05-11-2018 10:29 AM
Mrs timps, sorry you've had to join us but you will find this forum amazing. i can only tell you that when my scans are looked at and there is any progression at all my treatment is changed. Do you have a sympathetic gp or a breast nurse you can talk to?
05-11-2018 03:03 AM
Mrstimps, Some drs are more aggressive than others. They also go by how you feel. My oncologist will go and look at the scans herself if she isn't sure. If you aren't comfortable with this maybe a second opinion would be good. FF
04-11-2018 09:23 PM
28-10-2018 07:45 AM
Hi Linda so pleased for you that is great news. last time we talked we had both started on e/e,didn't work for me but glad you had a fair time with it. i imagine taxol is chemo, i recognise the name as a heavy 6 month dose years ago after my primary.Hope things keep going in the right direction for you.
love and hugs
24-10-2018 11:59 AM
Following a meeting wth the surgeon yesterday, it now seems that she would definitely like to do surgery in the New Year! Am currently gettng herceptin injections which are working very well, but she doesn't want to leave me undefended should I need to stop the herceptin for any reason. Surgeon and oncologist seem to have different opinions
23-10-2018 06:02 PM
23-10-2018 10:51 AM
23-10-2018 08:06 AM
It is a lot to take in right now but we seem to learn and adjust along the way. In my own experience and after reading the experiences of many ladies on here over the years surgery is not given very often.
The reasoning behind this seems to be if you have a major operation, such as breast surgery, your immune system can be compromised which in turn can compromise your metastases. Most oncologists also like to have a reasonably time of stability, after initial treatment, to see how your particular BC, and SBC, reacts. If it is more aggressive they might not want to rock the boat so to speak. Their main aim is to prevent the mets spreading any further for as long as possible. By having chemo which will have been targeted to your type of BC it will have treated you systemically. Your original BC lump should have reacted to it as well. Also, from something that an oncologist said to me once, they can monitor the lump easier than bone mets etc which involve far more intrusive scans. My bone mets were found after a routine mammogram some 4-5 years after my primary. I had a local recurrence and was due a mastectomy but once the one mets were found it was straight into chemo nd then hormone treatments nd no surgery. I did ask over the years if I could have a biopsy or surgery and they said that on every CT scan I’d had there was no evidence of disease in the breast so it would have been pointless to have gone through surgery to have found nothing. By the way that was over 10 years ago and I’m still here! Over the years there’s been a lot of debate on this but there definitely doesn’t seem to be any pattern as to survival rates between those who didn’t have surgery for their primary (when they were diagnosed with secondaries at a similar time) to those that did, and very few (on the forum) have had the primary removed
Hope this helps or gives you some questions you may want to ask your oncologist.
23-10-2018 07:49 AM
22-10-2018 07:59 PM
Hi all, this is my first post so this is all new to me. Haven't read through all the posts and am a bit worried about sounding stupid! I was diagnosed in February and early on my oncologist had suspicions of a boney met in my sternum. All along surgery had been discussed following initial chemotherapy. However following chemotherapy there seems to be a turnaround where my onc. and the surgeon are both now thinking no surgery. Scans don't show any other secondaries bar the localised bone met. Any one else been in a similar situation and are wondering if it is best to get rid of the primary in the breast? Tks x
18-10-2018 10:04 PM
16-10-2018 08:32 AM