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Hi Carolyn,
Really pleased that your brain scan showed nothing to worry about. It is just terrifying waiting for those results. I hope you get your face swelling sorted out soon. Does sound like some sort of drug interaction.
Lots of love
Waffles x
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Sometimes with these things you have to try to solve them yourself. Hospital have no ideas.
Also, I have been taking codeine as a pain relief so am.now going to stop them for a week and see if it could be them interacting with the devil pills !
☺☺☺
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Carolyn, That is what I had read when I googled it. It came from a reliable site. The oncologist can't remember all these side effects. Also, who says your body can't come up with its own different set of side effects. The list of side effects is composed from people reporting them. 

 

We are rare birds sometimes! FF

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Remade

Thank you so much for saying about the swollen face ..oncologist says not a side effect !! I call everolimus the devil pill but determined to keep going and give it a try . It also says on Google it can intereact against denosumab too ...aagh. .no win.
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hi Carolyn, pleased to hear your good news. i found everolimus made my whole face swollen so had to lower dose. it can be quite a nasty one but if it works and you can take it that's good.

hugs

ramade xx 

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Hi Carolyn Great news and hopefully you are now able to relax and enjoy the bank holiday. Lots of best wishes to you all and heres hoping everything is working for us

Wendy
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Thank you ladies for holding my hand the last few weeks....it's a scary journey we travel with this cancer lark.

Hope everyone is coping with their problems ..sometimes the treatments are worst than the disease ...

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So pleased for you, Carolyn! Your new Onc sounds very thorough which is reassuring. Have a lovely relaxing weekend x

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Great news Carolyn, it’s so nerve wracking waiting for results x
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Awww Carolyn, I know I’ve already been in touch about your fantastic news but just wanted to jump on here to to join everyone else in celebrating your good news!......I hope you celebrated last night!
Let’s hope they can get your numbness sorted soon but at least you know it’s nothing sinister!
Hugs Janette xx
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Carolyn it must be a relief to have those results after a long wait. Hope they can do something for you and you can stay on e and e if it's working for you. You never know what you are going to pull out of the s/e lottery..

love Bon x

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Ah Carolyn I'm sorry to hear what you have been going though, must be so scary but brilliant to hear it's nothing nasty 😊 Xx

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Carolyn so glad you liked the oncologist and had a thorough appointment. Now to get  through the next 4 weeks. Are you still on a low dose? Maybe they will have to change it. You will need to decide if it's worth it. Maybe it will seem more tolerable since you know  it's nothing sinister now. These drugs are crazy. It's amazing how some of tolerate them and others can't. You had letrolzole and did so well. Letrozole was a tough one for me. Hang in there! Hugs! FF

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[ Edited ]

Carolyn...so very pleased nothing sinister going on....you have been having a tough time...hope this new oncologist is for keeps?  

 

Sorry about the strange symptoms.....mine are less unusual, but achy wrists, sore eyes,  irritated gut etc...oh and of course sore fingers, but these are all typical on taxol......

 

 

(I hadnt realised but exermestane does have dizzyness listed as a side effect.)

 

‘’loads of love and hugsxx

 

Moijan😘

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Hello tatyana

Sorry to read in Cape thread that it's stopped working for you ..somehow treatment becomes like a pair of comfy slippers and starting new stuff is so nerve wracking ..but hope the gem carbo works well for you ..I don't think u loose your hair either with that one ..
I was sad to stop letrozole a few months ago as I seem to tolerate it well but that's life!
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Carolyn, so glad to hear that nothing sinister is going on. Now let's hope they can do something about those symptoms! And it's great that you like the new oncologist.
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Afternoon Carolyn

Just sent you a PM. So pleased there is nothing sinister going on.

Time to celebrate.

Hugs
Linda
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So glad all clear but very sorry you’re not well. Hope you get some answers soon. Agree about the NHS.
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Hello ladies
Been a bit quiet here lately as I haven't been too well ..had a brain scan a few weeks ago and been waiting for results .
Brain head and face. .clear
Dental x ray ..clear ..no jaw probs.
Lymph nodes in neck ..clear.

Still haven't found out why I have a numb swollen face and dizzy spells but carrying on with exmestance and everolimus for another 4 weeks.

Had a new oncologist today ..brilliant ..just got everything checked out whilst I waited ( 5 hours but worth it )

Hip hooray for NHS. ...
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Hello Briony, welcome to our group. Definitely tell your doctor, always. i have pins and needles because of cancer pressing on nerves. For this i am treated with Pregabalin which is brilliant.

Hope this helps

hugs

Ramade