17-12-2018 06:37 PM
17-12-2018 06:31 PM
17-12-2018 06:23 PM
17-12-2018 01:26 PM
17-12-2018 12:21 PM
Just a lil' question...my onco. never uses tumour markers as he does not believe in them.....may i please have your feedback on this one?
How many of you feel supported in between scans?? I believe there is work in parliament on raising the care of 'all' secondary cancer patients.......not very festive...ooopsie..xx
17-12-2018 08:22 AM
Hi Magick and Butterfly
Welcome to the forum. I had primary bc in 2009 and was treated with radiotherapy and tamoxifen. 6 years later mets in my pelvis and skull were discovered during an investigation for something different. I was treated with exemestane which worked for 2 1/2 years but I'm due to start capecitabine after Christmas. I had some difficulty persuading my consultant that ex wasn't working any more. Lots of women have the same problem. We know our own bodies.
You mums are lucky to have your support
17-12-2018 07:32 AM
17-12-2018 07:18 AM
17-12-2018 07:02 AM
17-12-2018 02:57 AM
Butterfly, Welcome. The good news is that it didn't come back for 10 years! This might mean that it is slow growing. I went 10 years and then it showed up in my lungs.I have been here 13 years with it in my lungs.
Best wishes for your mom! FF
16-12-2018 11:17 PM
16-12-2018 07:42 PM
Hello Silver, It’s lovely to hear from you! Sorry to read you’re still in pain but so pleased about your biopsy result. I hope you have a much better year ahead, don’t forget to let us know how you’re getting on. Very best wishes, Kate xx
16-12-2018 05:39 PM
Merry Christmas to you to Silver, i do hope your pain subsides, i found gabapentin works well in lrge doses, and morphine excellent into the vein, but no joy from morphine by mouth or patches.i was wondering if the new cannabis oil would help you, it is available on prescription now i believe. you have all my sympathy, constant pain takes up all your energy. thinking of you.
16-12-2018 04:03 PM
..dear funny/f........just lovely to be understood, albeit from afar........even my oncologist shows no empathy......where does one go? Thank goodness i've a super rheumatologist.....xx
16-12-2018 03:21 PM
Merry Christmas Silver! Hoping your pain regimen kicks in and makes you more comfortable. I think when we get other things wrong with us along with already having cancer we get overwhelmed. I find drs and friends don't understand it. You tell them you have arthritis and you can tell that they are like So does everyone else! Yeah, but we have cancer, plus side effects of treatment and other things. Grrrrrr! But somehow we still keep going! FF
16-12-2018 02:12 PM
To dear Kate21; funnyface; rosie53; bonariensis; Anne30 & ramade.........& anyone else I've missed.....
Just popping by to wish you & yours a very Happy Christmas and a safe, happy, healthy 2019!!
My oral biopsy came back as hyperplasia...so missed the bullet but they are going to be vigilant......
I'm still in a lotta pain, but I'm now on Morphine and Gabapentin.
Inflammatory arthritis just kicked off in my small joints...nae gr8 timing.......but hey ho....ho, ho, ho...here we go....
Love & all good wishes to u all....
16-12-2018 01:38 PM