You are welcome to join this site. Sorry to hear your mum has cancer. I got my first cancer diagnosis in August 2013 too. When my mum had breast cancer I wish there had been a site like this: I would have joined it. We are a "mixed bunch" meaning we are quite diverse. We can rant, learn to understand different points of view, sometimes even laugh and it certainly helps me to cope a little better sometimes. The site has been a bit quiet recently but there are a lot of people on it. Hundreds of years of experience I guess!
Magick, I'm from the USA and I belong! Also we have had family members join before. How long has your mom had secondaries? Where did it come back at? Mine came back in my lungs 13 years ago. Welcome! FF
Thanks for getting back to me, feeling very alone at the moment, like i m in a bubble.
Sorry not to have replied earlier Riversidedawn - I thought I had already but obviously not .....which is another thing I'll put down to chemo brain..again ! I don't appear so far to have had any SE from the denosumab . The everolimus and exermestane are the tough ones for me. Even the BC nurse said they can be hard to tolerate but I was crying at the time so maybe she was just being kind to me !. After a scan 2 weeks ago they discovered pneuminitis in my lungs so have had a 2 week break to clear it up as caused by the treatment. Now I'm back on it at a reduced rate and so far so good....although worried that it will only be half as effective now!
Good wishes to everyone on this thread, Gill x
I've been diagnosed with bone mets last week, 5 years after primary. Getting anastrozole and zoledronic acid infusions, is anyone else on this?
I keep crying a lot as well, not sure if its shock or the anastrozole.
My bone mets (and lung) were discovered in August this year after I broke a rib back in Dec and it wouldn't heal. Eventually a nuclear scan showed up the secondaries ! I had BC in 2002 and in the other breast in 2014 and am now devestated that this has now happened. My treatment for the last 3 months has been Denos umab injections, Exemestane and Everolimus which I've found nearly as tough as the chemo back in May 2014. I had a ct with contrast scan today and see the consultant next Tues for a comparison to see if the treatment is doing anything positive. I found the BCC forums really supportive before and although I never wanted to be back here it's a relief to read your threads and understand I'm not alone !
My bone mets were found accidentally after another unrelated procedure. You are so lucky you're getting scanned. I had gone to doctors severat times complaining of various pains but at no point did anyone suggest it might have anything to do with the breast cancer I had years ago. My pains are quite sharp - like being stabbed repeatedly rather than dull aches.
Some ladies have not known they have got bone mets, I was one of them. A routine mammogram showed a local recurrence then a subsequent bone scan picked up a couple of mets in my spine. I now have quite extensive bone mets but that was because I was doing so well a few years back that my regular scans got spread out too much so the changes weren't spotted as quickly as they should have been. On that occasion I did have a ache in my thigh which felt more muscular than anything but it turned out to be more bone mets. Some ladies have had a spontaneous fracture, others have reported having aches which were then checked with scans. It's not always obvious and unfortunately some GPs dismiss a lot of our concerns whereas they should take them seriously especially where there is a history of BC.
I hope your scans do give you the answers you need and that it isnt bone mets. However you have found the right place to come should you need further support.
You may get many different replies to your question, but they are slow coming in. I limped a bit but have limped a long time since an old injury. After the first primary it was assumed to be the tamoxifen. At the second primary I had a CT scan and bone mets were diagnosed then and apparently were from the first primary.
Your scan will hopefully be reassurring.
I was diagnosed with bone mets almost 6 years ago just 7 weeks after my primary diagnosis. Also had shadows in my peritoneum . I went onto Letrozole and Zometa which kept me stable for about 5 years then my TMs started to increase - scans showed more obvious infiltration in the peritoneum but my last scan also showed some differences in my lower back and the Onc told me that he suspected infiltration in my bone marrow.
I was put on cape and have just started my third cycle and my blood results have been very encouraging. I didn’t ask much about the bone marrow suspicions and am wondering if anyone here has any experience of this....or can point me to a site that has some information.
I am finding that I have lower back pain and am wondering if that is the cause. Have an appt with my GP next week to ask about pain killers.