Member
Posts: 156
Registered: ‎19-11-2015

Re: Bone mets - please join in

Firstly hello  to all my friends on here,

 

I've been away for a while as a series of neverending appts.

 

I'm genuinely shocked and really saddened to hear of Moijan's passing....may i extend my sympathies and condolences to her husband, family & friends....xxx

 

I'm in a bit of a bother...I've had intense pains over 4 1/2 months so my oncologist ordered a CT chest, abdo., pelvis...NAD....so he spoke to me very verrry slowly as if i'm an idiot telling me i'm cancer-free 110%!! I feel so very ill & now I'm under a pain specialist....this is a tougher journey; than I'd imagined.

 

Owing to much slower healing after my tooth extraction, my oral biopsy will now be in early Nov.

 

Many thx for all your kind messages. I'm genuinely touched that u remembered me....

 

love & hugggs to all....

 

silver..xxoooo

Member
Posts: 266
Registered: ‎26-07-2015

Re: Bone mets - please join in

Ames........welcome to the bones thread, if you know what I mean! Not anyone’s preferred destination. But keep coming.........you will find support and advice here. I have had bone mets for 4 years now and they are still stable. You are E+ve which is lucky. Also you can have the new palbociclib......also good. I have been on letrozole for 4 years. I now have a liver spot which is being investigated. If a secondary I will have ablation which should zap it! There are treatments out there, so don’t panic! You may have to be patient for now to let the letrozole work. There will be scans to monitor progress. But do return here. There are some very experienced ladies here who will share what they know and their own story. 

 

mo

Member
Posts: 266
Registered: ‎26-07-2015

Re: Bone mets - please join in

Thank you for telling us about moijan, Helen. She will be missed on these forums. An absolute regular. Always full of support and advice. Fly high, moijan. I’m sure we’ll meet eventually!

 

mo

Member
Posts: 349
Registered: ‎18-01-2013

Re: Bone mets - please join in

Rest in peace Moijan. I am saddened to hear the news of your passing. You were such a supportive lady to us on the forum and particularly to me on the Chemo buddy needed, anyone on eribulin thread. We were so close to meeting once but it was not to be. My thoughts are with your family & friends.
Helen x
Highlighted
Member
Posts: 1,415
Registered: ‎18-11-2015

Re: Bone mets - please join in

So sorry to hear about Moijan. She was a wonderful, kind person who reached out to others with her friendship and knowledge. I never got to meet her but was lucky enough to speak to het several times over the last few months. It's strange to think I'll never hear her voice again. My thoughts are with her family. I will miss her.
Love
Waffles xxx
Member
Posts: 62
Registered: ‎30-04-2017

Re: Bone mets - please join in

Carolyn, I have followed this thread and remember your wonderful help and advice. Although we never met I feel my life has been blessed knowing that there are people like yoursef who continually care about others. Thank you. Cyber hugs to you and your family. xxx

Member
Posts: 4
Registered: ‎07-10-2018

Re: Bone mets - please join in

Hi all. I'm newly diagnosed primary with spinal mets and 2 'nodules' in my liver. I've had a round of FEC chemo but now it's confirmed ER positive the plan is zoladex and letrozole with palbociclib. I've had the zoladex a week ago but told need to wait another 3 weeks for it to work before starting the letrozole and palbociclib. Anyone else like me out there? Feel very alone. I'm 39 and have an 11 and 10 year old.
Community Champion
Posts: 4,531
Registered: ‎01-05-2012

Re: Bone mets - please join in

What sad news about Moijan,  Although we never got to meet we had tried to sort out a time when we could have but didn’t live very close to each other. We often sent PMs to each other so I was worried when I hadn’t  had a reply to my last one. May she rest in peace and my thoughts are with her husband and family and friends, including you, Helen, Thank you for letting us know.

Nicky xx

Community Champion
Posts: 3,098
Registered: ‎08-03-2015

Re: Bone mets - please join in

So very sad to read this news, have missed her around the forum lately and was praying it was a reason other than this , my condolences to her family and friends.  Rest in peace dear lady ❤️

Community Manager
Posts: 164
Registered: ‎25-01-2017

Re: Bone mets - please join in

Hi everyone,

Just a note from Anna and I to say we're really sorry to hear about Moijan and we're thinking of everyone here who knew her, as well as her friends and family outside of the Forum.

Take care,

Becca at Breast Cancer Care.
Member
Posts: 69
Registered: ‎18-03-2018

Re: Bone mets - please join in

Sorry to hear the sad news about mojan thoughts with family and friends RIP xx
Member
Posts: 764
Registered: ‎30-05-2017

Re: Bone mets - please join in

So sad to hear about Moijan, she was a great support to many of us who never met her. Sending love to her family and friends.
Member
Posts: 74
Registered: ‎28-06-2013

Re: Bone mets - please join in

Sorry to hear news about Moijan. Hugs to friends and family. Paula xx

Member
Posts: 1,594
Registered: ‎21-05-2014

Re: Bone mets - please join in

RIP Moijan, so sorry to hear this.
Thank you Helen for letting us know, please give my love and condolences to her husband and family.
Hugs Janette xxx
Member
Posts: 1,598
Registered: ‎01-05-2012

Re: Bone mets - please join in

At peace now Moijan. I was lucky to meet you. Love to all your family and to you Helen. xx
JWD
Member
Posts: 192
Registered: ‎24-07-2018

Re: Bone mets - please join in

RIP Moijan.. At peace.. sending love to all the family xxx
Member
Posts: 447
Registered: ‎01-05-2012

Re: Bone mets - please join in

[ Edited ]

RIP Moijan

 

It is with great sadness I write to share with you that Moijan died on Wed 26th Sept. 

I spoke to her husband last night and he asked me to pass on the news. She passed peacefully at St Catherine’s Hospice, West Sussex & East Surrey.

 

Moijan became my friend a few years ago after we met through the forum and spent some happy afternoons in my garden and many times FaceTiming late at night. She was a lover of bell ringing and had many friends, but to the forum she built up a whole new collection of friends and was always trying to help all of us with our own difficulties, rarely asking for support herself. As a Community Champion she served us well, absolutely focussed on trying to help and suppport us and I’m sure she will be greatly missed by all.

 

I‘m sure you will join me in passing our sympathies to Paul, her family and friends.

 

...We often joked about who would go first, well, you beat me to it, Moijan, but I look forward to seeing you again sometime for some tea and sunshine xxx

 

(Also posted on the End of Life Forum)

Member
Posts: 22
Registered: ‎16-09-2018

Re: Bone mets - please join in

All the best and will think good thoughts and prayers.
Community Champion
Posts: 4,292
Registered: ‎01-05-2012

Re: Bone mets - please join in

Hi everyone! 

 

Silver, Good luck with the biopsies. This cancer doesn't let any area alone!! FF

Member
Posts: 764
Registered: ‎30-05-2017

Re: Bone mets - please join in

Silver, good luck with the biopsy. Hope everyone is ok, I haven't been checking in very often but I still think about you guys. Had a long weekend in the campervan in Cambridgeshire, catching up with old friends and enjoying the fab sunshine. Chemo tomorrow. Oh well, at least my bloods made the grade this time!