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Ok I have to ask. What is a forever garden? I'm guessing a perennial garden. Lol if it is mine is basically dead. It did well for many years and last year wasn't doing well. This year up popped a ton of gristle in it.I had to pull them out with leather gloves. Two were is later they were back. Same process and now they are back again. Decided to just chop it all off. This is right against the front of my house. I figure next year I will have to rip it all out. Might turn into two bushes and some potted plants. 

 

Raining here for the next 10 days. I was supposed to go to the beach this week. Quite bummed my only time this year at the beach and its going to rain for it. 2018 hasn't been cooperative for having fun! 

 

FF

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Hi Zana,

 

Sorry to hear your recent news. 3 years plus ago, at Dx, they found mets in my lymph nodes so axilliary clearance and a week later mets on both hips.......hang on in there....hugs..

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Hi Zana,
Sorry you've had this diagnosis so soon after your lumpectomy, you must be feeling really battered. You've come to the right place, if you browse through the recent posts on this thread you'll find some really encouraging stories.
I can't help you myself specifically about bone Mets, as mine are in lymph nodes, lungs, etc but none diagnosed in bones yet (doesn't mean they ain't there!). But the people here are very welcoming and supportive no matter what your particular diagnosis is. One thing I've learned is that we're all different and none of us is a statistic, so try to ignore statistics and concentrate on you as an individual.
I hope you'll feel better when you've seen the team, it does get easier when there's a plan. Best of luck and big hugs!
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hi ramade,

 

Thx for answering. I'd never heard of this particular type of mets. before. I guess 'it' showed up on a CT......thinking of you till you wait for the 8th. Waiting is just 'horrid'!!! 

Hugs to you, too,

silver...xx

 

Hoping you have family & friends around you.....x

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Hi Silv, well soft tissue cancer is when it's not in an organ but just loads floating around. mine is in my neck and chest. Don't know what they're going to try next but will find out on the 8th August.

hugs to you

Ramade xx

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Forgot to say I Had the original lump removed less than 3 months ago and was due to go back in and get a full lymph node removal, but they have now said I don’t need it after finding the bone met? Don’t know what treatment I’m going onto as yet, will find that out on Tuesday when I meant the specialist team.

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Hi I don’t know if I’m posting this in the right place, but I have just been told yesterday that I have bone mets in my spine and that I can’t be cured that they can only treat me and buy me as much time as possible. I’m assuming there are people on here that have been living with bone mets for years, would be good to know how long you guys have had this to give me some sort of hope moving forward, 

thank you x

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Sarah, That put a smile on my face! Fantastic that you feel good! FF

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I'm feeling great thanks just got back from 3 weeks travelling Europe in our camper😊. Just on letrozole and denosumab atm scan results in couple of weeks x
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Sarah, How are you feeling? How's treatment going? I'm happy you found some comfort in our stories. We never know how this will play out, but we all need some hope! Believe me I searched and searched for positive stories when I was diagnosed. Hugs, FF

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Great news ff - you give me such hope and inspiration. I remember looking at yours and nickys posts when I was first diagnosed with secondaries and after a nurse (she worked in breast clinic but was not a specialist breast nurse!) saying to me "you might be offered a bit of palliative chemo but lots of ladies decide not too as side effects not worth it"!!!! I thought that's it then until I came on here and read your stories
Ramade I'm so sorry your having a tough time chemo is so gruelling and so hard when there is no change how manyou sessions have you got left?
Sarah x
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hi tatyana,

 

Ditto....I empathise completely in that my 'forever' garden is a very young one, too. Rain was promised today and we have had about 2 minutes worth so far in! I'm genuinely missing the rain...never ever thought I'd say this; in this country!!! Its all rather 'odd'......

 

All good wishes,

silver xx

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Silver, I can sympathize with you about the garden- isn't it horrendous! Ours is quite small, but a large proportion of the plants are not long established, the previous owners didn't really do gardening so we've spent four years planting stuff and I really love it now. But it's so hard for newish plants to survive in this weather. We water what we can, using lots of recycled washing-up water, but we can't get round all of them. You try your best, then suddenly notice yet another plant with crinkly leaves.
Why won't it just RAIN?!!
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Ramade, I'm sorry you didn't get better results! We all want it to get smaller! Most of my treatments  would shrink mine a tiny bit. Mine was stable which = no changes for 5 years on vinorelbine. Are you staying on the treatment? FF

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Hi ramade,

 

I'm a lil' bemused. What is soft tissue....liver?? 

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dear ff i am so pleased for you i can't tell you. fantastic news,well done,

i haven't posted for ages,trying to get through 6 months of hellish chemo,result no change. it seems they aren't too worried about bones these days which might be interesing to some. i have chemo in the soft tissue which they do seem worried about but can't find any info on it, anyone??

anyway once again so pleased for you.

;ove and hugs

Ramade

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Hello dear Nicky.Smiley Happy

 

Many thx for your highly informative post...very much appreciated. Sometimes, I feel like I'm 'flying' in the dark! What is Fulvestrant? I'm on letrozole & Denosumab injections.

 

When I asked my oncologist to explain the pathological breakdown of my biopsies, he said that I did not need to worry about all that!!

 

I'm a divorcee & I live on my ownsome...thank goodness for my Mcmillan befriender. I did not find him till the initial blast of chemo. & radio. were over; more's the pity.

 

My body does not like the heat so I'm finding this heat wave very hard but I've gr8 fans!!

 

I love my forever garden to pieces and I'm now losing plants...Boo hoo!! (grumpy ol' woman...te, he, he.....)

With all good wishes ,

silver xx

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Thanks girls! Please know that I'm not naive about this. I don't think I could ever go back to thinking it is gone forever. As much as I would love to think that I could never have that trust. I just plan on enjoying it for the moment. Hugs, FF

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Hi silver - glad to be of help and I'm happy to share as much as I do, I keep a few things back especially any real identifiers to who I am and my family - hence no photo - ever!

I'm currently on Fulvestrant and Denosumab, both injections (not IV) every 4 weeks. I'm strongly ER and PR positive, and, for now at least HER2-

I can't explain what happens to bone mets - you might need to read up on it as I'd get it wrong. But basically bone is a living part of us, it grows and it dies. Its this mechanism and status quo that cancer disrupts.  The bone strengthening treatments are there to do just that - strengthen the bones, but they also stop the cancer from attacking the bones even more. So the damage is still there and therefore there can be weak points, which often cause pain, and therefore the areas affected will show up on CT scans, MRI scans and of course bone scans.  My hosptial only uses bone scans for diagnosis so I have only had one back in 2008 when I had one hot spot and one spot on my upper spine.  Because the bone mets went on the rampage in 2013 (when I wasnt getting regular scans) I now know they are all over or 'extensive' as my reports say.  However they have all been stable since 2013.  I know roughly where they are as places such as the ribs are tender to press, so I know they are there!

My CT scan is just the normal one, no extra passes, I believe all soft tissue and bone mets (and node enlargement) will be picked up over a certain size (MRI scans are more accurate and pick up smaller lesions as well) but I dont think they can pick up skin mets but as I dont have them I dont actually know.  Our CT scanners at the hosptial I have treatment at are pretty new and hi tech whereas maybe some of the older ones in other hospitals are not so accurate hence the need for other scans?

As to the heat I'm enjoying it when I can but definitely prefer it to be cooler and breezier! A spot of rain (or a downpour) would be nice so I don';t have to keep watering my plants.

Take Care

Nicky xx

ps Even better news from you FF and thanks for sharing. I think my liver 'witch' has also left the room - for a while at least, no sign of her on the recent CT scan despite setting up home there 5 years ago.  Obviously the surgical knife got her ha ha.  As you have said it all seems a bit unreal when you have had certain mets for years and suddenly they are gone or lying dormant.  However I'm well aware 'she' will be back from her holidays at some point! xx