I don't know that drug. Mine are Denosumab injections & Letrozole. There appear to be such a variety of onco. drugs. Bestest luck with your bone scan. How long do u have to wait for results. I'm in a whole lotta pain.....awaiting pain specialist appt....xx
As a relative newbie, I'm learning loads on this forum. Can u elaborate about the consultant to GP ball passing...please..xx
Buck passing all round then. Sorry I was telling you stuff you already knew. I don't have any personal experience of our hospice yet but I am surprised at your hospice's response to you.
This ball game berween consultants and GPs is not uncommon.
Many thx for your ever so prompt reply. I undestand now. My oncologist just keeps telling me to contact the hospice for pain relief. So what has just happened to me is unexplainable!!
The Director of my hospice wrote me an email saying she is not an expert in chronic pain and discharged me to my G.P.
I'm gobsmacked & I'm never ever one to complain...it appears I'm not terminal enough. I do have a multifactorial presentation...high b.p., diabetes. inflammatory arthritis and Max of course.....xx
You probably have a hospice local to you. Most people think of hospices as places where you go to die but hospices do far more work in their communities supporting people to live as long and as well as possible. My local hospice requires a referral from a GP or consultant. They are good at things like pain relief. Maybe you can ask your GP about your local hospice.
I'm sorry your pain is bad and hopeyou can find some help
Hugs Bon xx
Thank you Silver,,,
i too am in pain, tummy and arms etc....I found the hospice outreach team helpful..,think they re better t pain control, so will be askiing them
As i promised....over a week of 900mgs Gabapentin a day on top of Butec, Morphine sulphate....absolutely no pain relief.....I'm a bit concerned...seeing G.P. 2moro but she's an efficient pain-belittler so i'm not holding my breath.....I hate 'Max'!!!
Hi Moijan, how are you now? That;s really interesting from your radiologist, the ones doing my scans are lovely but secretive! Hope you're managing.
Yes very good luck with the mri....I now have them thre monthly...and the head radiologist once told me they can tell if the cancer is active....as if it is they see water around the cell in the mri....fingers crossedxx