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Bone mets - please join in

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Re: Bone mets - please join in

Thank you for all your kind messages. Progression is small enough to stay on same drug for the time being but I am going to get some scans. Onc said he didn't like doing scans without good reason, they only caused anxiety but I feel not having them over a prolonged period causes anxiety too.

xxx

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Re: Bone mets - please join in

Sending you best wishes and luck for tomorrow bon xx
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Re: Bone mets - please join in

All the best and hope there is a clear plan x
Member

Re: Bone mets - please join in

Good luck Bon
Xx
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Re: Bone mets - please join in

Good luck Bon, thinking of you.xx
Community Champion

Re: Bone mets - please join in

Good luck Bon! FF

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Re: Bone mets - please join in

Wishing you all the best today Bon, hope it’s only minor progression that your GP has told you about and any treatment change is kind to you x

Community Champion

Re: Bone mets - please join in

Good luck Bon, fingers crossed that your results don’t show too much progression and that any change in treatment is not too harsh. I agree with being able to enjoy this summer, for me it’s been a welcome break from chemo or IV treatment (in one form or the other for the past 4 years, gulp) as I’m on Faslodex at the moment which has also meant fewer and quicker hospital visits, hooray.

Hi to all other bone mets ladies, hope all is going well with your treatments and good luck for any expecting scan results.

Nicky x

JWD
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Re: Bone mets - please join in

Good luck bon.. sending love and thinking of you. Xxxx
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Re: Bone mets - please join in

Hey ho, scan results tomorrow. My GP has already told me I have progression. Previous bone scan was 17 months ago so plenty of scope. Last thorax and abdomen CT 3 years ago. Well at least I was able to enjoy the long hot summer undisturbed.
Hugs to all
Bin xx
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Re: Bone mets - please join in

Yes I have to admit I too have just used my health card and took insurance excluding cover for my secondaries for trips to Europe as it was getting too costly at £200! Don't know how much longer that will continue though with leaving the eu😕. I purchased via MIA but the policy was good to go for thailand xx
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Re: Bone mets - please join in

Thanks for the insurance info Sarah. I used MIA many years ago but they stopped insuring for USA and long haul (for secondary BC ladies) so it’s interesting that they are now offering it again, even at such a high premium. However, like you I’d rather have peace of mind and would never risk going to USA without it, especially with their high medical costs if you weren’t covered. I have travelled many times to Europe with only my EHIC card plus a travel insurance policy that excludes my pre existing condition although now use Eurotunnel which is very reasonable so have full cover. Like you I like to have some sunshine between the showers/clouds - very well put!

Nicky xx

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Re: Bone mets - please join in

Yes my coping mechanism is right let's get busy and book a holiday - got to have rays of sunshine in between the clouds😊. Good luck for your scan results and enjoy your hol distraction. I have really struggled with insurance due to having a pleural drain - one of the only companies that would insure me were MIA it cost £500 so not cheap but gave peace of mind I also used them to travel to USA xx
Community Champion

Re: Bone mets - please join in

You’re right FF, it has been very quiet on here, good to see you’ve woken us all up though 😊 I think you must have lol of our rain as the UK seems to have been very dry this whole summer, even areas which normally are known to be wet. Send it over, I’m sure you will want to get rid of it.

Bon, hope the anti sickness meds help and don’t add to our ever increasing chemo brain (I blame all of my many treatments for this’ll!) Sorry to bear though of the slight progression but it’s good that a hormone combo has kept you stable for so long. Take a deep breath and try to not think of what they suggest next (that almost sounded like the ‘take a deep breath, and hold, hold, hold, breath out’ instruction for our bloomin’ scans!) Enjoy you last 2 Go Campervanning treat and I hope the weather picks up for you, it will be a welcome distraction whatever the weather.

Sarah, wow, well done you leaving your dream trip to Thailand. It does help when you are faced with a new treatment to come into it refreshed and having been away from the whole hospital/oncology circus. Can I just ask who you used for travel insurance as it is so difficult to get companies to insure us mets ladiesfor far flung places.

Hope everyone else is doing OK and coping well with treatments, SEs and the general grind of appointments. I’m in between scan and results time but have crammed in a holiday in between so scanxiety doesn’t kick in too badly. Good luck anyone else with scans or results due.

Nicky x

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Re: Bone mets - please join in

Thanks Sarah and Ff. Forecast for today looked dreadful but has improved. Found out yesterday that i have progression but I did well to get 3 years out of exemestane. I will put it all on one side and deal with it when i get home.

love Bon x

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Re: Bone mets - please join in

Sarahlew, I've been on E & E for 17 months. I'm on the full dose and its going OK. Fantastic that you got to fulfill your dream. We deserve some treats with what we are going through.

 

Bon, Enjoy your camping. I wish we had a camper van. 

 

FF

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Re: Bone mets - please join in

Hi all
Have had an anxious and frustrating few weeks waiting to hear if I was eligible for trial - I wasn't so another wait to start e/e and after lots of emails phone calls starting it Wednesday so hoping it has some effect as pleural fluid has increased a lot lately. On a happy note went to thailand a couple of weeks ago which was amazing and feel so happy and fortunate that I was able to fulfill that dream😊with my family.
Enjoy your trip bon and hope the rain stops soon ff!!! . Hope everyone else is OK and managing with their treatments xx
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Re: Bone mets - please join in

No results yet. Am on new anti nausea drug. Not doing a lot for my brain! Going camping to Cornwall on Wednesday. Husband decided to sell our campervan and had found a buyer but I said I wanted one last trip this year so I have got to go! Think I'll turn off my phone. Might be no signal anyway. There are lots of places where I live (S Devon) with none.
Love to all Bon xx
Community Champion

Re: Bone mets - please join in

Quiet on here! Hope everyone is off having fun. Only way to have fun here is to be a duck and get your waddle on! Rain, rain, and more rain! This is the most rain I've ever seen in a summer. Good thing I like my colorful polka dot umbrella. 

 

Hugs! Take care! FF

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Re: Bone mets - please join in

Hi Kate21 & bon.....

 

How are u? Take care.....

 

silver...x