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Bone mets - please join in

Member

Re: Bone mets - please join in

I don't know that drug. Mine are Denosumab injections & Letrozole. There appear to be such a variety of onco. drugs. Bestest luck with your bone scan. How long do u have to wait for results. I'm in a whole lotta pain.....awaiting pain specialist appt....xx

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Re: Bone mets - please join in

I have been on exemestane for nearly 3 years. Had primary in 2009. Bone scan on Thursday. Last one was 16 months ago. Have been feeling a bit unwell this month. Fingers crossed. x
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Re: Bone mets - please join in

Hi bon,

 

How long have u notched up? And where are u in your t'ment regime?? xx

Member

Re: Bone mets - please join in

Hi bon,

 

As a relative newbie, I'm learning loads on this forum. Can u elaborate about the consultant to GP ball passing...please..xx

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Re: Bone mets - please join in

Dear Silver

Buck passing all round then. Sorry I was telling you stuff you already knew. I don't have any personal experience of our hospice yet but I am surprised at your hospice's response to you.

 

This ball game berween consultants and GPs is not uncommon.

 

Bon x

Community Champion

Re: Bone mets - please join in

Ok silver...that’s pretty strange as my hospice outreach team have said they would be able to help if need be..the onc prescribed something, but I need to try it.the team came out to my home to assess me and offered to look at my drugs...they have doctors employed by the hospice, who. I can chat privately / independently if I’m concerned about an aspect of treatment and they offer Reikhi and other therapies at the hospice if you’d like them.
The team visit during a 24 hour service.
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Re: Bone mets - please join in

dear bon,

 

Many thx for your ever so prompt reply. I undestand now. My oncologist just keeps telling me to contact the hospice for pain relief. So what has just happened to me is unexplainable!!

 

The Director of my hospice wrote me an email saying she is not an expert in chronic pain and discharged me to my G.P.

 

I'm gobsmacked & I'm never ever one to complain...it appears I'm not terminal enough. I do have a multifactorial presentation...high b.p., diabetes. inflammatory arthritis and Max of course.....xx

 

Member

Re: Bone mets - please join in

Hi Silver

You probably have a hospice local to you. Most people think of hospices as places where you go to die but hospices do far more work in their communities supporting people to live as long and as well as possible. My local hospice requires a referral from a GP or consultant. They are good at things like pain relief. Maybe you can ask your GP about your local hospice.

I'm sorry your pain is bad and hopeyou can find some help

Hugs Bon xx 

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Re: Bone mets - please join in

Can u please elaborate...who are the hospital outreach team??

Community Champion

Re: Bone mets - please join in

Thank you Silver,,,

 

 

i too am in pain,  tummy and arms etc....I found the hospice outreach team helpful..,think they re better t pain control, so will be askiing them

 

 MOijan

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Re: Bone mets - please join in

@ moijan,

 

As i promised....over a week of 900mgs Gabapentin a day on top of Butec, Morphine sulphate....absolutely no pain relief.....I'm a bit concerned...seeing G.P. 2moro but she's an efficient pain-belittler so i'm not holding my breath.....I hate 'Max'!!!

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Re: Bone mets - please join in

Hi Moijan, how are you now? That;s really interesting from your radiologist, the ones doing my scans are lovely but secretive! Hope you're managing.

hugs Ramadexx

Community Champion

Re: Bone mets - please join in

Yes very good luck with the mri....I now have them thre monthly...and the head radiologist once told me they can tell if the cancer is active....as if it is they see water around the cell in the mri....fingers crossedxx

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Re: Bone mets - please join in

Thanks Anne, yeh finger, toes and everything is crossed here 😁
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Re: Bone mets - please join in

Hi Silver, hope they’ve advised you what to do? Take care, Kxx

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Re: Bone mets - please join in

Hello to Kate21,Woman Happy

 

 

 

Many thx for being there

take care

silver..xx

Member

Re: Bone mets - please join in

Hello Zana It’s such a hard time. We all understand that. At least they are taking care to look closely. It’s horrible waiting for results but better that you know. Fingers crossed it’s all clear Anne x
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Re: Bone mets - please join in

Hi Anne, seems I’ve to get another MRI scan, so hopefully I’ll get more answers with that, thanks for your reply
Zana x
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Re: Bone mets - please join in

Hi Moijan, yip totally confused with that result, I thought the pet scan would show any cancer but seems not 😳

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Re: Bone mets - please join in

Thanks mermaid, yeh im starting to see that myself on here, gives you hope 🙂