27-05-2018 05:35 PM
26-05-2018 02:43 PM
26-05-2018 02:05 PM
Carolyn, That is what I had read when I googled it. It came from a reliable site. The oncologist can't remember all these side effects. Also, who says your body can't come up with its own different set of side effects. The list of side effects is composed from people reporting them.
We are rare birds sometimes! FF
26-05-2018 12:06 PM
26-05-2018 10:17 AM
hi Carolyn, pleased to hear your good news. i found everolimus made my whole face swollen so had to lower dose. it can be quite a nasty one but if it works and you can take it that's good.
24-05-2018 01:18 PM
24-05-2018 08:00 AM
24-05-2018 07:09 AM
Carolyn it must be a relief to have those results after a long wait. Hope they can do something for you and you can stay on e and e if it's working for you. You never know what you are going to pull out of the s/e lottery..
love Bon x
24-05-2018 12:49 AM
Carolyn so glad you liked the oncologist and had a thorough appointment. Now to get through the next 4 weeks. Are you still on a low dose? Maybe they will have to change it. You will need to decide if it's worth it. Maybe it will seem more tolerable since you know it's nothing sinister now. These drugs are crazy. It's amazing how some of tolerate them and others can't. You had letrolzole and did so well. Letrozole was a tough one for me. Hang in there! Hugs! FF
23-05-2018 11:24 PM - edited 23-05-2018 11:32 PM
Carolyn...so very pleased nothing sinister going on....you have been having a tough time...hope this new oncologist is for keeps?
Sorry about the strange symptoms.....mine are less unusual, but achy wrists, sore eyes, irritated gut etc...oh and of course sore fingers, but these are all typical on taxol......
(I hadnt realised but exermestane does have dizzyness listed as a side effect.)
‘’loads of love and hugsxx
23-05-2018 05:14 PM
23-05-2018 04:17 PM
22-05-2018 12:17 PM
Hello Briony, welcome to our group. Definitely tell your doctor, always. i have pins and needles because of cancer pressing on nerves. For this i am treated with Pregabalin which is brilliant.
Hope this helps