05-06-2018 10:17 PM
05-06-2018 08:32 AM - edited 05-06-2018 08:49 AM
There was also a feature on bbc breakfast news this morning about a woman with stage4 breast cancer with several secondaries including liver, having been given 3 months to live, having no sign of cancer 2 years later after taking part in an immunotherapy trial. I tried but couldn’t post the link from the bbc news website but found this from The Guardian. Hopefully this type of treatment, although a while off yet, will become more widely accessible.
04-06-2018 04:28 PM
04-06-2018 03:31 PM - edited 04-06-2018 03:33 PM
We are about to go away in our campervan. Didn't go away in it at all last year. The weather has encouraged us.
Headline in my paper this morning: 'Genetic test could help breast cancer patients avoid chemo.'
Hopefully it will also help the type of patients (like me) who hitherto hadn't been given chemo to get it if they need it.
03-06-2018 03:05 PM
Tatyana, I would love to have a camper van. Go relax and enjoy. I can kill spiders if need be, but not fond of it. I wish you could all see and hear my hubby run and scream from a snake. He wouldn't be any help with that!
03-06-2018 10:33 AM
03-06-2018 07:01 AM
03-06-2018 05:49 AM
31-05-2018 10:59 AM
Thanks girls! I don't think the hot sticky weather helps the itching much! I try to ignore it but it's impossible some days.
Thank goodness we don't get all the side effects.
Have a good day everyone. I'm off to work!
31-05-2018 07:37 AM
Hi Funnyface, sorry e&e is giving you the itches, hope they can give you something to soothe it. As Carolyn said you seemed to be coping with it and carrying on looking after others. As I posted recently, the list of s/es looks daunting but it does say, in an effort to reassure you, that you won't get them all. I should hope not! Hope things improve and for you too Carolyn.
31-05-2018 07:09 AM
30-05-2018 09:42 PM
E & E driving me crazy with itching today. I've been on this combo for a year. It has made me itch but the last two days it's driving me mad. I had to stop it for 2 weeks to try and get an infected toe nail to heal. It was ingrown and they have had to cut at it several times. I started the combo back up and it is more itchy than ever. Taking antihistamine and putting a topical one one on two. I'm actually sitting on my hands so I can't scratch!
Carolyn, I know you are worse than off than me with your SE's. I have scratch marks everywhere. Dug my self up in my sleep last night. I look lovely!
29-05-2018 07:17 AM - edited 29-05-2018 07:19 AM
When i was put on exemestane 2 1/2 years ago, my onc mentioned everolimus and gave me a Macmillan information sheet about it . I read it and my heart sank but when I asked about it the next time i saw him he said that I wouldn't be having it. I assumed it was because it had been taken off the list of drugs available on the NHS. I've been lucky that exemestane has worked for me. Hope the combination works for you Carolyn.
28-05-2018 03:49 PM
28-05-2018 09:58 AM
So pleased that your scans showed no nasties but what a pain to have the SEs that you’re getting. I remember when the E/E combination was first introduced and my then oncologist said what a wonderful drug (the everolimus part) was as he’d been involved in the research for it. I said to him he should look on this forum as there were plenty of ladies suffering with SEs who wouldn’t have the same opinion as he had! I still think all oncologists should use this forum as a guide to how we actually feel, not just spout the same information that is written on the leaflets! Anyway, great news and I hope the SEs do get sorted.
Hi to all other mets ladies, hope you are enjoying the bank holiday and the weather isn’t too bad where you are. A nice surprise yesterday when we didn’t get the threatened thunder storms but had a lovely sunny, and hot, day instead, just right to get all my post holiday washing on the line. A bit overcast today but can’t complain.
27-05-2018 09:21 PM
27-05-2018 07:46 PM - edited 27-05-2018 07:48 PM
Yes. Pleased about your good news Carolyn, everolemus has dizzyness listed asa s/e, and I agree about the oncs not knowing about all the side effects...I think they also play them down too! I remember being told I’d likely get none on Cape...and the first month I got every one..AND a dvt to boot.!
i was told Paclitaxel likely wouldn’t give me half the listed side effects, but iv had most of the comm9n ones now..today it’s constant nausea and muscle/bone pain, other days it’s rashes-or sore dry eyes
Also get a load of nasty ideas running through my head but we all get those don’t we at times.
much love to you Moijanx😘
27-05-2018 06:08 PM
Carolyn.........after reading ff and ramade I had a look at everolimus on Macmillan and sure enough a swollen face is a possible se. And it is not one of the least common ses. Perhaps onc will find this out and take it into account when deciding if you should have an even lower dose, or stop altogether. You could certainly point it out next time. We have to cope with ses as well as the disease!
Lovely day, but what a night! Lightning, thunder, lashing rain here. Thought it would never stop! It was like a firework display!