moment.
love and hugs to you all
Hi Mermaid (and Hannah)
My secondary cancer was discovered (in 2015) because it had spread to my peritoneum and blocked my bowel, so I had to have an ileostomy. Scan reports don't mention the peritoneum now, so either it has shrunk a lot with the chemotherapy or is now microscopic. The bone mets were discovered a few months later and are "multiple" but don't cause me any pain and have remained "stable" ever since. It was assumed that they had been present for some time, but not discovered. My original scan wasn't looking for cancer, but the cause of my abdominal pain and sickness, so that might be why they weren't seen then. I see from this site (mainly the "bone" thread), that many, many people have lived for a long time after their mets were discovered. A nurse also told me that "two to three years was average for secondaries" after I'd related the experiences of a friend of mine who had sadly died. You would think that by now their training would have been updated.
Just to let you know my original breast cancer was in 1995 and I was diagnosed with secondaries in 2015 with no problems in between. I also was very shocked, but it seems that this can happen. I am on Anastrozole and Denosumab and am doing well. Best wishes,