Helen I am so very sad to read of your latest results. Lots of advice on here from 'the girls' but I guess it will be a while before you feel strong enough to register any formal complaint but right now I think you need to find the sort of support that will take you forward in getting the care you need. Not sure where it will come from but of course macmillan are excellent and of course as many have already said, a call to the helpline here. Sending hugs to one lovely caring lady ((((((((((((((((-))))))))))))))
Hello Helen, so sorry to hear your news, I have been to the virtual chapel in the dark wood and lit a candle for you and all the sources of inspiration on this thread http://www.gratefulness.org/candles/candles.cfm?l=eng&gi=DDW
Helen thinking of you and your sister. Keep strong cann't say anything that's not already been said. VickyXXX
Helen, I couldn't believe it when I read your post. Please stay positive and try as others have said to speak to someone tomorrow who may be able to get you an appointment with another onc in the very near future.
Did you get results of your last mammogram as to whether this was Her2 pos. I wondered if it was possible that these secondaries are from that breast because you did have a long time to wait for them to do something.
I think it is time for me to send YOU a huge hug Helen. Love Sheila. Xxx
I'm sorry to hear of your latest diagnosis and would like to reiterate what has been said, that please do give our helpline team a ring, they're here to support you through this.
Helen I am so so sorry to hear your news.
Your treating team must have other Doctors working in it. surely oneof them can see you and talk through results and possible options....that would give you a chance to think about what you want to do and have your thoughts straighter for any discussion with the onc.......
think very carefully before moving your care to a more distant hospital..........discuss and think about the teams links with other services such as palliative care.....but if as it seems you have lost faith in your team maybe this would be the best option.
Sending you hugs....best wishes Pamx
I am so sorry to hear firstly about your sister being diagnosed with primary BC and then the news of your spread. Life must be pretty tough for you and your sister right now but I'm sure you will find support with each other. As all the other lovely ladies on here have said we are with you all the way and will be supporting you whenever you need it. I hope you can speak to someone regarding your treatment plan and don't have to wait two weeks for your oncologist to get back. Although it puts more pressure on you, you may have to shout at someone at the hospital to sort this out.
I would also contact the hospital PALS department, who are meant to be on the patients' side, to lodge a formal complaint but, again, this is something extra I'm sure you don't need to be doing right now. As Belinda has said (and we've been on the forum about the same length of time) yours is the worst case I've read about regarding lack of care so I do think it would be justified.
However, for now concentrate on you and look after yourself. Sending hugs and any support I can offer.
Helen - I am so sorry to learn your devastating news. I cant express the words that I would like to about your oncologist. But please once you have had time to digest your shock ask for a 2nd opinion / change of hospital. You have supported so many people on this forum - now its our turn to support you so please rant, rave at us - we are all here for you. There are still lots of treatments available to you so dont give up hope. Stay strong, massive cyber hug xx
Oh Helen, I'm so sorry this has happened to you; bloody disease.
I'm feeling awful for you and just wish there was something I could do other than send love and a massive hug.
Take strength from those on here - we're with you all the way.
In my thoughts - love Tink x
Hi Helen...really sorry to hear about your sister....I guess in some ways your experiences have already helped her in dealing with it by giving her the fortitude to chaseconcerns at a different hossie.....cold comfort for you however and your own anxieties with regards to the treatment you have received. Im so sorry you are again waiting for a phone call with results....it really is stressful and seems a strange way to treat someone who has been through what you have been through. Im hoping the news will be very good. best wishes Pamx
Oh Helen - I am so sorry to learn about your sisiter and the ongoing saga of your hospital. I will be thinking of you both and do hope that you are both feeling a little brighter today and that you get good news from your scan results later today.x
I'm so sorry to hear about your sister Helen. Do you live in an area large enough to have yet another hospital for her to go to? NHS is also such a lottery concerning treatment. Our choice is local hospital just a 45 mile round trip or 150 mile round trip to the "big" hospital. We cann't even change our GP as we live in a rural area covered by just one surgery no one else is allowed to take us! The whole thing of what is available where is very unfair.
Back to the PIP when I phoned up I was asked about how far I could walk, both could I walk 50metres to which I replied at the moment but don't know what's going to happen then 20 metres withe same answer. I really do think it is a case of who you actually talk to on the day and if they are having a good day or not.
The job centre are just as bad. My brother in law has come to live with us and is having to claim but the attitude of some of the job centre staff is absolutely disgusting their don't care attitude and actually giving the totally wrong information which was when it boiled down to it a lie!
Another thing that stinks is with our council( I don't know if all councils have the same rules,) is adapted bathrooms. If you are rich enough to either build a new bathroom just needing grab handles for the bath and loo or have a large house with a second bathroom you can adapt you can actually drop a council tax band. If you have to adapt just the family bathroom because you are not well off for the other you cann't drop. Where is the fairness in that!!
Anyway moan over hope all you ladies out there get a good nights sleep (love one of those!) and a good day tomorrow.
Helen, I am so sorry to hear about your sister. What a rubbish hospital!! I wish her well. I'm sure she will get much better treatment wherever she has gone. I also think that when you get your results whatever they are that you should go there too. Love Sheila. Xxx
Helen, I will dig those poems out and send them in a private message to you if that is OK. I don't mind anyone on here seeing them but the forum is public isn't it and I feel better if they are kept relatively private. If I can't find a way to scan them I will have to type them so it might take a while! Ha ha xx
Hi Helen, hope you are still feeling a bit better. Have a rest day. It will do you good. All this backwards and forwards to hospital is tiring never mind anything else!
Chocolates, I'm glad you got your form sorted out. I didn't have to phone them up but rules change pretty quickly with benefits now don't they. Good luck.
Hope everyone else is OK. Xxx
Hello lovely ladies!
Quite aq lot of activity on here over the past couple of days but good to see that on the whole things are improving or moving forward for lots of us.
Just a quick one for Janette. Did you have a DS1500 with your PIP application, if so, backlog or not, they should not keep you waiting that long,they should be prioritising your claim, so give them a ring or see if the welfare adviser will do it for you xx